Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, ValtrexOTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus
Allergies: All Sulfa-based medications; Levofloxacin, Levaquin
DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Oh yes, it is always a dreaded conversation with my sister, I have never really gone into any detail about anything with any of my family except for my husband and my biological daughter (not my stepdaughter).
My Rheumy diagnosed me with Inflammatory Arthritis, so that is what I told my family. Never even mentioned Lupus at all. Guess I should have but just couldn't bring myself to go into details with all of it.
My sister asks almost every time I talk to her how my arthritis is doing. I get really tired of her asking and always say good or just fine even if I'm not. My mother seems to understand more because she is 94 years old and has old age arthritis too.
My daughter can just tell by the way I act how I am feeling and asks at appropriate times. But we are very close and sometimes I think she can read my mind. But anyway I understand how you feel and sometimes wish I had never told my other family. It is frustrating. No getting around family member comments though. Have to live with it. Take care just a few thoughts
Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD
I'm with ya all here. If I could have raised my arm high enough yesterday I would have liked to have "boxed" with a few of my family members as well. I did, however, recently get my Mom and Dad and twin sister onto the "but you don't look sick" website. They read it but not sure what they thought. They haven't talked to me about it and I haven't asked. My twin (whom I love more than my own life) is not sick but she is very selfish. She is all about "am I gonna get it" or "should I be worried about myself" or "what will I do if I get it". All very important things to consider but has she really ever once asked "how are you doing Diane" - NO she hasn't. I think my problem is that I want to talk about how I am feeling both physically and emotionally but my family really doesn't want to listen. I have always been the quiet one in the family and with our family all together yesterday again I was the one who stayed at the edge of everything instead of jumping into the center and I guess Mom finally did notice that I am even quieter now than I ever have been. I'm just venting here. I want people to know I don't feel good and why. I want people to care enough to understand if I get crabby cause I'm in pain. I'm not looking for sympathy or "oh poor you", just some compassion would be nice.
Okay, vent over.