Night sweats and lupus

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Tammy B
New Member


Date Joined May 2007
Total Posts : 18
   Posted 6/2/2007 3:25 PM (GMT -6)   
Hello everyone.  Just wondering if any has problems with night sweats as a lupus symptom?  I have had some issue with night sweats for years, but nothing major, and the drs. all attributed it to hormones.  In the past 6-9 months, it has gotten worse, and a down right nuisance!!!  I am actually changing my clothes at least 2xs a night when it hits.  Any input is welcomed.
 
Thanks~  Tammy B.
dx: fibromyalgia 2006; uctd/probable lupus 2007; hypothyroidism
 
rx:  Prednisone 40 mg./day; plaquenil 400 mg./day; levothyroxine .025 mg./day; sertaline 100 mg/day; allegra d; caltrate plus d 600 mg. 3x/day; multi-vitamin


mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 6/2/2007 5:21 PM (GMT -6)   
Hi Tammy,
   I think I remember some others talking about this awhile back. Maybe they will see this soon and help you out. The only time I sweat at night is when I'm taking prednisone, have a fever or its just hot in my house. Hope you get some help soon and relief. Keep us updated and take care.
                                                                      Babs
 
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omega
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Date Joined Jan 2007
Total Posts : 602
   Posted 6/2/2007 5:27 PM (GMT -6)   
I believe night sweats or sweating is the result of taking pred. I asked my doc one time and he asked me if I needed to change my clothes due to the sweat. I did not though, but my underarm do sweat like big drops often and it was quite embarrassed sometimes. I suggest you talk to your doc about this.

Tammy B
New Member


Date Joined May 2007
Total Posts : 18
   Posted 6/2/2007 6:11 PM (GMT -6)   
I have heard that the prednisone can cause this, but, this has been going for yrs. -- the prednisone is probably just making it worse -- another fantastic side effect, but, it could always be worse. Thanks for the input.
dx: fibromyalgia 2006; uctd/probable lupus 2007; hypothyroidism
 
rx:  Prednisone 40 mg./day; plaquenil 400 mg./day; levothyroxine .025 mg./day; sertaline 100 mg/day; allegra d; caltrate plus d 600 mg. 3x/day; multi-vitamin


hippimom2
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Date Joined Jul 2005
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   Posted 6/2/2007 6:34 PM (GMT -6)   
Tammy, I had a terrible time with night sweats when I first developed lupus symptoms. Taking plaquenil actually helped to decrease mine though and make things more bearable. Now that I'm on prednisone I know I sweat a lot more - it drives me crazy. I walk around with the back of my hair by neck wet almost all the time from sweat. Will you be tapering your prednisone? Hopefully if you can get to a lower dose you will sweat a little less.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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Lynnwood
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Date Joined May 2005
Total Posts : 5410
   Posted 6/2/2007 7:12 PM (GMT -6)   
Hum. I had night sweats (even changing sheets!) for years before dx, and it was the prednisone that stopped them! That seems to be the opposite of what the others are saying.

In any case, I still get them from time to time but can usually track them with some sort of stress or flare.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
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Tammy B
New Member


Date Joined May 2007
Total Posts : 18
   Posted 6/2/2007 7:55 PM (GMT -6)   
Hippimom2 and lynnwood~ Thanks for the info. I do at times have to change the sheets, and notice that the sweats are worse just before my cycle -- so yes, it probably is hormonal, but, I think that the meds have something to do with it also. I am currently taking 40 mg. of prednisone, tapering to 30 mg. next week for 2 wks., to 20 mg. for 2 wks, then to 15 mg until I see rheum. at end of july. So, possibly decreasing the prednisone, while staying on the plaquenil may help. Thanks again for the useful info.

Tammy
dx: fibromyalgia 2006; uctd/probable lupus 2007; hypothyroidism
 
rx:  Prednisone 40 mg./day; plaquenil 400 mg./day; levothyroxine .025 mg./day; sertaline 100 mg/day; allegra d; caltrate plus d 600 mg. 3x/day; multi-vitamin


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2515
   Posted 6/3/2007 9:02 AM (GMT -6)   
Tammy,

Night sweats from menopause and sweats I get from prednisone are totally different to me. While our bodies are all affected differently, as evidenced by Lynwood who got rid of her sweats by taking prednisone!!!, mine have a definite pattern.

While going through menopause, my sweats would come out of nowhere, day or night, in hot or cold weather, and without notice. They would start from the inside as though a fire had been lit in all my cells, and then I would start to sweat profusely. I would get so hot that I'd feel I was going to be sick, and would have to sit down and hold a cold wet towel on the back of my neck. After a while they would go away almost as suddenly as they started. At night they would come on in my sleep and I would awaken to wet night clothes and sheets.

The sweats I get from prednisone are more temperature related. As long as I stay inside and keep the house or car as cold as an icebox, I don't perspire. But let it get just a little bit warm, or if I go outside, or anywhere else that feels stuffy, I start to sweat and just like in menopause, get so hot that I think I'll be sick or faint. The minute I go somewhere cold, however, the sweating goes away. Taking a cool shower helps. I often wake up in the morning sweating, and I don't know why that happens. But thankfully, it isn't as bad as it was during menopause. The minute I start rushing around, I start sweating, and like Hippi, I walk around with the back of my hair wet most of the time. I keep my house cool and keep a fan blowing on me and that saves my life. I've gained a lot of weight since I started taking prednisone, and I think being overweight make me sweat more too.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

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Emily B
New Member


Date Joined Jun 2007
Total Posts : 7
   Posted 6/3/2007 10:48 AM (GMT -6)   
Tammy,

I have been having night sweats on and off for the last couple of months. I've been in a flare for almost 6 months now so I don't know if it's related. I will wake up and the back of my neck and upper front of my neck near the clavicle are all wet! It had happened to me a couple of years ago and I thought it was due to the Zoloft I was taking back then. I haven't been dx as one disease yet, the rheumy has only told me I have fibro and UCTD. I am only 30 so I was freaking out about the night sweats because I wasn't having a fever and thought it might be cancer. But, I've been having swollen glands and frequent infections lately so I haven't got a clue what is causing it. FYI- I am not on pred or plaq as many others are so mine isn't med related. Maybe it's just another individual manifestation of these CTDs we all have. It sounds like they can pretty much cause anything. I hope decreasing your Pred will help.

~Emily
Emily B. 30 years old, IBS dx 1996, allergies since 1997, fibro dx 2002, HBP dx 2006, UCTD dx 2007, current meds: hydrochlorothiazide 12.5 mg, singulair 10mg, zyrtec 10mg, flonase, amitryptiline 25 mg


Apachegirl
New Member


Date Joined Feb 2012
Total Posts : 1
   Posted 2/5/2012 12:19 AM (GMT -6)   
My husband has had lupus for the past 12 years and just recently I noticed he has been having night sweats. They are pretty bad cause he soaks up the sheets and he is wearing a shirt. Is there anything we can do he is having an MRI on Wednesday, is there something specific we need to ask the doc.
thanks,
Apachegirl

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5410
   Posted 2/5/2012 12:54 PM (GMT -6)   
Just tell the Dr the symptoms and he should know what to ask *you*!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

luk4dgudnit
Regular Member


Date Joined Sep 2011
Total Posts : 26
   Posted 2/6/2012 10:35 PM (GMT -6)   
Hello all,

I believe prednisone has something to do with nightsweats. When I'm on prednisone nightsweats occur. The period of time I'm not on prednisone I don't notice the sweating. It agravates the family because I sleep with a fan/air year round to help with the frustration.
luv4myself&people

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5410
   Posted 2/7/2012 8:20 AM (GMT -6)   
My night sweats occur when I am having a slight lupus flare - doesn't matter if I am taking prednisone or not.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 11615
   Posted 2/7/2012 4:40 PM (GMT -6)   
Same here. Last night I wanted the air conditioner on and it was 68 degrees in the house.
Joy
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