Question about anxiety and meds

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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/3/2007 7:32 AM (GMT -7)   
I wanted to ask those of you who take meds like xanax for anxiety, which doc you get those meds from.  Do you get them from your rheumy or your primary doc?  Does it really matter who you get them from?  I've been having a difficult time with anxiety lately, especially in the evenings, but also have some on and off throughout the day.  I'm not sure if it's because I've been on a little higher dose of prednisone or not - I'm back down to 10mg today and am supposed to be down to 7.5 again in a week. 
 
I hate turning to another pill, but feel like I need some help.  Since getting lupus my brain doesn't work the same way anymore and it's hard for me to use some relaxation techniques that I usually use.  Thanks for any help or info about this 
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 6/3/2007 7:46 AM (GMT -7)   
Hi Hippi, I hate to hear that you're having anxiety, but with what you have on your plate, you shouldn't be surprised.

I get my antidepressant from my primary doc. I use her as just that - the primary go-to-for everything doc. She refers me out to specialists who in turn send her their reports and lab work after I see them. That way there's one doctor who has my entire chart and medical history. She referred me to my rheumy whom I see monthly and we deal only with my autoimmune problems. I'm so fortunate to have a primary doc who views my other docs as a part of her team.

I understand what you mean about not being able to use some of the relaxation techniques that you usually use because lupus has messed up your brain. I was at a dinner last night and the people I was talking to must have thought I was a real dodo bird because in the middle of a sentence I just blanked out. My hubby was there and tried to cover for me, but it get's pretty weird.

I hope you get some relief from your anxiety. At least you know that's manageable with meds and I wouldn't be at all hesitant to add that to the arsenal of pills in your home pharmacy.

Take care Hippi. I hope you can have a relaxing, game-free Sunday and that you can stay inside and out of the sun. How's your rash, by the way?

Thinking of you,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 6/3/2007 8:16 AM (GMT -7)   
Hippimom,

Since I believe my evening anxiety & sleeplessness comes as a side effect of my prednisone, the rheumy is the first doctor I mentioned it to.

Consequently, he is the one who prescribed Xanax for the evening (to keep away the mind circles), as well as Trazadone as a sleep aid. My system is naturally ultra-sensitive around sleep, so I've need this help even when we started w/just 7 mg of Prednisone.

Does it really matter who you get anti-anxiety meds from? I think it does, because I don't really want my PCP to prescribe something to relieve symptoms from a med my rheumy is giving me. It seems to me the rheumy would be more up-to-date on the best "corrective" med to use. If I thought anxiety (or depression) was more situational or mental in its source, then I would be more likely to visit a PCP or a psychiatrist.

Since you & I have had similar responses to medications in the past, my bet would be that this anxiety is from the extra pred you are taking right now, and that a small dose of Xanax from the rheumy would fit you right up!

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

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mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 6/3/2007 11:16 AM (GMT -7)   
Hi Hippi,
   I was seeing my Internal Medicine doctor before my Rheumy so he was the one that started giving me anxiety meds. They both work together with my meds making sure my list is updated on each visit.
  Anxiety is rough! I take 1mg of Xanax at night, which helps alot, but I have been experiencing some anxiety during the day so on my next appt I'm going to talk to the doc about that. I hope you get some relief soon...((Hugs)). Hang in there and take care. Update us when you can. You will be in my thoughts and prayers.
                                                                     Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


misscali
Regular Member


Date Joined Feb 2007
Total Posts : 154
   Posted 6/3/2007 12:31 PM (GMT -7)   
hey!
at first i was taking lorazapam (ativan) for anxiety and because i had trouble falling asleep. It didnt seem to work very well for me so i asked my rheumy to prescribe me something else. My rheumy gave me a prescription for xanax, i take 1 mg a night (if i feel i need it). The prescription i have is for .5 mg 3 times a day (as needed), so if i do get anxiety during the day, which happens sometimes, then i can can have some relief.

ps-i have a question for you hippimom...you said you are on 10 mg of prednisone...i currently am on 9 mg but my face is STILL swollen! do you have moon face from prednisone too?? do you have any idea when it is supposed to go away? thanks :)

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/3/2007 1:16 PM (GMT -7)   
Thanks Pat, Lynnwood, Babs, and misscali. I think I'll probably see someone soon about this. I wish my pcp hadn't quit, but I have the name of two docs that I am going to check out. My rheumy is really hard to get into and I'm worried that I will need something before then. I'm like the rest of you and keep all my docs updated on everything that I am taking. Even though my anxiety had been the worst at night, I feel stressed out during the day and tense a lot - this may be the prednisone too, I don't know. It sounds like xanax is what most of you are on and that it works well. I've never tried any anti anxiety meds, but I think it's the one I'd like to try.

Misscali, yes I get the swollen face at 10mg - it was worse when I was at 15 mg though. It's not as bad when I am at 7.5, but still there a little. I've gained so much weight since prednisone that sometimes it's hard to tell if it's the weight or the prednisone, but I definitely notice that the higher my dose, the rounder my face. Isn't it lovely?  I think once a lot of people get down to 7 or 5mg or lower then the moon face isn't as bad, but each person is different.


Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 6/3/2007 3:17 PM (GMT -7)   
Hi Hippimom,
 
I SO know what you are going through with the anxiety.  I have it in a big, bad way.  I've been really good for about a week now, but the last 5 months have been the hardest of my life.  The anxiety is overwhelming sometimes. 
 
I'm on a Benzodiazapine.  Very addictive.  Make sure you ask your doctor what family of meds your pill is in.  Stay away from the benzo's.  They're mild tranquilizers.
 
I know how addictive they are because I'm on one!  Frisium, also called Clobazam.  I was given it when I started having simple partial seizures after my stroke in 2002.  I had no idea what I was taking, until this last December.  The drug stopped controlling my seizures, so my neuro told me to start tapering down on the drug so that I could be put on something else.  Well. I went from 40mg a day to 30mg a day in 2 weeks.  I went through withdrawal hell for two full months.  Coming down on the drug revealed a nasty anxiety disorder that I didn't know I had!  So we upped the med to 32.25mg and it just barely takes the edge off.  So I'm dealing with anxiety, and seizures at the moment.  Along with balancing my lupus and fibro and my business!  FUN TIMES!!
 
So make sure you know exactly what you are taking and just take enough to curb the anxiety.  With cognitive behaviour therapy and deep breathing exercises, your anxiety should improve.  The deep breathing really helps me.  Also, get all caffeine and sugar out of your diet.  Those contribute to the adrenal glands pumping out more cortisol and causing the anxiety to worsen.  You can email me any time if you want to talk about it more.  It's definitely hard to cope with isn't it. 
 
Blessings!
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/3/2007 5:56 PM (GMT -7)   
Thanks ginny. I may take you up on your offer to e-mail you about this. Thanks for all the information about some of these meds. I might call one of the family docs whose name I have and try to see him sometime this week - he's about a half hour closer to where I live than the other doc.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Meph
New Member


Date Joined Apr 2007
Total Posts : 19
   Posted 6/3/2007 7:56 PM (GMT -7)   

HippiMom,

I take Xanax for anxiety and to help sleep.  I take .5 to 1 mg/day, divided up in two or three doses.  I had to take much more when I was still on Prednisone.

I started Lexapro a few months back, and in addition to helping GREATLY with depression it has lessened my anxiety and I take less Xanax these days.

The Xanax and Lexapro are prescribed by a psychiatrist, whom I see in person every six months.

My PCP or rheumy probably would prescribe Xanax short-term if I asked, but since I have been taking it for years and also am taking the antidepressant, both drugs are supervised by the psychiatrist.

Benzodiazepenes can be addictive, but I do want to say that I've been on them at much higher doses years ago and did not have any psychological or physical problems when tapering and even discontinuing Xanax (under my doctor's supervision, of course).

I'm sorry to know that you are feeling stress and anxiety and hope you find relief soon.

Laura

 


UCTD, Pulmonary Vasculitis, Discoid Lupus, Asthma, Hypothyroidism, Sleep Apnea
Meds: CellCept, Plaquenil, Elidel, Levoxithyroxin, Bactrim, Lamictal, Lexapro, Xanax, Zonalon, Zyrtec, Rhinocort, Prilosec, Advair, Combivent, O2 as needed, CPAP


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 6/3/2007 8:16 PM (GMT -7)   
Hi Hippi, I'm sorry your are having problems. I do know what you mean about your brain not working the same. I can start trying to relax but it's like there is a wall or somthing. My mind can't focus like it used to. When my mind used to tell certain muscles to relax they did. Now they don't or won't stay relaxed. I take .5 mg. xanax 3 times a day. When I was really not well that amount didn't even work. The doctor told me to start doubling my antidepressants. I only take the smallest amount of effexor now. Anyway, I get mine from my PCP, but I have been on them since 2003 when i lived in arizona and had a different doctor.

I hope you get some help with your anxiety.
Love ya
carol
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.10.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


Leta
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Date Joined Aug 2005
Total Posts : 590
   Posted 6/3/2007 8:17 PM (GMT -7)   
Hi Hippiemom

I just wanted to give u a big hug. Man anxiety sucks. I get real anxious after I have been in the sun, and this can be from many hours after the sun to a few days. I keep a log of my sun exposure for referance along with the uv index. As before, the meds I am on make me more sun sensitive so in turn I get this other crap. I take an herb called Holy Basil to help with relaxation. I also take Valerian Root which is recognized as a good sleep/relaxation aid for Fibro. I hope you are able to get some rest. I know of some CD's with the subliminal messages on them, not that I am sure of the subliminal messages but the talk through meditation until the messages used to help with me sleeping as a teen during my flares. I know because I would fall asleep before the cd was over. I hope you feel better.

Leta
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescription 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/3/2007 8:23 PM (GMT -7)   
Hi Hippi:

I just wanted to send my well wishes to you. I'm sorry that you have to deal with anxiety on top of all that you're dealing with. I've not taken anything for anxiety, but I normally contact my Internist for all medications that aren't related directly to my lupus. Since I don't much care for my Rheumy, I try to only see him every 6 months or so.

As you know I'm getting my health care at a military hospital. My Rheumy is a high ranking officer and he oversees the internal med clinic. Plus my Internist always contacts him prior to making any drastic changes in my medications.

I hope that you'll be able to find a doctor that will get you something to help with your anxiety. Here's many prayers and positive energy for you and your family.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 6/4/2007 9:18 AM (GMT -7)   

Hi Hippi.  I'm really sorry about your anxiety.  I've been seeing a nurse practitioner, Alex, at my psychiatrist's office for about 3-4 years.  I also have had increased anxiety lately and Alex started me on Lamectil with Xanax PRN, two months ago.  I take Ambien each night, which is addictive, so I can't take Xanax daily.  The Lamectil is working well.  I also take Seroquel each night to stop the racing thoughts.  Seroquel is a psychotropic and in high doses (>600mg) is used to treat schizophrenia, but thank God the television doesn't yet talk to me personally and 200mg does fine.  My major depressive disorder has been relatively stable for about 2 years now with Prozac.  Like the rest of you, all of my docs keep current medication lists for me.  I could be wrong, but I think I'm one of the few on the forum who sees a psychiatrist.  My advice is for you to get your anxiety meds from the doc who can see you first, then let the others know.  Xanax is great for short term and works within hours.  I hope you get some good rest soon.  Love ya Sis!  


Dx: SLE, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 6/4/2007 1:43 PM (GMT -7)   
Hippi, Gosh, I'm sorry you are going through this... anxiety is the worse. I was seeing a Pdoc for my Xanax (now Klonopin) but that is all I was seeing him for so when I started seeing my Neurologist, he actually took over the medication management for me. I'm trying to wean off since I was taking Xanax XR long term which is why I got switched to Klonopin. I agree it can be very addictive. I always wanted off of them as soon as I started but they did help me get my life back on track as I did have major anxiety and panic problems. I'm finding that tapering off has not been as bad as I thought. Doing a slow taper but I'm excited to not have another med. But if I was completely off of them and if I had to go on them again to get the relief I got, I would do it in a heart beat. I think it will be better once I'm on a PRN schedule. You can ask your doc to try it on a PRN basis to see if its helping you.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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ocean1
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Date Joined Dec 2006
Total Posts : 707
   Posted 6/4/2007 3:12 PM (GMT -7)   

Sorry to hear about the anxiety.  As I've read the replies here I see a lot of us do experience the anxiety.  I was taking Xanax and it was abruptly stopped and then started into withdrawal symptoms and got put back on to taper off of it.  Am now past that and the anxiety is back with a vengence.  I hesitate to ask the doctor for anything as I have experienced the withdrawal of what I now have come to know are addictive drugs.  I can see both sides of taking versus not.  I was much calmer when on the Xanax and am now a lot more uptight and just downright moody.  I was getting the med from my old PCP and saw her assistant who is the one who stopped it abruptly.  So, I am now at a point where I want to feel calm but am investigating alternative solutions to it other than anti-depressants.  I hope you can find relief soon.

 


Diane (ocean1)
________________________________________
Soft tissue joint disorder 2007 (can't spell or pronounce the name), Lupus Sept. 2006, IBS 2004, Chronic Hives 2002.
Medications:  Allegra and Zantac; Xanax PRN; Lunesta and Ultram PRN.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/4/2007 10:09 PM (GMT -7)   
Thank you so much everyone. I'm going to call tomorrow because here I am up wide awake at midnight and I'm never up this late. I talked to hubby a bit about it yesterday and how I felt bad about thinking about taking another med. He was great about it and told me he didn't think there was anything wrong with it especially if I thought it would help. I secretly think he might like a little mellower me (like I used to be).

These are the days I miss my old pcp because I was so comfortable with her that I could have an honest conversation with her about this and i know she would be more than happy to work with me and help me.

Just a side note, I can't take any SSRI anti-d's because I have had horrible side effects to three that I was given a trial of, so unfortunately those aren't a possibility for me.

Thanks again for all of the info and for sharing your experiences.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 6/4/2007 11:49 PM (GMT -7)   
Hi Hippimom--
I take Klonopin and it is a benzodiapine and I like it much better than xanax, because xanax and valium had a tendency to make me depressed afterware and get a drug hangover. Klonopin has the added bonus of being commonly prescribed for restless leg, and it works quite well. Also, I find the nexxt day I have more energy for some reason. I am addicted, but I would be addicted to prozac, or imipramine, or neurontin or any other drug they gave me. I get mine from my primary care doc for restless leg and I just found it easiear to get refills from her. She also has me take extra sometimes as a muscle relaxant. I hope you get this sorted out soon.
Marji

"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek--I'm not a trekkie but this one was funny!


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 6/5/2007 1:34 AM (GMT -7)   
Hippi, in the midst of my brain fog I forgot that I had taken something for anxiety a few years ago - Topamax. It helped the anxiety, it helped me lose weight, but after a few months I couldn't remember ANYTHING. I asked my PCP about it (she hadn't prescribed it) and she said it's often called the Stupid Drug. I know it helps lots of folks, and it helped me, but the side effect of feeling and acting like I was in the stages of early dementia was more than I wanted to tolerate. In fact my doc told me that she had had a client who was a college prof and he had to stop teaching. When he went off the Topamax, he went right back to teaching.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 6/5/2007 9:27 PM (GMT -7)   
Hippi--

I'll jump in here for two reasons: #1 It might be time to see a psychiatrist for med management if you've tried 3 anti depressants and think that you can't take any, you could be wrong. There are many, many more out there. They all have different chemical formations that might do better with you. Also, if you feel the need for an anti anxiety med, they are the best qualified docs to prescribe these as well. I see a neurologist for my seizures that are a part of my hashimoto's encephalopathy disease (the neuro treats that as well), but the neuro insists that a psychiatrist prescribes for the depression and anxiety which are also a result of the encephalopathy (just as lupus can affect the CNS). He won't prescribe for those conditions because they aren't his areas of expertise.

The second reason I'll jump in is that one of the anticonvulsants I take is Topamax. It is also sometimes used to treat migraine headaches. I haven't heard of it being used to treat anxiety before. Fortunately, I don't experience the "stupid" side effects that some folks do. (I've heard it referred to as "dope-a-max!)But there's an example of how the same drug affects different people in different ways. Interestingly, the enceph. brought back my migraines on a daily basis--severely. The topamax didn't help them at all! We had to experiment and experiment until we found something to help control them. You just never know.

So IMHO I would ask even Josh's ped. rheumy if that's the dr. you respect most at this point about a p.doc for you to get some real help there for your mental/emotional health needs. It is just as important as the physical aspect of the disease if not more so.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/6/2007 7:10 AM (GMT -7)   
Thanks for all the feedback and ideas. emmi, I've thought about seeing a psychiatrist - I know the therapist I used to see knows of some good ones and I trust his judgement. It's weird because I know this is something I need to do something about but I'm at a standstill right now because I don't know which doc to see. Ultimately it sounds like which ever doc everyone here decided to use, it ended up working out alright.

I'm really scared to try any other anti d's that are in the SSRI family because I had some of the dangerous and rare side effects and my doc said I had something (I can't remember the name of it) like serotonin syndrome which is potentially lethal. I got very physically ill on them and almost landed in the hospital. I really wish I could take them because I have heard how other people here have benefitted from them.

I've heard different things about Topomax, but it would be great if there was something that would help both my headaches and my anxiety all in one. I really am going to call today and try to get an appointment scheduled (somewhere).
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 6/6/2007 7:35 AM (GMT -7)   
(((Hippi)))
   I hope you get some relief soon. Glad you are calling the doc today. Let us know how it goes. Take care and hang in there. You are in my thoughts and prayers.
                                                                   Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Leta
Veteran Member


Date Joined Aug 2005
Total Posts : 590
   Posted 6/6/2007 11:02 AM (GMT -7)   
Hi Hippie,

I am on Baclofen for nerve pain, ms type symptoms from the lupus, and it helps with relaxation as well combined with my Holy Basil. I cannot say much but to google the Holy Basil and it is made by New chapter. Hope all goes well for you.

Leta :-)
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescription 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/6/2007 11:03 AM (GMT -7)   
I did it!!! I called one of the docs about 30 minutes from here that one of my friends sees. She said he has helped her with her headaches and her anxiety. I see him Friday morning. I'm keeping my fingers crossed, I always get nervous when I see a new doc because you never know how it will go.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 6/6/2007 11:27 AM (GMT -7)   
OK!!! I know how hard it is to make those phone calls sometimes. It can be a huge deal....good luck w/Dr!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 6/6/2007 11:49 AM (GMT -7)   
Good luck hippi... will be thinking of you. It's good that you got a referral from a trusted friend, who has been helped by the doctor. That always makes the anxiety of the first visit much better. Please let us know how it goes.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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