Lupus and Celiac Disease

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PattyLatty
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Date Joined Mar 2006
Total Posts : 2563
   Posted 6/4/2007 10:23 AM (GMT -7)   
Do any of you follow a gluten free diet? I've been doing some reading about Celiac Disease and found this information on an NIH site about Celiac:

"Diseases Linked to Celiac Disease

People with celiac disease tend to have other autoimmune diseases. The connection between celiac disease and these diseases may be genetic. These diseases include

thyroid disease
systemic lupus erythematosus
type 1 diabetes
liver disease
collagen vascular disease
rheumatoid arthritis
Sjögren’s syndrome"

The idea of a gluten free diet sounds dreadful, but if it would help me determine what's causing my lupus, RA and Sjogren's, it would be a miracle. If any of you have had success with this, please let me know and share your experience with me.

Thanks,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 6/4/2007 10:59 AM (GMT -7)   
Hi Pat,
  I think Stacie(jmom) has this and follows the gluten free diet. Hopefully, she will see this soon and help you out. Good luck and let us know how it goes. You will be in my thoughts and prayers.
                                                     ((Hugs)) Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


elcamino
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Date Joined Sep 2005
Total Posts : 1740
   Posted 6/4/2007 12:54 PM (GMT -7)   

Hi Pat,

I'm being tested for celiac right now, but I've yet to follow a completely gluten-free diet (it's harder than it sounds).  From what I understand, it's not that celiac disease (or gluten) causes Lupus, just that it is often found in association with lupus, ra, etc....  Celiac disease is just another AI disease after all.  However, I did read that once people go gluten-free, some find some arthritis benefits because arthritis can also be a symptom of celiac in addition to lupus and ra.

I don't see what it can hurt if you just wanted to try going gluten-free to see how you feel.  Don't do it, though, before you are tested or you can end up with a false negative.

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 6/4/2007 5:36 PM (GMT -7)   
Hi Pat,

Yes I have Celiac, diagnosed in Sept 2003. My story is veryyyyyyy long so I will give you the short version tongue and feel free to ask me more questions!

My problems seem to literally begin overnight, I woke one morning not feeling well and it stayed continuous for a VERY long time. After losing 40lbs in 2 months, feeling sick every single day, going through test after test for over a year with no answers I learned of Celiac. Since all of my other test were negative or not enough to make a dx I chose to get tested through a private lab called www.enterolab.com . With this test you can be GF up to 6 months and still get accurate results. With the other tests at the docs office (blood or biopsy) you must remain on a regular diet. My results were positive and I immediately started the GF (gluten free) diet and could tell a difference right away, my abdominal pain was gone. I continued to have GI probs (mainly diarrhea) but later learned that was due to Lupus.

Here is a great site with a lot of information about Celiac and other "related A-I diseases" www.celiac.com . Celiac doesn't cause lupus but as you know once we get one A-I disease we are more likely to get others too (lucky us, huh?). I can't say that I can tell a difference in my lupus symptoms being on a GF diet but I have heard some people with Lupus eliminating gluten and seeing an improvement in joint pain, etc.

A gluten free diet is not really as bad as it sounds. Yes you have to read every single label until you become familiar with the products you buy all the time (of course I still look at labels no matter how many times I've bought the product). But it is a MUCH healthier way of eating, and for me no amount of pain is worth eating gluten. I can still eat regular things like taco's, spaghetti, meat, veggies, fruit, etc. and I have found GF sweets such as cake, brownies, bagels, bread, etc. There are a lot of gluten free products out there that are NASTY so it's basically a trial and error kind of thing, depending on your taste. I can give you a list of things my daughter and I like the best.

This may be WAY more info than you were looking for... I hope you find out something soon.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


PattyLatty
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Date Joined Mar 2006
Total Posts : 2563
   Posted 6/4/2007 6:54 PM (GMT -7)   
Thanks Babs, Elcamino, and Stacie for your responses. Stacie, that wasn't more info than I was looking for! I don't have any unusual or sudden symptoms, and I've sure not lost any unexpected weight (though I wish I could!) but just thought this might be one more avenue to try. I do agree that it appears to be a real healthy way of eating. I see my rheumy tomorrow and am curious to get her take on this. I'll keep you up to date.

Stacie, I'm glad you found out what was wrong and that the gluten-free diet is working for you. I can't imagine how worried you must have been to have lost so much weight so fast.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 6/5/2007 4:51 PM (GMT -7)   
You are welcome Pat, now don't get me wrong there are a lot of people out there that have no weight loss but a ton of GI problems with Celiac, I think that is another thing that is overlooked by doctors. They are expecting a sickly person to walk thru their door and as we all know that sometimes just doesn't happen.

I am interested in knowing what your rheumy has to say about a gluten free diet, let me know.

There for a while I was very worried about my health and my doctors were too. Everything I ate went right thru me and even after going GF and after being dx I continued to loose weight, finally after going on Imuran I started doing better, I could tell a difference right away.

Let me know if you have any more questions! Hugs
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)


PattyLatty
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Date Joined Mar 2006
Total Posts : 2563
   Posted 6/5/2007 5:11 PM (GMT -7)   
Stacie, I just got home from the appointment with my rheumy and she said the same thing you just did - that people with Celiac disease aren't necessarily thin or losing weight. She didn't act concerned in my case, but did say that she'd order a blood test if I wanted her to.

She did tell me that my creatine and bun levels are both high and she suspects that it's because I'm taking a high dose of CellCept. I'm to decrease my CellCept by 50%. That just kills me because I credit the CellCept with the fact that I'm feeling better. She said some people just can't take it. I guess I'd rather my creatine and bun be high because of a med rather than because of the lupus. I'll find our more in three weeks when I have more blood work done.

Thanks for the info about celiac disease. I'm so glad you're feeling better. It shows that it pays to do your research! I'll let you know what I find out.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 6/5/2007 5:33 PM (GMT -7)   
Pat, do you have a lot of GI problems? Celiac can also effect the skin and vitamin deficiencies. Now remember, don't rule things out just because they don't show up in blood or biopsies. If you get all the test results back and you aren't satisfied then try the gluten free diet for a couple of weeks and see how you feel. If you are going to do this you will need to make sure you are 100% GF during this time. Let me know and I can give you some good links that have lists of foods that are gluten free.

I hope the decrease in CellCept helps your blood levels and doesn't affect the way you have been feeling! I know when I had the kidney scare earlier this year I was a nervous wreck because sometimes NSAIDS can affect your kidney's and I would have to stop taking them. Now, I know how my body reacts to changes in my meds and I was scared of it throwing me into a huge flare but thankfully I didn't have to go down that road!

Let us know what the tests show! Hugs and love to you!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Magnesium Citrate and magic mouthwash (as needed for mouthsores)


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/5/2007 5:43 PM (GMT -7)   
Pat, I'm sorry you have to cut back on the cellcept and I hope it doesn't have a bad effect on the way you've been feeling. Hopefully your labs will look better when you go back and repeat them.

All this info about Celiac is interesting. I honestly don't know how people who have to be on a gluten free diet do it - I would think it would be hard.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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karasmommy
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Date Joined Mar 2005
Total Posts : 589
   Posted 6/6/2007 7:50 AM (GMT -7)   

I have Lupus, Crohn's and Gluten Intorlerance (we thought celiac but thankfully it is not).  Going off gluten has done wonders for not only the Crohn's but also for the Lupus flares and joint pain.

It is not an easy diet to follow when starting out but once you get the hang of making your own things it is pretty easy.  I also tend to follow a Low-carb diet as it is, so I do that when eating out also.

 


Ellen
Diagnosed with Lupus - April 2002
Diagnosed with Crohn's Disease - January 2003 (problems since early 1990)
Fibromyalgia 2005 
Meds:  Lunesta 2mg, Flexeril 10mg as needed, Immuran 100mg, Plaquenil 200mg, Probiotics, Multi-vitamin, fish oil
 


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 6/6/2007 7:56 AM (GMT -7)   
I have noticed that more and more restaurants are featuring GF menus as part of their regular menus which is wonderful. I hope many more follow. I can't imagine how difficult it must be to follow it, especially when you are out to eat.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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PattyLatty
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Date Joined Mar 2006
Total Posts : 2563
   Posted 6/6/2007 10:14 AM (GMT -7)   
Stacie, I didn't look into Celiac disease or a gluten free diet because I've had symptoms that suggest that I might have it, but rather because I was interested to understand the relationship, if any, between Celiac's disease and lupus, RA and sjogren's. I think you'll all agree that it's worth looking into anything and everything if there's even the remote possibility that something could be a contributor to the way we feel. Did stopping your NSAID's help with your lab results? What a relief that it didn't send you into a major flare. But what are you taking now?

Ellen, it's stories like yours that encourages me to keep looking for answers. Interesting what you say about restaurants Des, because just Monday my hubby took me to a restaurant that includes guten free selections, and in fact the woman who works there as programs director (there's a restaurant, fitness club, spa, etc. that all focus on wellness) has Celiac's disease so we had a long conversation. She's tiny because of a sudden weight loss due to her disease.

This whole discussion does bring home how important our diets are and how the food we eat impact our health.

Hippi, I agree with you that it sounds like a hard diet to follow, especially when eating in restaurants. But oh, to feel better! I'm feeling bad today - achey and tired and my joints are hurting more than ususal. I can't believe it's because I cut my cellcept dose in half last night and this morning. I did have a real busy day yesterday and I hope that's what it was. I skipped my sock class this morning and will stay home and rest and knit here instead. I hope you're having a good day today.

And I hope you are all feeling well! Thanks for your comments and concern.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/6/2007 12:00 PM (GMT -7)   
Oh Pat, I'm sorry to hear that things aren't so great today after having a long stretch of good days. Hopefully some rest today will get you feeling better - I'm sorry you couldn't go to your class. Rest, rest, rest and then rest some more.

Take care of yourself.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



jhmom
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Date Joined Oct 2004
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   Posted 6/6/2007 3:50 PM (GMT -7)   
Des, there are a lot of places that offer a GF menu but it's been my experience that some of them are not very knowledgeable about it. I think some places are really trying hard but I have to scrutinize everything when I eat out. So I don't eat out that much, I feel the safest at Chick-fil-a and only at 2 locations near me, I've already ruled out one because they made me sick with cross contamination issues. My local Outback tries really hard but can't seem to get it right and of course I am the one that has to pay for their mistake.

Pat, yes I've heard people with lupus eating GF and how it helps with their joint pain, etc I hope it helps with your symptoms too. I personally don't see an improvement of course I've been GF since 2003 and there is no way I would eat normal food again to experiment, so maybe it helps more than I know. With my kidney scare I didn't have to stop my NSAIDS, the doctor had me redo the 24 hr urine test and it came back normal (had to get my volume up if you know what I mean). I am now back on my original NSAID (Piroxicam) after trying 3 others which threw me into a flare and did nothing for my joint pain. I will probably have another 24 hr test soon as my kidney ultrasound showed some fullness in one of my kidney's and they are both smaller than normal. My doctor's are trying to keep a close eye on things which is good because kidney disease is very silent!

Hugs and love to you! I hope you feel better soon!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Magnesium Citrate and magic mouthwash (as needed for mouthsores)


Barbara Lee
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Date Joined Sep 2003
Total Posts : 2826
   Posted 6/6/2007 6:27 PM (GMT -7)   
Hi Pat:

I just wanted to say I'm sorry you're not feeling well. I was saddened to hear that you've got to cut your Cellcept by 50%. I hope that the change is mild and you don't have much pain with it. You're right our diets sure do make a difference in how we feel. Wishing you the best and many (((((hugs))))).

Love,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


PattyLatty
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Date Joined Mar 2006
Total Posts : 2563
   Posted 6/10/2007 12:29 PM (GMT -7)   
Judy, thanks for the information and for the suggestion about the book. I think you may be right! I hope you found the info you were seeking for your friend. It takes a pretty good friend to do research like you're doing. Let us know how we can help.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


cured4real?
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Date Joined Dec 2005
Total Posts : 1942
   Posted 6/11/2007 12:40 PM (GMT -7)   
Hi Pat--
Due to diabetes, I'm on a very low carb diet which you might as well call gluten free. I feel much better on this diet and I was diagnosed with non-alcoholic fatty liver disease, which runs in my family and has killed several family members due to undiagnosed cirrhosis and related problems prematurely. My hepatologist said I have a glycogen storage problem which causes me to retain fat in my liver and I take metformin for it--it is a form of prediabetes--and metformin helps to get the fat out of my liver and to metabolize the sugars better. He recommended atkins or south beach for me and they helped tremendously. I fall off the wagon occasionally, but found that sugars affect me far less than gluten products. I think there is definitely something to this, finding gluten free vitamins and pills however, might be a difficult thing to do.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


PattyLatty
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Date Joined Mar 2006
Total Posts : 2563
   Posted 6/11/2007 12:54 PM (GMT -7)   
Marji, you really have some health struggles that must be difficult to control, in addition to your autoimmune diseases. I'm glad that a gluten free or low carb diet helps you. I've been working hard to eat more fresh fruits and veggies and to cut out gluten for a while, but never would have thought about vitamins and pills having gluten. I wonder why we don't all to to med school just to learn all there is to know about our diseases. It sometimes astounds to me realize how little I really do know about them.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 6/11/2007 4:49 PM (GMT -7)   
Being gluten free goes a lot deeper than looking for "wheat or flour", some items can be wheat free but not gluten free. Remember "gluten" is a protein found in wheat, rye, barley and oats. It also is found it items such as: malt flavoring, Teriyaki Sauce, soy sauce, sauce mixes, etc.

Click on this link to view ingredients that are forbidden on a GF diet:
www.celiac.com/st_prod.html?p_prodid=185&p_catid=12&sid=91hH9H1kL2qK6Fr-48107416993.cc

I know of one vitamin that is gluten free, it's called "Natures Made". Just look at the ingredients on the bottle, if it's GF most likely they will list it. Companies are now required to list food allergies info (milk, soy, gluten,etc).
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Magnesium Citrate and magic mouthwash (as needed for mouthsores)


PattyLatty
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Date Joined Mar 2006
Total Posts : 2563
   Posted 6/11/2007 5:09 PM (GMT -7)   
Thanks Stacie!
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 9/27/2008 9:53 AM (GMT -7)   
Since I first posted this topic, as many of your know, I've gone on a gluten-free diet and within a week noticed a remarkable difference in the way I felt. I've been tested for Celiac, and the results were negative, which tells me that I have an sensitivity or intolerance to gluten, but not to the extent that someone with Celiac would. The diet has not been difficult and I've been known to cheat without too many ill effects. The more I read, and the more people I talk to, the more I'm becomming convinced that there could be a relationship between fod allergies and AI diseases. I came across the following post in another forum and wanted to share it with you. I haven't read the book yet, but I'm going to look for it.

"Please consider reading a book called “Dangerous Grains”. It points out how so many many times other disorders and diseases seem random and doctors poke around and try to find a cure or reason for what ails you…but the underlying common denominator seems to be gluten – and there are different levels “intolerance”. There is celiac disease, and there is gluten sensitivity and intolerance all the way to allergy…"

I'm not suggesting that everyone with AI diseases has a gluten sensitivity, but for me it was worth giving up wheat for one week to find out if it could be making me feel worse. It didn't cure me, nor did it take away my pain or fatigue, my two worst symptoms, but the gluten-free diet decreased my joint pain and increased my energy level remarkably. If I harp on this, it's only because if it would help one of you, it would be worth it.

I finally gave in to my doctors' (including my orthopedist's) recommendations that I try Celebrex for inflammation, and it has also worked miracles. I was worried that it would upset my stomach, but it hasn't. It has paid in spade to keep trying a different combination of drugs and diet.

I'm moving on Monday and I need all the energy I can get! Have a great weekend.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


moonjazz
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/15/2009 3:24 PM (GMT -7)   
I just stumbled onto this site trying to find out if a GF diet would help lupus...actually I was hoping maybe it's celiac instead of lupus. I enjoyed reading the blogs and am encouraged to eliminate gluten from my diet. I was diagnosed three years ago, but for the past two years I've been working as extra help and haven't had insurance. Now, I've been laid off from that and living on unemployment, so expensive meds aren't an option for me. Thus my quest for a nutritional treatment. Pat, thanks for your latest info, and thanks to all of the others for sharing their stories.

Moonj

Lupus, sjogren's, fibro

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/15/2009 7:11 PM (GMT -7)   
Hi Moonjazz!!

Welcome to the forum! I hope you will start a new topic and introduce yourself. Most members won't see your first post here in this topic (they may not peek at it unless they have celiac).

Glad you found us!! Its a really support group here.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


FW
Regular Member


Date Joined May 2007
Total Posts : 448
   Posted 5/15/2009 7:18 PM (GMT -7)   
Just saw this thread! One thing to watch - generic meds or vitamins. I'd eliminated everything from my diet and was still having problems. Turns out there was barley in my daily vitamins. It's hard to follow the diet at first but you get used to it. Hope you are feeling better!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


jojo711
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 5/15/2009 7:55 PM (GMT -7)   

for anyone that does gluten free- i work at starbucks and we have a gluten free valencia orance and almond pastry now. We give it to u in the package so as for it not to be contaminated with anything else. its yummy!!

joan


dx sle dec 2007, meds-calcium 1.25g 2xday-prednisone 20mg-plaquenil200m 2xday-pepcid 40mg-asprin 81mg-cellcept 500mg 2xday-tramadol 50mg as needed- ambien 10mg- lopressor 25mg 2xday- paxil-20mg

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