UPDATE FROM NEW PCP VISIT

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ocean1
Veteran Member


Date Joined Dec 2006
Total Posts : 707
   Posted 6/4/2007 3:30 PM (GMT -7)   
Hi everyone.  This is the first I've been able to get in here in a while as work is just going horrible and I've been working extra hours and by the time I'm done with a 10 hour work day all I've been doing is shutting down both work computer and laptop and going to bed feeling horrible.
 
I went to the new PCP last Friday and I do like her, however, not much accomplished at all.  She took my history and I had taken copies of all my labs and tests, etc. with me and gave them to her.  Told her I hated my present rheumy and she looked up my insurance and called my insurance company and was told his is the only group in my plan so I am stuck with him.  I asked her if she could kind of take control of the lupus issues so I didn't have to see the rheumy again and she is the kind of doc who is all for "specialists" and thinks that since the rheumy "specializes in lupus" (I laughed out loud when she said that) that I should continue with him.  I told her about the pain issues and wanting to get it under control and about the xanax being cut off and she is not a kind of doctor who likes prescribing pain meds unless she is sure of what is causing the pain.  So, I did NOT get any pain meds from her.  She said if the pain is related to lupus then the rheumy is the one to prescribe the pain meds. 
 
I am back to square one again.  The rheumy sent my old doctor a letter last week which stated "tested positive for lupus but not active at this time".  I wanted to scream when I heard that.  What the heck is going on?  First I have lupus and now I don't.  No wonder I can't find anyone who will listen.  Maybe the pain is all in my head and the ANA of 1:1280 is just in my head and it raised when they drew the blood cause I wanted it to be positive.  We cannot physically alter a blood level just by thinking it.
 
And to top everything off, my entire family got together yesterday to celebrate my Dad's birthday and everyone could see that I just wasn't joining in (Mom says are you just gonna sit inside while the rest of us are outside).  I had to stay inside as it was just too sunny and hot for me to go out.  So, I told Mom that I was staying inside.  My family can't physically see that I am sick so they just don't get it.  My younger sister and her husband were downright rude and sarcastic to me.  I know my Mom and Dad know what is going on and they are there for me but I still don't think they "comprehend" the seriousness of lupus.
 
Okay, now that I've vented I feel better emotionally anyway.  Now gonna see if I can figure out where to turn for some help with the pain.  I'm seriously looking into the pain center at the hospital where I work and just putting the visit on my charge card and somehow will pay it off eventually (since I can't get referrals from any of my docs I have to pay).
 
And I'm not even wanting to take pain meds like all day every day, I just want them for days when it is 8 out of 10 on the pain scale, and it would be a little anxiety relief as well to know that I have some on hand when I need it.
 
Thanks for listening.
Diane (ocean1)
________________________________________
Soft tissue joint disorder 2007 (can't spell or pronounce the name), Lupus Sept. 2006, IBS 2004, Chronic Hives 2002.
Medications:  Allegra and Zantac; Xanax PRN; Lunesta and Ultram PRN.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 6/4/2007 3:47 PM (GMT -7)   
Diane,
  I'm sorry to hear your appt with the new PCP was a flop. Since your rheumy is the only one in your insurance plan and he's not helping you, have you checked to see if there's a good Internal Medicine doctor in the plan that will help you get a referral to another rheumy. Just an idea thought I'd throw in... :-) . I know you need pain relief now....((Hugs)).
  I hope you get some relief soon. Hang in there and take care. Keep us updated. You will be in my thoughts and prayers.
                                                                   Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 6/4/2007 3:53 PM (GMT -7)   
Diane, you must be so disappointed, not to mention frustrated about your appointment on Friday. This whole process, not to mention many doctors, can be so infuriating. I hope you find someone real soon who can help you get relief from your pain. I second Babs' request that you keep us updated.

(((((Hugs)))))

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


ocean1
Veteran Member


Date Joined Dec 2006
Total Posts : 707
   Posted 6/4/2007 3:53 PM (GMT -7)   

Hi Babs.

Thanks for you the thoughts.

It was a new Internal Medicine doctor I went to.  I have placed a call to my insurance company so I can talk to one of the nurses they have as to where I can go from here cause I am tired of trying to hunt down docs and not getting referrals and meds that I obviously need.  I am hoping the insurance company nurse will maybe have a new idea as to where I can go from here.

 


Diane (ocean1)
________________________________________
Soft tissue joint disorder 2007 (can't spell or pronounce the name), Lupus Sept. 2006, IBS 2004, Chronic Hives 2002.
Medications:  Allegra and Zantac; Xanax PRN; Lunesta and Ultram PRN.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 6/4/2007 4:19 PM (GMT -7)   
Oh wow Diane,
   I'm sorry, I thought most Internal Medicine docs would treat pain. I guess they are all different. My rheumy prefers that my internal med doc give me pain relief and anxiety relief.
  I hope your insurance company will come through for you soon. Sending postive thoughts and prayers your way.
                                                                     Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/4/2007 10:13 PM (GMT -7)   
Diane, I'm sorry that you really didn't get anywhere with the new doc - how frustrating when they pass the buck, especially when it's clear your rheumy doesn't want to prescribe pain meds because he somehow thinks your pain isn't related to your lupus. I can sure relate to the anxiety of worrying about being in pain and not having anything for relief - it's not a good feeling.

Hang in there and don't give up.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 6/5/2007 8:57 AM (GMT -7)   

Hi Diane.  I'm sorry things didn't go well with the new PCP.  Finding a doc who treats your symptoms can be so frustrating especially when you have such a high ANA titer.  I can't remember if you've been on plaquenil or one of the chemo drugs, but if you haven't I hope one of the docs starts effective treatment soon. ((Hugs))


Dx: SLE, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


CityGirl
Regular Member


Date Joined Dec 2006
Total Posts : 239
   Posted 6/5/2007 12:53 PM (GMT -7)   
I am sorry your appt. didnt go as well as you had hoped.  Have you looked into the possibility of going out of network with your insurance plan?  I know with our plan we are welcome to go out of network if we so choose but the co-pay rises from 10.00 to 50.00.  Might be something to check out with your carrier so you can expand your options with care.

emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 6/5/2007 9:39 PM (GMT -7)   
Diane,

CityGirl has a great idea. Also, if you are not on any prescription drugs from your rheumy one to ask him/her about would be plaquenil. It is not a pain reliever per se, but it does tend to lower inflamation and help somewhat with fatigue. Also, do you use any OTC anti-inflamatories? Aleve? Motrin? Ibuprofin?

Let us know how things go. Good Luck!

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

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