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dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 6/7/2007 8:30 PM (GMT -7)   
Well we got our first confirmed dead bird found not too far from where I live as confirmation that West Nile has arrived this year. This kind of stuff is really scary and I'm wondering if its even more dangerous for us. If somehow we were infected, would it be harder for us to get better and does it put us at more danger? I am usually very cautious about being careful not to go out at the "mosquito hours" but its virtually impossible to avoid any kind of mosquito bite. I already got one bite on my foot and that was from one that flew in house. And if you were infected, how would you know since the symptoms are similar to being in a flare?
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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elcamino
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Date Joined Sep 2005
Total Posts : 1744
   Posted 6/8/2007 4:31 AM (GMT -7)   

Hi Des,

I don't have an answer for you about West Nile, but for those of us taking plaquenil, at least we probably won't get malaria :)  You are right that for those of us who are taking any immunosuppressant drugs like mtx, perhaps we are more susceptible to weird things like West Nile virus.  For me, personally, though--I think the risk is so minimal that it's not a major issue with me.  I'm more concerned about the regular flu, especially since I didn't get a flu shot this year.

 

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 6/8/2007 8:58 AM (GMT -7)   
Hi Des.  Go to www.cdc.gov look under diseases, then the alphabetic index under W.  Search a bit there and you'll find everything West Nile.  Personally, I'm not concerned because the chance of getting it is so slim, but I did briefly look at the site and it states persons who spend lots of time outdoors gardening and such have the greatest risk of contracting West Nile.

Dx: SLE diagnosed in 2005, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/8/2007 11:40 AM (GMT -7)   
Des, I worry about West Nile too. I'm just assuming it would be more dangerous for us to get it than the average person, because I'm not sure how well our bodies could fight it. I live in Iowa and we've had quite a few cases of West Nile and the mosquitoes are really bad this year. We usually have several deaths a year in Iowa due to it and quite a few people who get ill with it. I've been using some insect repellent and it helps, but I still get bitten. I tell myself what Donna said, that I most likely won't get it, but it's still somewhat of a worry.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 6/8/2007 11:54 AM (GMT -7)   
Thank you guys... I thought that I might be sounding like a basket case about this. I never know if my increased anxiety blows things out of proportion, I'm sure it does though just a little. When I read what the symptoms were from being infected, I thought, wow that sounds like a Lupus flare. I don't take immunosuppressants so I'm not opening up myself from infection. Thanks everyone for the insights... I just got nervous about it when I heard it on the news last night.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/8/2007 3:52 PM (GMT -7)   
Hi Des--
In 2000, I lived in a West Nile prone area and had horses and lots of mosquitos. I got meningitis, ran a high fever, stiff neck (couldn't touch chin to chest stiffness) pain in back of neck, and severe, severe headache. It struck suddenly and resolved in two to three weeks with antibiotics. I was told by my supposedly great internist that I probably had West Nile, but he did not bother to test me, only treated me for it. Several horses in the area had died from it and mine were vaccinated. If I did have it, it wasn't too too bad, like meningitis, wasn't hospitalized, did vicodin and antibiotics, but needed to be out from work for two to three weeks because I was that sick. Not to minimalize it, but I live in an area where we are at risk and have been for a while. It is under reported and under diagnosed, but seems to be easily treated with common antibiotics, which is why so many people don't get tested. We hadn't had anyone in our area die from it, but the headache and meningitis symptoms I got were bad enough to get into the doc quick.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 6/8/2007 6:36 PM (GMT -7)   
Wow Marji, I'm sorry you got so sick from it, I couldn't imagine. I'm glad though that you were able to recover quickly with the treatment. Thats reassuring!!

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate

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