Question - Lupus and skin allergies and rashes

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CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 6/8/2007 9:42 AM (GMT -7)   
I have a question on rashes and skin allergies.  Although diagnosed with Lupus I have not experienced skin problems other than one discoid rash years ago.  My children, however, are experiencing problems.  My daughter has probable Lupus and gets the malar and discoid rashes.  Initially, as a toddler, she seem to always have these bumps (like bug bites) all over her body.  Drs. said it was allergic reactions - but we never found out to what.  It was constant, all year round, and lasted for 7 years.  Later they went away and she began with the Malar and Discoid rashes.  Now my son has been having these bumps or "allergic reactions" with no apparent cause.  Again, constant, all year round and for a year now- and they look exactly like what my daughter had years ago.  We keep taking both to the doctors over and over again, same diagnosis, no reason.  The schools act/acted like we were neglecting our children.  I have sprayed everything, exterminated, put on lotion after different lotion, went to doctor after doctor.    The dermatologist said there was nothing more we could do.  Basically, we treat as much as possible and hope for no infections.  (My daught got infections all the time).
 
Has anyone experienced similar symptoms and can help me with this?  My daughter is teased constantly about the discoid rashes.  The schools act like I'm a bad parent, and I am worried for my son (I hope he doesn't get Lupus too).  I would really appreciate some guidence if possible.  Thanks - Kristin

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/8/2007 11:35 AM (GMT -7)   
Kristin, I don't know how much help I can be with this, I just wanted to say I am really sorry this is happening to your kids. The only suggestion I have is to take them to a board certified pediatric rheumatologist (if you haven't already). A peds rheumy might know of something that might help and he could help determine if your son was developing lupus. I'm also wondering if the dermatologist would be willing to write a letter to the school regarding the rashes and that you are doing everything possible for them but that not much seems to be helping.

I know what it is like to have a sick child and all the worrying that goes along with it. My 9 yr old son got sick about 2 and a half years ago with terrible joint pain and initially it was thought that he might have lupus and then they thought it was JRA and now finally we've learned that he has continually had high levels of strep in his body which is causing the arthritis. We had to have his doctor write something for the school to help them understand his illness and limitations. I also know that sometimes parents or a school nurse can talk to the child's class and educate the kids about the child's illness to help them understand.

I really hope that you can find something that will help with the rashes. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/8/2007 8:21 PM (GMT -7)   
Hi--
I agree, the doc is the best place to start and if you can't get a good answer and testing done, you might need a second opinion. I get rashes frequently and remember that things like laundry soap, medications, and foods are also suspects. My med rashes have ranged from hives all over to scaly stuff under my armpits, to almost poison ivy type rash. Also, some people have problems with celiac disease--allergic to gluten in wheat, and milk and dairy--lactose intolerance. You might try limiting some of these things on a test by test basis and see if they help. Not everybody gets all the symptoms of these problems and they do go along with other diseases. As for the bug bite rash, is it like big bites or like goosebump size, it might be more of a dry skin issue. A dermatologist might be much more help with the skin issues. I went to one recently and found they are much more open to testing and diagnosing rashes than a regular doc. I think they can bx the rashes to show they are discoid, this might give you something to bring to the school so they know. Also, dermatologists are really up to date on the latest stuff to put on the rashes and all. The drug Effexor gave me an itchless bug bite type rash and it took me a long time to figure out that it was a drug allergy and I wondered what was biting me. Also, liver enzyme levels and esinophils can help the docs determine if you children are having allergic reactions and if possibly some meds they are on are too strong and possibly causing them. Skin testing by an allergist can check for environmental allergens and stuff, like over 500 things. Did they prescribe an antihistamine like benedryl and or a cream to help with the rashes, since they said they were allergies? Sometimes, I have to get a shot of cortisone to shake me out of it, if it is an allergy. Sounds like you have alot of questions that only the docs can answer. I'm sorry that you and your children are going through this and I wish you the best. I'm trying to think of things that trigger these rashes and I do remember that sometimes in the spring our water gets really soft and I have trouble with the soap not getting washed out of the clothes really well. I don't know if you've been through all this, but you might have to do a little investigating on this stuff to see. I wish you all the best.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 6/11/2007 6:50 AM (GMT -7)   
Thank you both - it helps a lot. At wits end with this. My daughter does have elevated liver enzymes a lot. My son hasn't been tested for anything yet. I'm still trying to convince his father that he needs to see a dermatologist and that it could be possibly an autoimmune problem of some kind. I read that kids from parents with Lupus can sometimes have autoimmune problems. Most things I have tried, but thanks for giving me some helpful ideas. Didn't even know there were pediatric rheumatologists. My daughter's dermatologist and the ER doctors are the ones that think she may have lupus. Me too, as she, like me, has flares. She seems to have the neuro/skin manisfestations of the disease. The marks are puffy, small and round like poison ivy, they spread everywheres. The doctors usually send the kids home thinking they are chicken pox. They have taken antihistimines and used all sorts of cortisoid creams but it keeps coming back. I am opting for the skin testing. I need to confirm my daughter's discoid rashes, so I might as well cart my son in too. 500 allergens, etc. is a lot. I am glad there is testing for that. Hopefully it will help to get to the bottom of this. Again, thank you both so much! - Kristin
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