Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
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I really goofed up putting it on, I was off my synthroid for a thyroid scan and I really had a rough time just all the sudden quitting it. On top of that my rheumie gave me a double pred shot from h*** and I was really a mental mess. I could have sworn he said four times a day and I remember asking him two or three times, because I get so thick, my memory so bad. I even had to recheck by looking at the prescription on the way to the pharmacy and I could have sworn it said qid. So the most I could handle doing was three times a day with this steroid and twice a day with the immunosuppressant. Anyhow, luckily I went out on a vit site and they said that seemed like way too much and I got really bad headaches, so I stopped it and am feeling better and called the dermatologist today and they said steroid cream once a day and protopic (rapamune ointment) twice a day. I'm back on synthroid and that is helping the vit more than anything, always had. I think tomorrow or the next day, once I get it all out of my system, I will start again with the right dosage. i had only used it for two or three days and have stopped for two days already. I know I probably shouldn't be trying to tackle it and it takes a good hour to get the ointment on, but I'll give it a try since medicare is willing to pay for it. There is an interesting study on vitiligo being caused by hairdye and also about it being a result of too much hydrogen peroxide in the skin. I believe both of these are true in some cases. Mine was triggered by hair dye, bleach, that dropped on my skin and depigmented it. Then without any more dye getting on me that one spot spread. Soon I was having other autoimmune problems. My Thyroid Peroxidase antibody is always really high (TPOS) and this maybe has something to do with the peroxide level in the blood. There is a company in Germany that has put out a product on these lines called PCAT and if I cant take the other ointments, I will try this. It has virtually no side effects, is a calcium and catalase cream and is used in conjunction with dead sea salt therapy which always seemed to improve my skin when I put them in my bath.