SPF 45 and still sun rash??? Help!

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grafxmkr
New Member


Date Joined May 2007
Total Posts : 8
   Posted 6/10/2007 11:25 AM (GMT -7)   
I'm using a baby formula spf 45 that blocks UVA and UVB, but in the whole 10 minutes I was outside loading up groceries I got sun rash!  Granted it was at like 1:00 p.m., but that is RIDICULOUS!  Now I'm waiting for the aching to kick in and the energy drain.  Same happened on the way home from work on Friday.  I drive directly into the sun.  Hubby installed UV tint on all windows, but the front.  We just put in the top strip and it keeps the sun off my face/neck, but my arms still get it.  I live in Florida of all places.  Has anyone links to clothing stores that carry light weight UV protective clothing.
 
I am now ordering that shirt off cafepress.com that has a cute little smiling sun, then it says, "The sun is trying to kill me"
 

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/10/2007 2:49 PM (GMT -7)   
grafx, I had the same experience yesterday. I took my kids to the local swimming pool and used a ton of high power sun block and sat under a big umbrella the entire time so that the only time I was in the sun at all was for a couple minutes when my kids first got in the pool and my daughter needed some help with a few things. After that I was under the umbrella the whole time. I have a nasty rash on my neck and chest and my face is beet red. The only thing I can remotely think of is that although the embrella shaded me, maybe it let some of the harmful stuff from the sun through - I don't know. I agree that it's ridiculous especially when you feel like you are taking major precautions.

I love the shirt you are ordering - I think I'll have to go there and take a look. I know they have some good lupus shirts too.

I hope the sun didn't make you sick. I'm not too bad, just a little more tired than usual.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



caring
Regular Member


Date Joined May 2007
Total Posts : 26
   Posted 6/10/2007 4:53 PM (GMT -7)   
I am extremely sun sensitive so have to be very careful.  www.solumbra.com is a reputable company that sells sun protective clothing.  It is very pricey, though.  Another one is Coolibar.com.  There is also an inexpensive laundry additive (2 to 4 dollars a box)
  manufactured by RIT.  This provides good sun protection.  I can't remember the name of it but you can find it with a search online.  I always wear a hat outdoors (& sometimes an umbrella).  It's impossible to avoid sun completely (& flourescent lights) but we have to do everything we can because it is dangerous to those of us w/ SLE who are extremely sensitive.  I hope this helps.  Good luck !
Nan

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 6/10/2007 6:07 PM (GMT -7)   
Hi Grafx,
   I think alot of the meds we take make us alot more sun-sensitive even with the high SPF and protective gear. I know its so frustrating....((Hugs)). I hope this doesn't put you in a bad flare. Take care and keep us updated. You will be in my thoughts and prayers.
Hi Nan,
  I wanted to welcome you to the forum. Tks for the great links for protective clothing!  I hope you will post again and tell us more about yourself. This is an awsome group! So kind and caring. Hope to hear from you soon.
                                                                Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 6/10/2007 8:40 PM (GMT -7)   
Hot topic, Grafx (get it? sorry...)

I am having the worst summer yet with the sun. I've been sun sensitive for a lot of years, so I'm used to taking care, but this year is crazy. I use spf 50, wear a hat, and a long sleeved shirt when I go outside during the day. I normally don't stay outside for any length of time during the day because of this problem but today I "forgot myself" and spent about 30 minutes in and out of the shade in my lovely get up.

I am now decorated with the lovely welty prickly heat red rash that is itching me lick I have bugs crawling under my skin. And oh yes, the itching isn't confined to the chest area where the redness shows up altho that is where it is most intense, it pops out all over! What is that about?

Also, can anyone tell me why I have this rash that looks like I was in the sun when I was totally covered up? It is across my chest kind of as if I was wearing a shirt with a deep u to v shaped neckline.

I've taken my oatmeal bath, slathered on the olive oil/aloe/shea butter stuff and I've got the pink benadryls lined up ready to go. It ought to be one fun night here in creepy crawly land. And then I'll wake up looking like I DID spend the night at the Bates Motel! Norman are you reading this??? Behave yourself!

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 6/11/2007 12:18 AM (GMT -7)   
Most of the sunscreen on the market is only rated for one of the two uv wave lengths I can't recall which and don't work as well as they claim. There is a new kind with something that is either spelled or sounds like helioplex and I know neutragenia makes it but it costs like $10 for 3 ozs yet I think it is worth it because I discovered I can spend more than 5 minutes outside with that particular type of sunscreen where as with 60SPF of the old kind I got 5 minutes tops before I started to react and 15 minutes before I was ill for a week or more. Now I have a minimum of 15 minutes. I think this new stuff is really cool. Also they make sunscreen stuff you can was into your clothes it is by the company that makes the dyes for clothes- rite or some such thing. I hope this helps. Aloe jell and vitamin E will speed the healing and actually help to speed recovering for the other problems the sun can cause us autoimmune patients too. Make sure you take the vitamin E orally and topically and the aloe should be topical and applied liberally.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 6/11/2007 11:09 PM (GMT -7)   
Hippi, I hope your rash is getting better from your trip to the pool with your kids. And grafx I'm sorry you had such a bad experience with the sun.

Nan, I'm going to look at those websites for clothes and also try to get some rit. The biggest problem I'm having with the sun is that since I'm so heat intolerant now (probably due to a combination of prednisone and current weight gain thanks to the prednisone) it's all I can to to go outside with anything on at all. I mean even naked I'd be hot. I can't stand to wear a bra, always try to wear sleeveless tops inside, and even outside in the deep shade, in sleeveless tops or dresses, I prespire like a man doing hard labor. Putting creams on my skin is wonderful in the winter, but in this heat it makes me feel hotter. I keep the house cool and use fans in addition to AC, and I know it's just me. I wear long sleeve cotton shirts when I go out but find myself unconsciously rolling up the sleeves.

Emmi, you mention a rash that you got across your chest. Is it raised? The heat makes my face and chest (as though I had on a v-neck t-shirt) as red as a beet and people often tell me that I have quite a bad sunburn, when it's not a sunburn at all. I honestly think that the heat from the sun makes me red because I'm never in the sun longer than the time it takes to walk from my car to a store.

Are the rest of you this sensitive to the heat? This is really a first for me and it sure makes me want to stay in. I don't know what the solution is. I was telling Hippi that I had gone to the florist the other day and my face was perspiring - no sweating - so much that it was embarassing so I went out to my car, turned the AC up full blast and wrote my card there. I know the guy who was helping me so I just laughed and told him I was on steroids. That always catches guys off-guard because they think you're talking about anabolic steroids and they can't figure out why a middle age woman would be taking those. I should have made a fist and shown him my muscles. That would have gotten a real laugh.

I guess a solution would be to carry a damp rag and a couple of ice cubes in a baggie. Maybe I'll try that and see if it helps.

Well, I'm off to check out those websites Nan mentioned. Thanks and hope to see lots more of you.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 6/11/2007 11:12 PM (GMT -7)   
Grafx, I meant to say I hope to see lots more of you grafx. I know Nan will be back!
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/12/2007 6:24 AM (GMT -7)   
I am unfortunately finding out by trial and error how unbelievably sensitive to the sun I am. emmi, I get that v shaped rash on my chest too from the sun and I don't know why because that area is usually not exposed. LAst night my son had a ballgame at 6:30 pm and I wore sunscreen and brought a big umbrella for protection and was super careful because the sun was out with no clouds in the sky. After a while I just started feeling sick and my joints started hurting. I'm going to look into some of the protective clothing I saw in the Lupus Now magazine.

Pat, I get hot and sweaty anytime I do anything that requires movement and it is very frustrating. Often times after I shower, just the energy it takes to get dressed and do my hair causes me to sweat. If I do a load of laundry or pick up the house a little, I start sweating. It's very frustrating because I feel like the underside of my hair is often soaked with sweat. Sometimes if I go shopping I sweat a lot and my wet hair is very noticeable and it is pretty embarassing. Oh, the joys of living with lupus ;)
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 6/12/2007 7:46 AM (GMT -7)   
Hippi, I mentioned the idea of starting to carry around a cold wet washcloth, and additionally, what I have been doing is keeping a small cardboard fan in my handbag - one that my hubby brought home from the Susan Komen race for the cure. You can find that kind of thing just about anywhere, and just fanning your face can help a lot. I'll be thinking of you the next time the sweat pours off of me in a store :).
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 6/12/2007 8:10 AM (GMT -7)   
Hi Everyone.  I just bumped a post I sent on an article regarding UV clothing that passed testing and a couple that failed.

Dx: SLE diagnosed in 2005, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/12/2007 8:52 AM (GMT -7)   
Thanks Donna. I remembered that someone had posted about it, but I coudn't remember who and where (lovely brain fog will do that to you).
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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