Going to Stop the Plaq

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peacesoul
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Date Joined Jan 2007
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   Posted 6/11/2007 5:26 AM (GMT -7)   
Ok, so as some of you know, I've not been doing so great on Plaq.
I decided this week I'm going to stop, with or without my doc's approval.
I feel like a different person, but not in a good way. The effects from my lupus have been easier than how I've been feeling on plaq.
First it started with the stomach upset, which now is gone but I still get so gassy.
The worst part for me; the depression and anxiety it causes.
I've suffered from panic attacks since I was 18 (am now 41) and have not ever felt this much anxiety in my life.
I used to take xanax maybe once every two months when I had something to face that freaked me out, but I've been taking xanax almost 3 times a week now.
My vision is blurry, my head aches, I've not had an appetite since I started it, I can't work-out due to heart palpitations and extreme weakness and I just feel "different"
I can handle my flares much better than this.
 
Has anyone else stopped Plaq b/c of side effects?
 
Thanks
 
Jen
 
 

dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 6/11/2007 6:52 AM (GMT -7)   
Hi Jen,

I had side effects when I started taking it but I was determined to ride it out. Its hard because the Plaq doesn't work right away so weighing the benefits vs. the side effects is tricky. I did stick it out though and a few weeks later the side effects started to subside. A few months later, I actually started feeling better pain wise. I didn't have the side effects relating the depression and anxiety though that you mentioned and I would probably be thinking the same as you if I was in your shoes. I would still believe that you should be on something though unless your Lupus is really mild and your doc doesn't think that its necessary. The Plaquenil is good because its believed to slow down disease progression, there may be something else that can do the same for you.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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hippimom2
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Date Joined Jul 2005
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   Posted 6/11/2007 6:57 AM (GMT -7)   
The side effects of depression and anxiety and not feeling like yourself don't sound good. I think most people usually only deal with stomach issues when starting plaq and they don't have to deal with the side effects that you are dealing with. No matter what, I strongly encourage you to talk to your doctor and let him know you are going off of it and why. Like Des said, there might be something else he wants to try in place of the plaq. I'm sorry you had such rotten side effects. Honestly, I don't know that I would want to stay on it either if it made me not feel like myself and caused emotional problems.

Take care and keep us updated on how things are going for you.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 6/11/2007 8:06 AM (GMT -7)   
Thanks .....My Mom keeps encouraging me to ride it out as well. I'm on the fence daily with this.
I went to another site where ppl rate their experience on Plaq and many experienced the same as I am. Which was good, b/c I thought it was just me and going crazy. I think many of you here handle plaq very well.

My Rheum did say my lupus was mild (since I didn't fit more than 5 criteria), but when I feel sick, this "lupus" doesn't feel mild to me.

Can you tell I am totally frustrated?!

Dbab, maybe you're not expiencing any of the anxiety/depression b/c you're taking Klonopin? That is a very effective panic medication.

Who knows...My poor body is not used to meds, so I think it's just saying "what ya doing to me"

I think I need wine.............and lots of it ;-)

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 6/11/2007 8:37 AM (GMT -7)   
You may be right Jen. I didn't take that into consideration. I have been on anti-anxiety medication for a couple of years now so it may be taming a lot of what I got through anyway. I am tapering and dreading on one hand and excited on the other to go to a PRN basis.

If you don't feel that your Lupus is mild, than that is all that matters. Just because you don't have more than 5 criteria, doesn't mean that one of the criteria is not disabling to you. I would definitely see what else your doctor can do for you, I just hope that you can find one med that doesn't give you too many problems.

Take Care

P.S. I miss wine :-)
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 6/11/2007 10:04 AM (GMT -7)   
dbab said...
You may be right Jen. I didn't take that into consideration. I have been on anti-anxiety medication for a couple of years now so it may be taming a lot of what I got through anyway. I am tapering and dreading on one hand and excited on the other to go to a PRN basis.

If you don't feel that your Lupus is mild, than that is all that matters. Just because you don't have more than 5 criteria, doesn't mean that one of the criteria is not disabling to you. I would definitely see what else your doctor can do for you, I just hope that you can find one med that doesn't give you too many problems.

Take Care

P.S. I miss wine :-)

Is wine a med?...hehe! It should be :-)
 
Over 10 yrs ago I was on xanax daily for 3 months. I stopped it w/out weening myself off. No one told me not to and I went through the worst withdrawl. But once I weened myself off properly, I was SUPER FINE!
Don't worry about getting off of it. What happens on any anti-anxiety meds is it redraws the map in our brain to think a different way. Once u get off, that map still remains.
Physically, you will notice some difference, but that goes away.
I take a half oa .25 now as needed. I once went 2 yrs w/out taking anything and I have a busy and stressful life. It's all a matter of practice.
But on Plaq.......oh brother my anxiety is rampant.....My next life, I come back as one of my cats who have it made :-)
Good luck with that.....you'll do great :-)
 
Jen

cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 6/11/2007 10:46 AM (GMT -7)   
Hi Jen--
Sorry the plaq hasn't worked out. It has been a Godsend to me. I know when I have allergic reactions to meds or intolerance to them, anxiety and depression and stomach upset are awful. I'm sorry it didn't work. For some reason, I'm able to tolerate this medicine but not most others, maybe because it is broken down more by the kidneys. I used to take xanax but switched to Klonopin because it works better. Its just as addicting, it's a benzodiazapine, but I don't get the depression and anxiety hangover like I do with xanax, works for my restless leg syndrome, and is a mild antiseizure med. Actually, it perks me up more the next day more than anything. I hope they can find a treatment that works for you and is not horribly strong, like killing flies with a sledge hammer.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 6/12/2007 6:59 PM (GMT -7)   
you need to talk to your doctors...there could be some underlying issues. They need to know....There are other issues with this lupus...it may not be from the plaq. For me, I had some mental issues just because I couldn't walk anymore or do anything...I went into a depassing state, becuse I felt I had lost so much in my life. My legs hurt and I was so tried, I couldn't get out of bed. Please take care....Frank
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES, REQUIP RESTLESS LEG SYNDROME, LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 6/13/2007 2:52 AM (GMT -7)   
There is also the fact lupus can affect the central nervous system. It can actually cause mental illness or at least symptoms of such. You may need to be on something for anxiety because the lupus is attacking your brain or your brain chemistry may be off because of the lupus. IT really messes with you big time. It has caused me no end of problems. Actually funny thing- I notice an aweful lot of us have anxiety issues. I wonder if that is caused directly by the lupus.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 6/17/2007 7:07 AM (GMT -7)   
redrose77 said...
There is also the fact lupus can affect the central nervous system. It can actually cause mental illness or at least symptoms of such. You may need to be on something for anxiety because the lupus is attacking your brain or your brain chemistry may be off because of the lupus. IT really messes with you big time. It has caused me no end of problems. Actually funny thing- I notice an aweful lot of us have anxiety issues. I wonder if that is caused directly by the lupus.

Hi.....My Rheum believes I've had Lupus for over 12 yrs (undiagnosed) and yes I have always suffered anxiety and panic. But since taking this plaq, I've become ultra sensitive to anxiety. I feel like I'm "out" of my body.
I am 101% sure it's the plaq that is causing this since I was fine (mentally) b4 starting it.

On Friday I had to stay home from work b/c I have such brain fog and weakness. A flare? Not sure, but I've been feeling like hell since Friday.
I did not take the plaq last night. I may not take it again, but I am worried about withdrawal. Are there any withdrawal from plaq that anyone is aware of?
I'm at my wits end! I feel like my life is out of control since taking this drug.
The ringing in my ears (started 3 days after the plaq) is enough to drive anyone nuts.
I also now have horrible insomnia. I cannot miss anymore work due to lack of sleep. I need to sleep to heal and getting 3hrs of sleep a night and working 10 hr days is KILLING me!
 
Ugh.....help!

hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/17/2007 11:11 AM (GMT -7)   
Your pharmacist or doc would be the best person to tell you if there would be any withdrawls. I don't recall reading anything about withdrawls when I read about plaquenil. From what I've read from some of the people here who have quit it, their lupus symptoms flared, but they didn't mention withdrawls like from some other meds that can be dangerous to stop cold turkey. Since you probably can't reach your doc today, you could call a pharmacist just to make sure. It does sound like plaq did not agree with you and hopefully your doc can figure out an alternative and effective med for you.

Let us know what you find out. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Lynnwood
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Date Joined May 2005
Total Posts : 7020
   Posted 6/17/2007 1:01 PM (GMT -7)   
I'm with hippi --

I haven't heard of withdrawal symptoms from plaquenil, BUT lots of people have reported that when they come off of it they realize it was doing more to help the lupus symptoms than they realized.

So it is quite possible that what you are experiencing are lupus symptoms rather than withdrawal symptoms.

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 6/17/2007 1:02 PM (GMT -7)   
Hey Hippi...thanks for the input.
I think my alternative will be natural. I am not one to take meds so when I do, I get a reaction.
If stopping the meds makes me "flare", I can handle a flare anyday over how plaq is making me feel.
I'm thinking that many of you handle the plaq well b/c you were prob terribly ill before and anything was better than that. Though I get sick a lot, the flares were more managble for me than some of you (I believe).
I will call my doc tomorrow for sure to advise him I am not taking plaq any longer and will refuse any alternative.

I think one more night of insomnia and another day of insane panic will put me in the loonie bin. I need to sleep.

ugh......thanks

HUG

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 6/17/2007 4:54 PM (GMT -7)   
Well, I will never came off of plaq again.... I did that in went almost a year then boom. I went from 50 to 0 in no time. I couldn't move, my legs hurt so bad. I WAS OUT OF WORK FOR A MONTH.
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES, REQUIP RESTLESS LEG SYNDROME, LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


Lynnwood
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Date Joined May 2005
Total Posts : 7020
   Posted 6/17/2007 6:25 PM (GMT -7)   
I did not have many symptoms before the plaquenil, I was mostly just exhausted all the time. So I don't think it is saved for people who are awfully ill. I've never had reason to try to get off of it, so I have no idea what might happen.

Everyone has to measure the trade offs for themselves -- it seems we all come to different conclusions for our individual manifestations of lupus.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 6/18/2007 4:18 AM (GMT -7)   
Lynnwood said...
I'm with hippi --

I haven't heard of withdrawal symptoms from plaquenil, BUT lots of people have reported that when they come off of it they realize it was doing more to help the lupus symptoms than they realized.

So it is quite possible that what you are experiencing are lupus symptoms rather than withdrawal symptoms.

Cheers,

Hi...this weekend's aches and pains for sure were my lupus. I've been sick with this for 12 yrs and can identify the difference from the meds and the lupus.
Since taking plaq, I have slept less than 4 hrs a night, have intense anxiety, horrible period cramps, sore stomach all the time, severe heart palpitations (which I never had in my life) etc.
The worst is the insomnia which I have never had before. So the obvious conclusion is the plaq.
I've been on it 2 months now and cannot imagine another 1-4 months on it to see if it MAY work for me.
Many of you take other meds to offset insomnia and anxiety. Maybe this is why many of you can handle the plaq.
In my 40 yrs, I think I've been on meds twice for an infection. My body just cannot adjust to meds.  
Yesterday and went back to many old posts and saw a few other ppl that got off the plaq for the same complaints as I have.
I truly felt better before the plaq and believe me, I've been suffereing from "lupus" symptoms for a long while. But at least I was able to sleep which made handling it so much better.
I was still able to get to the gym 3 days a week and swim. Now I try to walk and I my heart races out of control.
I'm missing a ton of work also.
 
Thanks all for your input. It's awesome that this drug worked for you. I wish my outcome would have been as successful.
 
Jen 
 
 

peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 6/18/2007 4:24 AM (GMT -7)   
Lynnwood said...
I did not have many symptoms before the plaquenil, I was mostly just exhausted all the time. So I don't think it is saved for people who are awfully ill. I've never had reason to try to get off of it, so I have no idea what might happen.

Everyone has to measure the trade offs for themselves -- it seems we all come to different conclusions for our individual manifestations of lupus.

I totally agree, we all have to measure the trade-offs.
You're only symptoms of lupus was exhuastion?
You have many other ailments and take many other meds also?
Could it be it was diffictult to determine how plaq was making you feel since you are on so many other meds?
Or was plaq the first med you took than others followed?

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 6/18/2007 5:02 AM (GMT -7)   
Me not sleeping was caused from the lupus not the meds. My doctor put me on flexial which help me to sleep really well. Now, I am able to sleep w/o it. If, you can't get the sleep you will feel exhausted..you have to keep you doctors updated about your needs.
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES, REQUIP RESTLESS LEG SYNDROME, LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 6/18/2007 5:16 AM (GMT -7)   
phndoc said...
Me not sleeping was caused from the lupus not the meds. My doctor put me on flexial which help me to sleep really well. Now, I am able to sleep w/o it. If, you can't get the sleep you will feel exhausted..you have to keep you doctors updated about your needs.

I was fortunate enough to never have severe insomnia. I mean I had a few nights a month where i could not sleep a full 8 hrs, but now I sleep 3 hrs a night. My body is like a live-wire!
I will call my doc today to inform him I've stopped it. I will not ask for meds to help me sleep since more meds (for me) is not the answer.

hippimom2
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Date Joined Jul 2005
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   Posted 6/18/2007 6:44 AM (GMT -7)   
peacesoul, I think you bring up a good point that everyone responds to meds differently. Some meds that most people can tollerate like SSRI antidepressants, I have a terrible reaction to and I can't take them. Some meds I just seem to be super senstive to and others I can take just fine. You know your body best.

I'm glad you're calling your doc to let him know - it's important that he knows how the plaq affected you. Take care and I hope you are able to get back to the gym soon.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 6/18/2007 7:34 AM (GMT -7)   
peacesoul said...

I totally agree, we all have to measure the trade-offs.
You're only symptoms of lupus was exhuastion?
You have many other ailments and take many other meds also?
Could it be it was diffictult to determine how plaq was making you feel since you are on so many other meds?
Or was plaq the first med you took than others followed?


Yes, my only huge bothersome original symptom was exhaustion. I'd sleep 18 hr days and still be tired. I had some other symptoms (feet going numb while running, unexplained muscle/joint pain), but that was 7 years ago and I don't remember them as being that troublesome.

I was totally med-free for years before my initial lupus diagnosis. I took only Plaquenil and Feldene for the first period -- it was at lest several months, if not over a year. I didn't have any side effects at all.

Lupus is quite often a progressive illness, it certainly has been in my case. Plaquenil and Feldene were my first meds, as that didn't quite control my symptoms, and as other symptoms came along, Prednisone was added. The Prednisone necessitated the Xanax and Trazodone so that I could go to sleep and get quality sleep. Lupus reactivated a previous tendency toward depression, thus the Wellbutrin. Nystatin is because I started getting thrush and yeast infections, those are partly attributed to lupus and partly to the immuno-suppressant qualities of Prednisone. Valtrex is because the lupus fevers reactivated my previous oral herpes.

Cellcept is because I developed some very significant cognitive dysfunction. I simply could not think anymore. We tried Imuran for quite a while, but it didn't seem to do much, so we switched to Cellcept in October. It has given my back my brain, which is truly miraculous.

I hope that answers your questions.
Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 6/18/2007 1:21:36 PM (GMT-6)


peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 6/18/2007 12:14 PM (GMT -7)   
Lynn, one thing just led to another for you it seems. I wonder how much more my lupus will change or progress?!
Thanks for the explaination.

Hippi, I will try my best to get my butt back to the gym. I was just saying to my boyfriend today, I wonder how worse off I would have been or how progressed my lupus would have been had I not been working out the whole time.

I'll let u know what my doc says when he calls me back

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 6/18/2007 12:29 PM (GMT -7)   
PS. I was working out until January of this year, ie for the first 6.5 years of having lupus. Initially I was a marathon runner, in the best shape of my life. I had to slow down as the lupus progressed and the fatigue was more easily triggered, but didn't stop doing at least 30 min aerobic & 30 minutes weights. Once the Cellcept improved my brain, I tried to go back to work (Feb), but that made me too tired to work out. I tried work for 8 weeks, but couldn't work more than 25 hrs/wk without exhaustion returning. Since then I just haven't made it back to the gym, and am currently having muscle weakness and shortness of breathe. I don't know if that's a drug reaction, a lupus symptom, or an out-of-shape issue. I'll be finding out soon!! (I hope.)

Anyway, I have no idea how much different my lupus might have been without working out as long as I did. I suspect it would have been roughly the same, but have no solid evidence regarding that. I'm pretty sure the typical prednisone weight gain would have been a lot worse without activity, and I'm sure my mood would have been worse!

I hope we can both get back to it soon!
Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 6/19/2007 4:20 AM (GMT -7)   
Lynn, that sucks that you had to stop working and working out. That is my fear!
Funny you say you were out of breath b/c once I started the plaq and would go work out, I would get heart palpitations and lose my breath so quickly. I knew it was the plaq b/c I never had that before.

Was your exhuation all day or mostly in the mornings?
Did u notice more flares after working out?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 6/19/2007 8:40 AM (GMT -7)   
Exhaustion all day. When working out starting feeling worse (not exactly falres but felt bad after) I cut back what I was doing till I had a level I could tolerate.

Maybe you are having stress/nervous reactions to some things? Sometimes anxiety attacks make us feel like we're having heart palpitations when if we take a pulse we find out it's just a feeling.

Lupus an cause anxiety by itself; it can also be associated w/prednisone. I haven't heard of it associated w/plaquenil, but ya never know.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

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