Cardio appt today

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dbab
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   Posted 6/11/2007 7:51 AM (GMT -7)   
I'm finally going to the cardio today for my chest pains and SOB from the advice of my PCP (yes its been that long).  After my recent scare with my palpitations, it kind of hit me that this was important to do.  I have just been to too many doctors in the past couple of months that I'm just so sick of it.  The thing is, I know going to the cardiologist is probably one of the most important ones I had to do but I just kept putting it off probably because it scares me the most.  When some of my husband's family found out that I was going to the cardiologist (I know that they think I'm crazy), they know about my health problems and they treat me as if I make too much out of it.  I guess they are thinking that since I'm only 31, I am making a mountain out of a mole hill.  I then start questioning myself too and causing myself more problems from the stress.
 
Anyways, I got off track.  This is the first cardio visit for me so I'm not sure what to expect.  They will probably make me do a stress test.  I occasionally get stabbing pains but they are very localized and they don't always hit in the same spot.  A few times, I got these pains in my upper back too so I'm wondering if its related.  My chest xray came back clear as I originally thought all of this was from my lungs.  My last EKG was fine and my blood pressure is up and down like a yo-yo.  Wish me well... I will let you all know how it goes.
"Des"
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Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
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PattyLatty
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Date Joined Mar 2006
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   Posted 6/11/2007 9:05 AM (GMT -7)   
Des, good luck at your appointment today. I sure do hope that the tests show that your heart is healthy.

By the way, what does being 31 have to do with your being able to take care of your own body? Does your family realize that if lupus is part of your uctd, your disease can attack your heart? I'm glad that you listen to yourself and not others who may not take you seriously.

Let us know what you find out. I'll be thinking of you.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


mom46
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Date Joined Dec 2004
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   Posted 6/11/2007 11:21 AM (GMT -7)   
Des,
  I hope your appt goes well and you get a good report. Chest pain of any kind is scarey! Let us know how it goes. You are in my thoughts and prayers.
                                                         ((Hugs)) Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


emmi
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Date Joined Apr 2005
Total Posts : 1529
   Posted 6/11/2007 8:50 PM (GMT -7)   
Des,

Hope all went well today for you at your appt. Let us know if any test were ordered, labs etc. Hope it didn't get you any more stressed out than you already were! Take care.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 6/11/2007 9:04 PM (GMT -7)   
Hi Des, I hope your tests went well and you have a good report. I've had it done before but because of my lungs they didn't have me do a treadmill. They gave me a shot of somthing that made my heart beat like I had run a treadmill. Boy was that weird.
You know I really don't understand why family has to act that way. It's like it's to much of an inconvinience for them or somthing. It's terrible when you really need your family they are the last one you can count on. Of course that isn't always the case but it seems to happen an awful lot.
anyway hun please let us know how it went
love and prayers
carol
God Bless
 Lupus.Possible CREST,COPD, High B/P, Oteoporosis
xanax,triam , vicodin.5x3, Evista,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.5.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


dbab
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Date Joined Jan 2004
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   Posted 6/11/2007 9:33 PM (GMT -7)   
Thanks guys... my husband's family puts on a front that they like me but they really don't. I am an independent woman with a take charge kind of attitude and I will never let a man tell me what to do. They are very old fashioned and believe that a woman should speak only when spoken to so you can just imagine how that is. I know that they get upset with my husband when they find out that I make decisions in this house. Oh well, c'est la vie. I think your right on the money Carol about it being an inconvenience for them. I don't know why they are like that because my mother in law had a quintuple bypass after finally going to the hospital into her 3rd day of a heart attack. Yeah, thats what I want to do SHEESH.

Well anyways, I had a echo cardiogram and good news is that the doc didn't see any fluid around the heart. I didn't do a stress test today but she does want me to go back for a nuclear stress test. Does anyone know if this is better than a regular stress test? I have never heard of that before today. I think its more expensive because they said they would call me to make an appt after they got insurance approval. They never did that on me with any test besides an indium scan and an MRI which they are very expensive. I'm wondering if its even worth it. I'm worried that my insurance will drop me any day thinking I'm trying to abuse my benefits or it will look bad on my husband (he's the primary insured) because of all the doctor visits and tests recently. I don't know, I'm thinking of taking a break again from all of this, its quite depressing anyway. This may be my last test that I decide to do for a while... I may not do my MRI for now.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 6/11/2007 9:54 PM (GMT -7)   

Hi Des, I'm glad your tests went well so far. Yes a nuclear test is much better than a regular stress test. Long story short respitory therapiest screwed up when i was in hospital. My BP went up to 210/190. Doctor was worried I had a heart attack. they gave me nitro and sent me down to nuclear meds. did the med to race my heart up when it got to a certain rate they gave me an injection of dye. Than they sent me back to my room for lunch. I guess it takes a little while to have the dye do it's thing. When i came back 45 mins later they put me on a table under a huge machine. kind of like an mri or ct scan principle. The idea is that a regular stress test is only ekg monitor and a nuclear is takes pictures of all your arteries and stuff to serch for damage or clogged arteries and stuff. I have no idea what it costs.

hope you have a good night get some rest

love ya carol


God Bless
 Lupus.Possible CREST,COPD, High B/P, Oteoporosis
xanax,triam , vicodin.5x3, Evista,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.5.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 


mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 6/11/2007 9:55 PM (GMT -7)   
Des,
  I'm glad your Echo was normal. I think the nuclear stress test/thallium stress test is where they inject the dye into your vain to see how the blood flows to the heart. I believe it is done over a period of 2 to 3 hours and given twice during the test. I'm sure someone will correct me if I'm wrong.... :-) . Just google it and you will find alot of info on it.
  I know all of this testing and doctor appts can be overwhelming...(((Hugs)))). I hope you get some answers and relief soon. Hang in there and keep us updated. You are in my thoughts and prayers.
                                                                Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 6/11/2007 10:03 PM (GMT -7)   
Des, I had to laugh when I read about your family - or maybe I should say your husband's family. I'd sure rather be a wilting violet and have someone else tell me when I need to go to the doctor or the hospital, and also let me know whether I'm sick or not. Then I could relax and not have to think anymore. I'm not making light of your situation, though, because in-laws like that would make me crazy. When I was pregnant with my third child my left eye suddenly started blurring and I told my husband I needed to go to the hospital. I'll never forget my ex husband and his mother both saying to me, "there's nothing wrong with you. Just go to bed." I simply responded by telling them that there was something wrong so I eventually got a ride to the hospital and had preclampsia and was sent by that hospital to one a couple of hours away where I stayed for a few days. I'll always listen to advice, but in the end it's my life and therefore my decision. You know you have to feel proud of yourself for standing your own.

It's good news that your echo went well. I've had the nuclear stress test and it's easier than the walking one because you don't have to walk on a treadmill. You do get a strange feeling for just a moment or two but it's over before you know it. I had it done once when I had a weak heart muscle and after I took medications for a couple of months returned and was given the treadmill stress test. I don't remember the reason for the different tests.

Have you discussed your insurance concerns with the cardio? In light of all the lawsuits these days, doctors will run more tests than they used to, often to cover their basis. If you have a honest discussion with him you might learn why or why not you should have the test run. I'd hate to see you pass up the necessity of an important test because of your concerns about health insurance, but I really do understand! And boy do I empathize with you when you talk about wanting to take a break from all the tests. I know you'll do the right thing.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 6/11/2007 10:08 PM (GMT -7)   
Thanks Carol and Babs, the doc asked if my joint pains would prevent me from doing the treadmill and I said no however I really don't know how vigorous it is and more importantly how I will be feeling that day. Oh well, might as well try it and if I have problems, I can always ask to stop and then I can do the med to race up my HR. They did say that I would be there for half a day which sounds right. I know it can take a while for the radioactive material to get where it needs to go, at least thats how it was when I had my indium scan a couple of years ago. I will keep you all updated.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 6/11/2007 10:14 PM (GMT -7)   
Thanks Pat... for taking light of my post about my in-laws. I really do not make a point of talking bad about people but sometimes they can just get under my skin. I guess its kind of my fault in a way (NO, I'm not putting blame on myself) because I never really talked about how I felt these past few years when I started feeling bad. I just kept it to myself and come home with a CTD diagnosis so everyone kind of looked at me like I was joking. As if to say, wow you haven't been sick.

So you didn't have to do the treadmill with the nuclear stress test? Did you get the med that speeds up your heart as well? You know I never question my docs decisions for tests which I know I should. I tend to forget that being a doctor is running a business and if you can sell the more expensive item (test), well then go for it. I'm glad thats been looked into more though, all of that sure has done a number on our premiums (MAN, I shouldn't even talk).
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 6/11/2007 10:44 PM (GMT -7)   
No, you don't get on the treadmill for the nuclear stress test. My memory is that it was just what Carol described in her post. Her description of the differences makes sense too.

Des, I know you don't complain about people, but in a case like the one you describe, if you can't get it off your chest here, then where can you. You're safe with us girlfriend.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


bella4
Regular Member


Date Joined Jun 2005
Total Posts : 263
   Posted 6/12/2007 3:38 AM (GMT -7)   

hi des,

sorry to see that you have been having such a hard time lately.  glad the cardio thinks everything is okay with your heart.  are you still having dizziness?  you should do the MRI, it is important because you really need to know if anything is happening in your brain.  i understand about wanting to take a break (stop! i want to get off!).  i am seeing the neuro tomorrow, finally (had to cancel my appt 2 weeks ago because i was too sick to get there, lol).  anyway, i had to do another 24 hour urine and i am exhausted from it all.  seems like sometimes you go to all these doctors and they do all their tests and then NOTHING, no meds, no diagnosis so...we wait.  sorry you are so worn out.  take that break, you sound like you need it... sad

a note on in-laws...i was in the hospital last year for ALP (acute lupus pneumonitis) and my mother in law (who is a nurse by the way), was telling everyone in my husband's family that i was faking it to lay a guilt trip on my husband, HUH!?!!!  yah, they are the worst and to top it off my father in law is a doctor (who actually told me 2 years ago that i didn't have arthritis, i didn't have lupus or anything else)!!!  do you feel any better about your in laws yet?  because i have lots more horror stories where that came from! skull

have a great day tongue


dx jan 06:
sle, leukopenia, neuropathy, interstitial cystitis, raynaud's, dermatomyositis may 07


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 6/12/2007 5:58 AM (GMT -7)   
Thanks Pat for the clarification. We'll see what happens when they get the insurance approval. I need to get this done regardless if any other test... can't mess around with the heart.

Hi bella, I still get dizziness but its eased up a bit. How about you? Is it getting any better for you? I hope so. Yes, I want a break the more and more I think about it. Its not like any of this is going away anytime soon so it may be time. The MRI was basically to look for brain lesions as to what is causing the neuropathy, dizziness, seizure like episodes. I think when the doc mentioned MS as a possibility, I totally froze. I have enough dealing with the Lupus stuff, I don't know if I can take too much more right now. This happened to me about a year ago too (almost to the date) where I just wanted no more of all of this. And then when the tests come back negative, then you feel like you just wasted everyone's time and money. Feels awful. Your in-laws sound bad too. The worst part for me is that they live in my neighborhood so we see them ALOT!!

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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hippimom2
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   Posted 6/12/2007 6:10 AM (GMT -7)   
Des, I'm glad that so far things look okay with your heart. I can really understand why you want to take a break for a while from all the tests - it can all feel like too much sometimes. I know that if you thought something was really wrong, you'd get it checked out.

Hang in there and take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 6/12/2007 7:48 AM (GMT -7)   
Des I had this same test yesturday because of shortness of breath and I did have to do the stress test along with the nuclear test.

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 6/12/2007 8:37 AM (GMT -7)   
Thanks Hippi and mawmaw... Mawmaw, did you have the echo done also? If so, how did it turn out. I'm thinking for me, that if the EKG and the echo both came out okay, I'm not sure why doc wants to do the nuclear test. How did it go for you? Were the results okay?

Thanks
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 6/12/2007 3:11 PM (GMT -7)   
Yes I had the ehco 1st., nuclear that takes about 30 mins. 2nd., stress test 4th, then you eat somthing while you wait 45 mins. finely another nuclear test. The whole test takes about 3 hours.

Linda
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