Thank you all for the wonderful replies. It does help to know I'm not alone. I have just started on the Plaqunil so I haven't felt the effects from it as of yet. The doc says it can take up to 6 months and that was very discouraging to hear. But, I have been hearing the same thing over and over and I know it to be true is to listen to my body when I need a rest and give myself permission to take it easy. It's been hard for me to do that but I am now excepting that is what I have to do and let the housework fall to the way side. I am now working full time and it has been a struggle especially in the mornings. Have you guys been able to keep working full time?
Thank you again for the responses.
I'm kinda new at this lupus stuff too and am sorry to hear you are experiencing the fatigue so bad. It is a constant battle in a lot of our lives. I am just now beginning to understand that the activities I do have a direct relation on how bad the fatigue is and am learning more how to read the signs of lupus related fatigue as far as how much rest I need versus how much I feel I can do. There are days like today where I worked 10 straight hours for work and actually surprised myself making it all the way thru and there are days like yesterday where I just had to literally FORCE myself to get up off the couch to take a bath. I have really learned a lot from reading all the post her too as far as what signs to look for to know I should so down and such. I currently am not on any meds like Plaquenil or Cellcept but am trying to locate a new rheumy and primary care physician who can help me find some kind of balance of meds to get my pain under control and the lupus flares under control. Keep us updated.