My son, numbness in leg, epilepsy

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cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 6/12/2007 10:23 AM (GMT -7)   
Hi--
My son is 19 and he has focal epilepsy in the parietal lobe and take trileptal.  He also has Wolff-Parkinson-White.  The numbness is in a certain area of his leg where he was bitten by another child in daycare when he was 6 months old.  The bite left a red crescent shaped scar and as he's grown, the red patch has spread.  Now he is having numbness in the leg.  He went to the ER and they looked at his back, just an xray though, and told him nothing was wrong.  He has some red faceness at times and skin tone unevenness, severe dryness like me, and his bp is really low, his hands are patriotic, often getting red and white spotted, and during his tilt table test blue.  Of course, I'd like to see him screened for AI disease, given my family history.  I'm trying to get him in to see my rheumatologist but our primary care has to have a reason to refer him.  Could the numbness be lupus or AI related?  Shouldn't the reynauds be enough?  The problem is that it comes and goes pretty quickly and it is hard to schedule an appointment that coincides with the reynauds. Any ideas on how I can get him to the rheumatologist would be greatly appreciated.  It's disgusting we have to play these games. 
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 6/13/2007 5:47 AM (GMT -7)   
Hi Marji.  My boyfriend has had epilepsy for 30 years and he has been taking carbitrol and depakot
for years.  Other than that he's extremely healthy and never gets sick, so I don't have any advice, but I wanted you to know that I'm sending lots of positive energy to you and your son.  ((hugs))
Dx: SLE diagnosed in 2005, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/13/2007 6:51 AM (GMT -7)   
marji, I'm sorry that all of this is going on with your son. I'm hoping that somewhere along the line you can get a doc to test him for AI disease. Do you think the family doc could run an AI panel and see if anything comes up? The other thought is to take pictures when the raynauds is really bad.

Hang in there and keep trying to find answers. As you know it can be a long and frustrating journey to get these things figured out.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/13/2007 11:40 AM (GMT -7)   
Thanks, the ideas of the pictures is good. Maybe I can get the doc to just test his TPOS and ANA. I'm worried about him. I'm glad he lives with me still, I would worry so much if he didn't because he doesn't take care of himself without a lot of prodding, especially eating and stuff.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 6/13/2007 1:59 PM (GMT -7)   
Marji, There's no worry worse than worries about our children. I hate to hear that you and your son are going through this and I hope you find a way to get a referral to your rheumy. Good luck and let us know how it goes with the appointment and with your son's condition.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

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