My Rheumy App't finally approaches!

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New Member

Date Joined May 2007
Total Posts : 8
   Posted 6/14/2007 3:21 PM (GMT -6)   
I've been waiting for almost 3 months to get in!

I don't really have any photos of my rashes to take in, but I have a log of really weird stuff that goes on and has gone on over the past 10 years.

I keep two red spots on my upper cheek bones constantly (I looked like a freaking anime character!) That is pretty evident. Should I go w/out makeup?

I was considering omitting the sunblock and eating outside during lunch in the sun right before going in. That should give them a pretty clear example of the sun rash I get. Is that too crazy??? It will drain me for a minimum of three days, but worth it, I dunno. Maybe I'd get a tan...doubt it!

I wish I would have taking photos ::sigh:: I had the little sores from Raynaud's two years ago until I figured out it was from cold! Now I live in and have a fetish for fuzzy slippers.

If the office is cold enough my fingers will turn nice and purple for them.

I'm so drained from my job, maybe the nice circles under my eyes might help...LOL! I've been going to bed at 9 all week and no amount of sleep is working! I have a publication going to print and the stress is on! I'm even dreaming about my project at night.

I just hate the idea of waiting so long for an appointment only for them to pat me on the head and send me out for more blood work, "See you in another 3 mos." I'm sure that is what is going to happen, but whats new?

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 6/14/2007 3:29 PM (GMT -6)   
Hi grafxmkr,

I think keeping a log was a very good idea. Its easy to get temporary amnesia when you go to the doctor so its important for your first and any other appt to take a log of whats happening. Yes, go without makeup so the doctor can really acess your facial rash. Its funny you say you look like an anime character, I was just telling a co-worker yesterday that I felt like a cartoon with my red checkbones... I also mentioned it looked like I went a little heavy on the blush LOL.

Be careful with the sun, I know that you want to show your doc the effects of what it does to your skin but sun can do more than that for Lupus sufferers. It can put you in a flare and cause you to get really sick. The sun used to just drain me at first too but now it does so much more.

I think in lieu of pictures, just make sure that you explain what these rashes look like in detail. Color, pattern, textures are all important... of course pictures say a thousand words but explaining them good should help.

I hope your appt goes well, please keep us posted.

Take Care
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 6/14/2007 3:46 PM (GMT -6)   
Hi Graf, Des gave you some great advice. Let us know how your appointment goes!

Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 6/14/2007 7:42 PM (GMT -6)   
Hi Graf,
  I agree, Des gave you some great advice. When is your appt? I hope it goes well and you get some answers and relief soon. Let us know how it goes and take care. You will be in my thoughts and prayers.
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/15/2007 9:20 AM (GMT -6)   
grafx, I don't have anything to add to the great advice Des gave you. I'm really hoping you get a great rheumy who will really listen. There's no worse feeling than leaving the doctor's office with a patronizing pat on the head. It's not a good feeling to leave the doctor's office feeling worse than when you came in.

I'll be thinking of you and looking forward to hearing how it goes.

Take care and keep us updated.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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