Candace, first of all, my heart truly breaks for you - I am so sorry you have gone through all of this and that you have lost so many babies. I had one miscarriage and it was beyond heartbreaking, so I can't imagine how you must be feeling. How terribly sad that the mistake in the hospital caused your pregnancy loss so far into the pregnancy.
I'm sorry I can't be a lot of help about
being pregnant while having lupus - I had both of mine before I got very sick, but I do know there are women who have had babies while they've had lupus. If I remember right they are followed closely by several specialists.
I'm hoping that some of the women who have had children when their lupus was active will see your post and help you out. I'd say it would be important to talk about
this with your rheumy and a gynocologist that specializes in high risk pregnancies. I really hope you are able to have a baby - I can tell by your post how much it means to you.
Take care and you'll be in my thoughts.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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