pregnancy problems and lupus

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New Member

Date Joined Feb 2007
Total Posts : 17
   Posted 6/15/2007 10:14 AM (GMT -6)   
My name is Candace I am 30 and have had four pregnancy losses.  The first three I didn't know I had Antiphospholipid Antibodies so the pregnancies never got past 11 weeks.  The insurance will only pay for the tests after 3 losses.  Isn't that sad!  Anyway the last pregnancy I went on the heparin and aspirin and the pregnancy progressed but my body started flaring and just kept getting sicker and sicker.  My arthritis was so bad that I couldn't fasten my bra or comb my hair or sit on something low like the toilet.  On top of that I had terrible pluerisy which they gave me percocet for.  In the 5 month I went into a gallbladder attack, got very sick and lost her anyway.  First they didn't believe me that it was my gallbladder they said I had the flu, and sent me home 3 times.  Then when the lupus started flaring they admitted me into the hospital and forgot to  anticoagulate me.  I know that's a fact because when I went to have my gallbladder out finally the ultrasound showed a clot in my liver.  If I had been anticoagulated then I never would of thrown a clot in my liver. 
Now here I am a year later and all I can think about is having a child.  I am just wondering if anyone else out there had a lot of problems during pregnancies?  Plus is there anyway to calm down the immune system during pregnancy without a ton of prednisome?  With your pregnancies did you go full term?  If you flared during pregnancies did it ever get easier as you progressed?
Mostly I just want to know if anyone has had pregnancies with bad Lupus flares and if they were able to keep the pregnancy and how?
Thank you so much for your time
Candace Diaz 

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/15/2007 5:02 PM (GMT -6)   
Candace, first of all, my heart truly breaks for you - I am so sorry you have gone through all of this and that you have lost so many babies. I had one miscarriage and it was beyond heartbreaking, so I can't imagine how you must be feeling. How terribly sad that the mistake in the hospital caused your pregnancy loss so far into the pregnancy.

I'm sorry I can't be a lot of help about being pregnant while having lupus - I had both of mine before I got very sick, but I do know there are women who have had babies while they've had lupus. If I remember right they are followed closely by several specialists.

I'm hoping that some of the women who have had children when their lupus was active will see your post and help you out. I'd say it would be important to talk about this with your rheumy and a gynocologist that specializes in high risk pregnancies. I really hope you are able to have a baby - I can tell by your post how much it means to you.

Take care and you'll be in my thoughts.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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