If this is a flaire I don't want it

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ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 6/17/2007 12:41 PM (GMT -7)   
Since my dcc left on Friday all I've wanted to do is sleep. I went to bed early on Friday night granted I took a muscle relaxer which did me no good. It was only 10 mg. I took it before bed like I said Friday night didn't go to sleep until 2 body wouldn't quit hurting. Joints in my toes would hurt then it would  move to anther part of body then it would start down in my toes again. First one side then the other just different parts.
 
I slept yesterday until 9:30 when my friend called and asked if I go a couple places with her and of course I went thinking maybe I just needed to get out. Came back home around 2:30 went back to bed. I can't get cooled off and body is aching. Got up this morning feeling awful. I was sitting on couch and went to get up and almost went to ground so I sat back down legs have been shaky. Fixed b/f and my son lunch for Father's day even though son is not a father. Went back to bed felt like heart racing but when I checked neck for a pulse it's not going fast.
 
There are so many things I need to do today but I know nothing is going to get done. I'm so glad b/f is understanding. I have been crying alot today. I'm so mad at myslef for getting sick even though the dr says the only thing wrong with me is my iron. I've been taking my iron and eating better but my body still doesn't feel right.
 
I'm also in a fog, I let my dog out and about 5 minutes later I thanked my b/f for letting him out. He looked at me and told me I let him out I didn't remember. I've been doing that all weekend. Yesterday I was having a hard time remebering things and conversations. It was so bad I didn't even want to talk to my daughter on the phone.
 
Sorry for whinning.
 
Veronica

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 6/17/2007 12:54 PM (GMT -7)   
Did u ever inquire about the Lyme since they do not think u have lupus?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 6/17/2007 1:11 PM (GMT -7)   
Sounds like a bit of a flare to me. Are you on any meds? Can you call your doc and see if they want to increase anything temporarily? Meanwhile, napping, trying to eat well, and resting are helpful to me. Also drinking cool water & putting cool water on my face helps when I feel really hot like that.

Hope you feel better soon,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
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ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 6/17/2007 2:11 PM (GMT -7)   
Peacesoul no I haven't but I haven't been bittne by tick.

Veronica

ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 6/17/2007 2:13 PM (GMT -7)   
Lynnwood,
I'm not on any meds. just Iron pills.

Veronica

bhkhhh
Regular Member


Date Joined Jul 2006
Total Posts : 245
   Posted 6/18/2007 8:10 AM (GMT -7)   
Ladybug, PLEASE go to hematologist & ask for a hemochromotosis test! My father passed away 3yrs ago due to this. It is where your body stores iron & you become over loaded with iron. This is Very serious. If they catch this early they can do phlebotomies (draw blood) to correct it. I by no means want to add more stress to you but I really feel it needs to be ruled out. I have to have screenings for this myself because I carry the same gene. The docs told me it is mainly in males, NOT so! My aunt has been doing phlebotomies for over a yr to get her iron down to normal level. Now that I look back my Dad had the same symptoms as I do, only they say I have lupus. A hematologist is more practiced in this, most docs are unfamilar in this. Also I do not understand, I thought your iron was too high?? If now you are too low & then they have you take iron to get it back to normal & you end up too high that can be dangerous. Your doc should know better! If they can't figure it out they should send you to someone who can! I hope this doesn't sound too harsh, I get upset when I see docs throw everything off as one illness. please keep us posted.

CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 6/18/2007 12:06 PM (GMT -7)   
Veronica - sounds kind of like a flare, but it may be your body has something going on it can't handle. It took doctors years to find out I had Lupus. May I say too late also. I have a family history of it too. But doctors didn't want to hear it. I decided to make a list of all my odd test results over the years, my obgyn oddities, and all my ailments and diagnoses over the years. It really added up and made a picture. They still shooed me off, but when I had pericarditis, costrochondritis, blood clots in my eyes and dementia one year, they definitely took notice. Did a lot of bloodwork and lo and behold I had Lupus. I had an unusual manifestation of the disease and it was CNS Lupus to boot. Keep a general diary. It made the diagnosis that much easier for the doctors to make. Some are very hardheaded and if it isn't the exact package they are use to seeing in Lupus patients or what they think a Lupus patient should look like they blow you off. As I said back then, either way I was sick an awful lot and needed help and understanding. Thankfully, I had here to come for support and understanding. It gave me the strength to demand treatment. I doubt I would be here now if that didn't happen.

First things first, definitely need to get your iron under control. Very important. Honestly, it is possible that this is what is causing this flare. It can make you real sick. Put the fire out first and then go find the cause, as they say.

I hope you get the answers you need. It can be an overwhelming uphill battle at times. Take care - Kristin
  Best wishes,
 
  Kristin
 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurgitation, dementia/Alheimer's (improving); GERD; blood clots in eyes/vision loss, narcolepsy, rheumatic arthritis and arthralgia, IBS, ovarian cysts, raynauds, EBV/CFS, mild inflammation of liver and spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin, just off Provigil 
Previous 1996-2006 - discoid rash, hemi-pelagia, migraines, hands/feet sensory loss, anmesia, PTSD/Depression, imbalance, weakness and muscle spasms, shooting pain, dizziness, fine motor movement problems, miscarried 2 children & severe complications w/2 I managed to get out, False positive syphilis, swollen glands, high fine speckled & homogeneous ANA; Positive IgM; constant staph and strept UTI infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, high Methylmalonic acid, high Epithelial cell counts, off and on low red/white or pallet counts, hypothyroidism/Hashimoto's disease, postural hypotension, dyspnea, periods of hypertension/hypotension, lipedemia, mouth/lip ulcers, pneumonia, skin tightness/hardenes, ligament conjectures, weird purple pimple rashes on legs, hypopigmentation (leopard spots) on legs and arms, vein swelling, abnormal menustration, uterian fibroids and some of the current problems.  Rx: usually Toridol, nerve blockers and antibiotics. 
 
  P.S. You asked....  Probably forgot a few.

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