For the ones with lung involvement...

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Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 6/19/2007 11:53 AM (GMT -7)   
Quick question....
 
I have been experiencing a burning pain in the bronchial area on and off for the past few weeks.  Its not constant and it comes and goes.  Lately its been about once a day for several hours.  The pain isnt unbearable, but its uncomfortable.  Its NOT related to acid reflux, and I have ruled out any type of anxiety, since my anxiety meds dont phase it...is definitely in the bronchial tubes area.  I was just wondering if this was some type of bronchial inflammation related to the Lupus.  I mentioned it to my primary physician and he wanted to link it to the office move that is going on all around me, and excess dust.  I just dont think thats it.  Does this sound familiar to anyone?
 
Thank you!
 
Victoria
 
Mother of four, full time Systems Analyst
 
Sjogrens, Crohns, suspected Lupus, Pancreatitis Dec. 2005
 
Meds:  Medrol injections; Darvocet as needed, Neurontin 100mg


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/19/2007 1:41 PM (GMT -7)   
Hi Victoria,
I've had pain, but sometimes you can get pain there and it is really esophagitis or stomach or reflux pain. Does taking antacid help? I've got COPD from chronic bronchitis and even at my worst when I was in the hospital with pneumonia with heavy bronchial involvement, I can't remember a pain in my bronchial tubes. Inhalers like albuterol, can irritate your tubes with excessive use my pulmonologist told me. One time, while scrubbing a floor with bleach, I inhaled way too much bleach and even that only burnt my windpipe. Also, the pain would be in your upper chest, and that kind of pain can be serious. I would check the pains out with the doc. It might just be a coincidence that they feel like their bronchial pain.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 6/19/2007 4:18 PM (GMT -7)   

Thank you so much, Marji!  I read about those here who have COPD and it scares the jeebies out of me!!  I feel so much for those people!

Actually, it has progressed today to involve my eyes, nose and throat as well as my chest.  They are all stinging pretty bad, and I have no idea why.  We are in the middle of this huge office move, the entire second floor is being rearranged, subfloors are being exposed, walls are being moved, and there are three of us still working on that floor!  Maybe my doc was right, maybe it has stirred up stuff that has never bothered me before, but now with this Mastocytosis allergy thing, I am so much more sensitive.  I am taking a Zyrtec tonight to see if it helps, and I'm also taking Thursday adn Friday off, hubby is home for four days (can you believe it guys??).  Hopefully everything will settle at work and it wont bother me so bad nexty week.

Blessings!!


 
Victoria
 
Mother of four, full time Systems Analyst
 
Sjogrens, Crohns, suspected Lupus, Pancreatitis Dec. 2005
 
Meds:  Medrol injections; Darvocet as needed, Neurontin 100mg


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/19/2007 11:49 PM (GMT -7)   
Hi Victoria--
Could be that glue from those carpet tiles on the floor. That stuff is really really bad. I couldn't work when they redid our floor. It made my eyes swollen and itch and made me dizzy and all. If you have to, you can stick your head by the sink with the hot water running and steam yourself really well, esp if you put a towel over your head. You still might want to try a gulp of mylanta or something when they hurt to see if the pain isn't refered from your throat. Do you have an inhaler? You may want to get pulmonolgy tests to see if you have asthma. Also, that asthma pill for allergy based asthma works really well, I forget the name. I hope you feel better. My copd isn't that bad, I just get a lack of oxygen that can make me a little loopy esp at night. I'm doing better since they diagnosed my hashimotos hypothyroid and put me on medicine.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 6/21/2007 3:02 AM (GMT -7)   
Hi victoria, I have COPD as well. It sounds like you may have become irritated by the move. You can get those masks that cover your nose and mouth at any drug store. If you have allergies its not a bad idea to have them around any way. When I dust or vacum I usually wear them. There are certain times when my lungs are bad that I can't walk down the isle with cleaning supllies. I can't even walk into some stores. Like where they sell tires and stuff because the rubber irretates my lungs. So having said that from the sounds of things it may have started out as just being sensitive but it sounds like you may have progressed into an infection. I would say mention it to your doctor again. Let him/her know it's spread. Don't take chances with you lungs!
I hope you feel better soon
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 

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