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Jonny
Regular Member


Date Joined Jun 2007
Total Posts : 51
   Posted 6/19/2007 8:44 PM (GMT -7)   
Hi all,
 
1st time here its a good place!  I was diagnosed with lupus/hypothyroid 7 yrs ago and now on for the past 1 1/2 yrs prednisone Im sure alot of you are on it, its "ok" but sometimes have flares Im on 10mg now every other day do you ever get off this? i know my doc said no due to my adrenals failed a while ago.  So I guess Im on it thanks to it tho Iv got now osteoporosis and had a hysto yrs ago on estrogen etc. anyways any thoughts on dealing with prednisone?
 
Thanks Rush

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 6/19/2007 9:15 PM (GMT -7)   
Welcome Rush,

I'm not on prednisone so I don't have any information for you there but most of the members are so I'm sure you will get some information soon. I did want to add my welcome. I know you will like this place, plenty of great people and lots of support.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 6/19/2007 10:41 PM (GMT -7)   
Hi Rush, and welcome to the forum. We need a few more good guys. I've been on prednisone for nearly three years and tolerated it until I was bumped up to 60mg for a couple of months. At that point the side effects took on a life of their own. I have since tapered down to 5mg and am pleased that the side effects have decreased significantly. It's a real rough balancing act trying to get your meds regulated.

I take Actonel once a week to help prevent osteoporois. In fact when I was first given prednisone the doctor also prescribed Actonel and told me how very important it is that I take it faithfully because of the damage prednisone can do to one's bones.

Thanks for joining us!

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


Jonny
Regular Member


Date Joined Jun 2007
Total Posts : 51
   Posted 6/20/2007 4:36 PM (GMT -7)   
Hi ,thanks for getting back to me, for the prednisone no choice have to stay on it due to adrenals etc. but it helps in some ways, and yes I was diagnosed with osteo (Im not surprised) and put on Evista as the others play havoc with my stomach . So prayerfully it will help doc said Iv got most of osteo in the neck and lower spine.  but oh well thanks for welcoming me you guys are all so nice!!  Rush

goldenwings
Regular Member


Date Joined Apr 2007
Total Posts : 81
   Posted 6/20/2007 5:38 PM (GMT -7)   

Hiya Rush and welcome from another newbie,

I have had SLE for 30+ years and have been on steroids since the day of my diagnosis.  They saved my life, I was only a youngster when I was put on them, after serious talks between my parents and the doctors.  My parents knew it was the best chance I had of surviving.  I had lots of problems with the illness at the time.  I had JRA too and was in rather a mess.  I started on huge amounts and then over the years the dosage was upped and then brought down and so on, until I was able to assess my own needs where it was concerned. 

I get to as low a dosage as I can with it so that when I get a bad flare I can up it and really feel the benefit.  I then taper in my own way, the way that is comfortable for me and then I am on an "even keel" as it were.

I am never going to come off steroids, but I didn't have the benefit of all the great medications there are now for lupus back then as a child, so I am content to be treated with steroids, plus other medications.  I can't take NSAID because I have lots of other medical conditions besides SLE that require serious treatments.    

Unfortunately for me, I was never given any treatment until about 2 years ago for osteoporosis prevention.  "Too late" is the cry now, I have it quite bad in my spine.  Just my personal feelings now, but without steroids I know things would have been so very different for me.

Take care.

goldenwings  sad  

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