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petuniablue
Regular Member


Date Joined Jun 2007
Total Posts : 64
   Posted 6/20/2007 4:05 PM (GMT -7)   
I just can't stand the pain much longer and today by husband informed me he is tired of always having to help me....I don't know when they will be able to get me into the rheumatologist for furthur testing.do the meds help the pain I am already on lyrica, tramadol, vicodin, and tegretal, and wellbutrin, I have fallen twice today and I just am totally stressed to the max and to top it all off my husband is having a tumor removed on friday from his prostrate they do not know what it is? it could be cancerous but not prostrate....life has to get better after 3 yrs of pain I need some help.....

felling very desperate

thanks for listening


Sheryl

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/20/2007 4:43 PM (GMT -7)   
Sheryl, my heart goes out to you. Dealing with all of this is so hard, and waiting for a diagnosis can make it even harder to cope with. Ansd then you also have all your other health issues that your are already dealing with on top of a possible lupus diagnosis. Your plate is full, to say the least. I'm also sorry that your husband was not feeling supportive today. I worry a lot about my husband getting sick of me being sick - I know it can be really hard and stressful on our spouses. It also sounds like you both have some added stress with worries about your husband's prostate. I really hope everyting with his appointment turns out okay.

It sound slike your pain is getting pretty out of control. For me, tramadol helps my mild-moderate pain, but I have to use vicodin for the more severe pain. If your current meds aren't relieving your pain, there are a lot of other options that are stronger. I don't know how open your doc is to prescribing pain meds, but it sounds like what you are using isn't effectively controlling your pain anymore. Also if your pain gets too out of control tonight, the ER is always an option. Being in pain and feeling like there is no relief in sight is a horrible feeling.

I'm really sorry about all the stress in your life, which can then cause your physical symptoms to get worse. I know when I am stressed both my pain and fatigue increase.

I really hope you get in to see the rheumatologist soon and that you get some answers and at least a treatment plan for treating your symptoms. It might take a while to get a diagnosis. Hang in there. You are among people who understand how hard this disease can be to deal with both emotionally and physically. We are here for you.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums


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