does anyones lupus attack their bowels??

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bhkhhh
Regular Member


Date Joined Jul 2006
Total Posts : 245
   Posted 6/20/2007 10:22 PM (GMT -7)   
Oh I know this is so gross but I'm in terrible pain! I can't have bowel movement because it feels like I'm all swelled up. Yes I do have internal hemorroids but the last surgeon I seen wanted no part of doing the surgery because he thought I had lupus. He said it was my whole internal wall. If I was to get this fixed would it just come back because of the lupus?? I swear I can't take this much longer. It is so bad that if I can't have bm I'm going to vomit. At this point vomiting may be the easiest. When I do eventually have bm I'll be doctor or hospital bound because I get thombrosed hemi's. I'm sorry this is gross. I'm hoping someone has a sugestion.

PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 6/20/2007 10:48 PM (GMT -7)   
Gosh, bhkhhh, I don't know anything at all about lupus attacking the bowels, but I'd be at my rheumy's door begging to get in and get an answer. I'll never forget the time when my sweet grandmother was hospitalized with heart failure so I took off work and drove several hundred miles to be with her when she died. I knew she had a similar situation as yours and informed the nurse. It turned out that her heart failure was due to severe constipation. They then treated her and by the next morning she was back to normal. This is nothing to fool around with. I've known personally and seen how horribly painful it is and I sincerely hope you can find someone who will help you. And help you soon.

Thinking of you,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 6/21/2007 2:42 AM (GMT -7)   
Hi BHK, I'm with Patty, if you can't get help from one doctor get it from another. This is nuts that they aren't treating you. I know alot of people with lupus have bowel problems but I don't know alot about it. I have problems but I think mine are due to the fact that I take 800 mg. of plaq. every day. If you can't get your doctor to help and your insurance won't let you switch I would suggest urgent care or somthing. Like Patty said it's noit somthing to full with. I know you don't need to hear nightmares but i have a good friend that was having problems like yours. It turned out he has a perferated bowel. He had to have a colonoscopy. He is actually lucky to be alive right now. Please don't wait any longer.

Prayers
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 6/21/2007 5:00 AM (GMT -7)   
bhk, please get another doctor...I went though that last year. My lupus wasn't even an issue...I had both and couldn't go (poop) anymore. they had to remove inners and outers. But, I had them before lupus and lived with the for almost 30 yrs. I felt so much better after the removel of them. The myy came back but it isn't from the lupus. Check with your pcp. best to you
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES, REQUIP RESTLESS LEG SYNDROME, LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 6/21/2007 5:57 AM (GMT -7)   
bhk, Have you tried laxatives yet? I would definitely talk to your doc about taking a strong laxative so you can get some immediate relief. I suffer with constipation a lot with my IBS and when you add the pain killers, it can get worse at times. I occasionally have to take something, usually Dulcoloax but when thats not working I go to something stronger like magnesium citrate laxative liquid. I also have diverticulosis so I cannot fool around with it. Please call your doctor, they should be able to give you options.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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petuniablue
Regular Member


Date Joined Jun 2007
Total Posts : 64
   Posted 6/21/2007 7:07 AM (GMT -7)   
I new to all the lupus stuff but Carol is right abd it is nothing to mess around with if your dr doesn't respond than urgent carte is the next thing///I hope you find a solution and that you feel better soon. I have lots of bowel issues myself and it can be painful I will say a prayer for you...


Sheryl

bhkhhh
Regular Member


Date Joined Jul 2006
Total Posts : 245
   Posted 6/21/2007 7:22 AM (GMT -7)   
Thank you to everyone. I have tried the stool softners & still can't go even though it is soft. I guess I will be calling doc today. The swelling has let up some today but I was so miserable last night I slept on the floor. I'm praying to have bm today!

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 6/21/2007 7:41 AM (GMT -7)   
Bhkhhh, My mom had the same problem and when she went to get an x-ray, they rushed her to the hosp. She had what was called diverticulitis.
I really don't mean to scare you, but not being able to have a BM is serious stuff.
Good luck and please keep us posted

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 6/21/2007 10:18 AM (GMT -7)   
Yes Lupus can attack your bowels, it attacks mine. Lupus can wreck havoc anywhere in our body. However the symptoms are usually diarrhea, nausea & weight loss due to malabsorption. I had diarrhea for years before being dx with lupus and finding a doctor that could catch it and not pass it off on another doctor.

Now from time to time I do suffer with constipation and just this past week I went 8 days without a BM. Thankfully I wasn't in pain and I took the advise of a local compounding pharmacy and started taking Magnesium Citrate. This was after taking a GI suggestion and trying Zelnorm (which didn't work at all) and taking Ducolax. The magnesium has worked well and it's natural. I hope this helps and I hope you find some relief soon! Take care

Here is a website that explains it well:

health.ivillage.com/autoimmune/aulupus/0,,6hdx,00.html
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Magnesium Citrate and magic mouthwash (as needed for mouthsores)


bhkhhh
Regular Member


Date Joined Jul 2006
Total Posts : 245
   Posted 6/21/2007 12:49 PM (GMT -7)   
Stacie, that is exactlly what I do, then I get that under control then it goes to constipation. When I finally am able to go its like I can't get the D to stop. I finally had bm after 4 ducolax & a couple of hemorroid supositories. I have took zelnorm in the past but it seemed to make my hemorroids worse. I'm sure you know that sick I've got to go but nothing comes out after the first bm feeling. My bowels are what clued me into being sick over ayr ago. constipation, diarrhia, weightloss,nausea, dizziness,body weak & stiff, hair loss. I will be looking for some mag-c. I see you take plaq, do you have to space the meds or are they safe to take together? Thank you for the article, that is enough to make me talk to my doc about this problem.

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 6/21/2007 8:13 PM (GMT -7)   
When my rheumy finally discovered lupus attacks my GI tract she put me on Imuran and it worked right away for me, the diarrhea was gone. I was finally able to stop taking Immodium. I went along for a while with normal BM then all the sudden the constipation started. Of course I am on a gluten free diet and don't get a lot of fiber and for a long time wasn't able to tolerate nuts, veggies or fruits but that is getting better but I still find myself needing something to help things along. I am sure it's the lupus doing it.

I've been on Plaq since 2004 and when I started it my 1st rheumy was nice enough to listen to ALL of my complaints which included diarrhea and she started me off slowly, 1/2 tabs every other day. Within a couple of months I worked my way up to the full dose and didn't have any problems with it. There have been some NSAIDS I've not been able to tolerate but I found one that works well for me. I usually take all of my meds at night after dinner.

I sure hope you are feeling better today. Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Magnesium Citrate and magic mouthwash (as needed for mouthsores)

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