What causes the weakness?

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monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 6/21/2007 11:31 AM (GMT -7)   
Does anyone know?
 
Is it inflammation?
 
It makes me crazy. I can only stay standing for a few minutes, if that. sitting up at the pc for a few minutes at a time, then I have to go lay down.
 
my tricep area and trunk feel like I have worked them out with weights til exhaustion.
 
Does anyone else experience this?
 
thanks
 
Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


PattyLatty
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   Posted 6/21/2007 11:54 AM (GMT -7)   
Darlene,

I don't experience what you describe. The extreme fatigue I get feels as though someone put little weights in every cell of my body. My fatigue doesn't manifest in only one part of my body, nor does it feel like I've exercised too hard.

I hope you find out what's going on.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

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dbab
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   Posted 6/21/2007 11:59 AM (GMT -7)   
Darlene,

My fatigue is more like Pat described. I can be fatigued without being tired. I feel like I am dragging myself mostly and its hard just to walk across the room if it gets really bad. Usually when I get fatigued is when my brain fog sets in also.
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emmi
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Date Joined Apr 2005
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   Posted 6/21/2007 9:21 PM (GMT -7)   
Darlene,

I get both what you describe and what Pat and Des describe. The weakness you describe comes and stays for a while (several weeks to months at a time); then it backs off and is not so bad. I cannot figure out what brings it on or what makes it go away.

The fatigue is miserable!!!!! Again, some days I am good for nothing. I'll nap and after the nap I feel better--for about an hour. The fatigue doesn't have anything to do with tired like I remember "tired". That said, I also need tons of sleep. This disease is nuts, but I also have to add that the hashimotos encephalopathy (HE) that I have adds to the fatigue/sleep thing. Come to think of it, muscle weakness can also be from that too. Hmpf, there goes that sharp as a tack brain of mine. Anyway, I certainly didn't answer your question. I do wonder, though, about the myositis diseases--inflamation of the muscles. Plug it into google and you'll get some good info. I think Bill (bisme) says there is a myositis.org site.

Hope it passes soon. It's no fun.

xoxo emmie
</FONT>

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Bsime
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Date Joined Apr 2006
Total Posts : 1299
   Posted 6/22/2007 8:04 AM (GMT -7)   
Muscle weakness and fatigue are separate issues.  Lupus can cause muscle weakness but so can other AI diseases like polymyositis and dermatomyositis.  General fatigue is both a symptom of lupus and a result of becoming more sedentary.  Muscle weakness is an indirect cause of fatigue as your weaker muscles make you work harder to do even simple tasks.
 
Do you have difficulty getting out of chairs?  Difficulty going up stairs?  Raising your hands over your head?  Swallowing problems?  You might want to check out www.myositis.org and the PM/DM forum if you answered yes to the questions.  There are also overlapping connective tissue diseases like MCTD and UCTD that can cause muscle weakness.  Let me know if you need more info. 
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's syndrome.
 
Meds: prednisone (7mg & tapering), 150mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 6/23/2007 12:26 PM (GMT -7)   
Thank you Bill

My Rheumy is going to run some tests. It is a strange feeling, more concentrated in my tricep area and shoulders. Folding clothes has become a nightmare. As has washing my hair. So yes to the lifting arms above head. But it extends into my trunk as well, holding myself up is almost impossible. If I lay back in bed, propped up for 30 minutes or so, I can get up for a little while again. Along with this, my entire body feels heavy, as if it weighed far more than the 130 pounds it is. My face feels heavy and tired.

Its strange, and somedays are much worse than others. I had something similar happen to me about a year ago, and no diagnosis was given. but then I wasnt diagnosed with any autoimmune at all. Now with the Lupus diagnosis, it gives me other places to search for a cause. At that time it was also in the backs of my thighs, but extending throughout whole body.

This recent episode came on abruptly about 5 days ago.

It scares me as I feel trapped, claustrophobic, in my own body.

Rheumy also said she can give me a short burst of prednisone to see if it helps.

It is worse from 11:30am til 8 pm. Odd huh?

Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 6/23/2007 12:27 PM (GMT -7)   

One more comment..

Fatigue vs. Tired vs. weak.

Trying to find the proper term. How would you describe them?

 

darlene


Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


Bsime
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Date Joined Apr 2006
Total Posts : 1299
   Posted 6/23/2007 1:14 PM (GMT -7)   
Strictly non medical definitions.
 
Weakness is due to lack of muscle strength.  Cause of that can be lack of use (atrophy) or disease (like myositis but there are other diseases that weaken muscles).
 
Fatigue and tired are synonyms but I differentiate them.
 
Fatigue is chronic condition that can be caused by many different things: disease, lack of sleep, etc.
 
Tired is usually from overexertion. Get a good nights sleep and the next day you feel OK.  If you are tired all the time it is fatigue.
 
Anyway, that is how I think of the terms.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone (7mg & tapering), 100mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 6/23/2007 1:20 PM (GMT -7)   
monkeyme said...
Thank you Bill

My Rheumy is going to run some tests. It is a strange feeling, more concentrated in my tricep area and shoulders. Folding clothes has become a nightmare. As has washing my hair. So yes to the lifting arms above head. But it extends into my trunk as well, holding myself up is almost impossible. If I lay back in bed, propped up for 30 minutes or so, I can get up for a little while again. Along with this, my entire body feels heavy, as if it weighed far more than the 130 pounds it is. My face feels heavy and tired.

Its strange, and somedays are much worse than others. I had something similar happen to me about a year ago, and no diagnosis was given. but then I wasnt diagnosed with any autoimmune at all. Now with the Lupus diagnosis, it gives me other places to search for a cause. At that time it was also in the backs of my thighs, but extending throughout whole body.

This recent episode came on abruptly about 5 days ago.

It scares me as I feel trapped, claustrophobic, in my own body.

Rheumy also said she can give me a short burst of prednisone to see if it helps.

It is worse from 11:30am til 8 pm. Odd huh?

Darlene

Polymyositis affects the proximal muscles...those coming off your trunk.  Most affected are around the hip girdle (lower back, hips, upper legs) and the shoulders (upper arms, neck shoulders). 
Dermatomyositis can also affect the proximal muscles but hits the distal muscles (those away from the trunk) as well.
I have PM but both proximal and distal muscles were hit hard.
PM can be up and down in a mild or developing case.  Weakness can be slight or almost complete loss of strength like my case.  Fatigue will follow.  Even the smallest task can be excruciatingly exhausting in a severe case.
I would ask your doctor about the possibility of myositis causing your muscle problems.  There are specific diagnoses but usually it takes a muscle biopsy to make sure.
Bill

Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone (7mg & tapering), 100mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 6/23/2007 8:37 PM (GMT -7)   
Ack, I just lost my entire post in some incredible finger fumble on my keyboard. : )

Thank you Bill for your helpful definitions. What I have, I think would be classified as fatigue. Especially since this (sudden) weakness has started. I would classify it as severe.

The information you provided was very helpful, and I will be discussing it all with my Rheumy as soon as the blood work is back. I have not had the opportunity to go to the myositis website, but will do that this evening. I want to see if there would be anything via the bloodwork that would help a diagnosis.

thank you again
Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07

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