It took YEARS. I had all the symptoms of pain, etc. and it took until last September to get the diagnosis. I am still battling with trying to get treatment, i.e. meds, from my rheumy. Up until last September I had gotten to the point where I thought it was all in my head and was about ready to admit myself to a psych ward. I can't begin to count the number of doctors and tests and stuff I had to endure before the diagnosis. Still going thru the process of doctors and stuff but at least know what the diagnosis is now.