I'm just curious about something...how long are your flares?
I refer to flares as the days that I feel really bad. I had one today. My life has been overrun with stress lately, both physical and mental (and the mental stress is both good and bad). Yesterday I was on the go all day and into the evening, and today, I just couldn't get up. I did go to the bathroom and ate something, but for the most part, I was in bed until 5pm today.
I could tell it was coming. I started getting mouth sores, and was achy and tired yesterday, but I kept pressing myself because there was just so much to do. I feel a little better tonight, but if I follow my usual pattern, it'll be another day or two before I feel considerably better.
Still, what I define as "better" now isn't anywhere near the normal I experienced before lupus. So, I'm confused as to how to define a flare. Is it that I've been in a flare since I first got sick, because I just no longer can do all the things I used to? Or is the "flare" the bad days that happen every week or two?
I don't know if that makes sense or not. I guess I've just noticed some people comment that they've been in a flare for years, and I wonder if that means that for X# of years they have felt terrible every single day? Like, can't get out of bed terrible, every day, for years?
Is it wrong for me to refer to only the bad days as a flare?
Wife, writer, artist, mom to 2 wonderful boys
Lupus, arthritis, PCOS, mild depression
Now taking: plaquenil, limbrel, metformin XR, Zoloft, and the occasional percoset