Lupus or crohn's , crohn's or lupus?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 6/22/2007 2:32 PM (GMT -7)   
    I would like to pick a few brains if its ok. 10 years ago my rhuemy gave me the diagnosis of lupus. It was based on  ANA  count being w/ a speckled pattern ( common ) . A variety of other issues. I did not feel as if I " fit" the mold for lupus and refused the plaqunil ( sp?) at the time. I have had sun rashes off and on over 15 years and have had RA that at times is destructive and other times a pain in the butt. I recently became very ill with a LRQ pain that took me 9 months to get a Dr. to listen to and discovered Crohn's disease. The GI tells me my high ANA levels do not reflect IBD but can reflect RA as the disease go hand in hand. My last ANA  count was only 120 with is on the border of equivical and high so not to worry . I thought I would pop over here and get your opinions as a group as I do not know a soul with SLE.

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 6/22/2007 5:00 PM (GMT -7)   
Hi Chaya,

I was a little confused about the ANA titer you mentioned but you must be talking about the ANA Direct test. I think docs are more conservative with diagnosing Lupus now and don't go by just ANA alone. A positive ANA can be seen in RA as well as other connective tissue diseases and even if you have close relatives with AI diseases but are disease free. But your rashes do concern me as sun rashes are a classic Lupus symptom. Have you seen a dermatologist to biopsy these? Sometimes your rashes can test positive for certain antibodies that don't always show up in the blood tests. I would start a list of symptoms so you can track it to bring to your appt as well. I hope you can get some answers soon.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


bhkhhh
Regular Member


Date Joined Jul 2006
Total Posts : 245
   Posted 6/22/2007 5:35 PM (GMT -7)   
Chaya, welcome to the forum. I am in your situation myself. I was in so much pain 1 yr ago that they removed my gallbladder, of course I thought I would be a new person after surgery, sad to say the pain is still there. My dermatologist has took biopsys of a rash that I had for months that was positive for tumid lupus. I do take plaquenil 400mg's. I STILL HAVE NO IDEAL WHAT TUMID LUPUS IS! I have terrible problems with my bowels. I did have colonoscopy done before gall-b surgery & was told I had no more inflamation than what a bad gall-b would cause. I went to pcp today because I have been down the past couple of days because of my bowels & he wants me to have another colonoscopy. He is sending me to a TOP dr. I know he is one of the best because my father had been seeing a dr in this area that was just watching him waist away. By the time I got him into see the new dr he was so ill that there was nothing he could do for him. From the minute he looked at his charts & looked at my dad he knew the other doc had made a devastating mistake. My pcp is not willing to blame lupus for my bowels until he has proof, which I guess is a good thing. I am so tired of being poked & probed. All I wanted was prednisone! Now I have fixed myself! I have thought from the begining that my first colonoscopy was a joke. All I can think now is I may be blessed with lupus & crohn's. I am very curious what you find out .

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 6/22/2007 7:02 PM (GMT -7)   
I was dx with Celiac in 2003 (gluten sensitivity) and despite going on a gluten free diet continued to have bowel problems. Docs kept wanting to pass them off as IBS, but I knew that wasn't it. I was finally dx with Lupus in 2005 and found out what is what was causing my bowel problems as lupus attacks my GI tract. My rheumy put me on Imuran (an immune suppressant drug) and I could tell a difference right away.

I've had 2 colonoscopies over the past 4 years and both were ok, both docs did tell me I had a "loopy / twisted colon". I hope you get some answers soon and begin feeling better!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Magnesium Citrate and magic mouthwash (as needed for mouthsores)


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 6/22/2007 9:13 PM (GMT -7)   
Stacie,

I can be slow and kind of dim witted so bear with me. Do you or don't you have celiac? Lupus affects your GI tract, right? If your colonoscopys are good (hooray!) how did they determine that lupus was the culprit?
Thanks, Stacie.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 6/23/2007 11:48 AM (GMT -7)   
HI Emmi, Yes I have Celiac. My rheumy basically figured out Lupus attacks my GI tract because of my symptoms and not improving 100% on the gluten free diet which is was should happen if celiac is the only problem. She started me on Imuran and because I improved it confirmed her suspicions. Two of my docs says my problems are in my small intestines and there is only one test that will get that far in the digestive tract (camera endoscopy) and it's very hard to get insurance companies to pay for it.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Magnesium Citrate and magic mouthwash (as needed for mouthsores)


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 6/23/2007 9:41 PM (GMT -7)   
Okay, thanks for the information. I'm glad you were finally able to get it all sorted out. I'm sure you went through quite a bit of agony in the meantime. It is really a crime that the insurance that we pay for decides what tests and treatment are and aren't necessary. Grrrrrrr. And an even bigger crime is the fact that we have so many uninsured and underinsured.

Back to the point, thank you for the info, and I am glad you found a way to get yourself under control.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 7:11 AM (GMT -7)
There are a total of 2,732,484 posts in 301,025 threads.
View Active Threads


Who's Online
This forum has 151186 registered members. Please welcome our newest member, debbixij.
251 Guest(s), 4 Registered Member(s) are currently online.  Details
shliv, dacarte3, reminder, Bosco


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer