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Date Joined Apr 2007
Total Posts : 19
Posted 6/27/2007 1:41 PM (GMT -7)
I saw my pulmonologist last Friday (he prescribes my Cellcept to keep my pulmonary vasculitis under control). I told him I have been experiencing fatigue since I started Cellcept last year and that the plaquenil, which my rheumy started me on in February, had not helped with that. (The Plaq is helping with skin and joint problems, though.)
The pulmo. said Cellcept can cause fatigue; I had not heard of that side effect before. I had just considered it part of my increasing lupus symptoms. The pulmo. recommends that I go to Whole Foods and find some natural supplements to boost energy (but no stimulants). I am to make a list of those that interest me, and email that list to him so he can make sure that they would be okay to take with my prescript
I am clueless about
natural supplements. I take a multi-vitamin, calcium and vitamin D, and capsules of vitamin E, flax seed and fish oil every day.
I know all of us suffer from fatigue to some degree or another. Do you take any supplements that are specifically designed to help your energy levels, and have they worked?
Thanks again to everyone for the existence of this board. I am making smarter decisions about
my care due to the wonderful information shared here.
UCTD, Pulmonary Vasculitis, Discoid Lupus, Asthma, Hypothyroidism, Sleep Apnea
Meds: CellCept, Plaquenil, Elidel, Levoxithyroxin, Bactrim, Lamictal, Lexapro, Xanax, Zonalon, Zyrtec, Rhinocort, Prilosec, Advair, Combivent, O2 as needed, CPAP
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Date Joined Jul 2005
Total Posts : 5403
Posted 6/28/2007 8:14 AM (GMT -7)
Laura, I'm sorry to hear about
the fatigue. I don't take Cellcept, but I'm guessing it might be hard to tell the difference sometimes if the fatigue is due to a med or if it's due to the connective tissue disease. I wish I had an easy answer about
the fatigue. Aside from my multivitamin and calcium, I don't take anything. I took fish oil for a while because it's supposed to be good for inflamation, but it didn't st well in my stomach. For me, the thing that has helped my fatigue the most has been prednisone. I still have fatigue but it's more manageable. Hopefully someone who takes cellcept will see your post and be able to give you more info about
I'm glad you have found this forum so helpful. It has been like a lifeline for me since I've gotten sick and I don't know how I would have gotten through some things without the wonderful support of the people here.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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Co-Moderator: Lupus and CFS Forums
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Date Joined Sep 2003
Total Posts : 2889
Posted 6/28/2007 3:42 PM (GMT -7)
I've used both prednisone and provigil for my fatigue. I've not tried any natural supplements to help with my fatigue. I have to say that they provigil worked in the beginning for me pretty well. Now though, it's not working nearly as well. I'm guessing I've become tolerant of the medication.
I hope that you find something that helps with your fatigue. Just remember not to choose anything that will boost your immune system. Wishing you the best and I hope you feel better real soon.
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.
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