Post Edited (okie) : 6/29/2007 3:29:22 AM (GMT-6)
Post Edited (dbab) : 6/29/2007 10:50:04 AM (GMT-6)
Hi Des and Pat, I appreciate your responding and your thoughts and prayers. Pat I have come to the conclusion that it NEVER stops raining in oklahoma! I am very glad that Jason's girlfriend called me and that she was able to get him to go to a doctor. He sounded more upbeat last night. My knees and arms and shoulders are really giving me fits right now. Plus I don't seem to be able to get much sleep. Ok I'll stop whining now. Thanks again for your thoughtful responses
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Hi Hippi, Thank you so much. Your post brought me to tears. You sound like you are going thru the exact same thing. I am so sorry. I can't even stand to take a hower. I'm so pasty white with the bruises and veins everywhere. Like you my self esteem is in the toilet. Thank you for the prayers I really appreciate them. I know Jason does as well. Yeah it's pretty bad about the health care. I don't think we were prepared for the types of injuries that our troops are returning with. Most of the troops that are injured or worse have been by IED's (explosives) which causes brain damage even if you aren't right on top of it. He came home and had lost some of his hearing and suffered from horrible migraines. That was in 04. It's taken this long to come up with the possibility of TBI. I have read articles that up to 83 percent of the troops in combat areas could have some type from mild to severe forms of brain damage. I'm proud of his service and greatful he came back but I want him fixed now! Oh well don't get me started on that one.
Anyway thank you for your response. Hang in there.I have never met you but I know you have a beautiful heart no matter what else is happening with your body. Maybe we should go into the lupus clothing design business. We deserve to have nice things too!
Hi Sue, thank you. I hope things are going a little better in your neck of the woods too. My rash doesn't have anything to do with the sun. In fact it's on places that never get any sun. It's weird some look like really bad vericose veins and mixed in with them are these round purple things that are the size of a silver dollar. They just stay the same or get worse but they never go away. It's really hard to deal with. There are a couple little tiny ones on my face that I don't think anyone but me notices. Yet!
Hope you have a great weekend
love ya carol
Carol, I just wanted to see how you were doing today. This morning I read about all of the rain and flooding that both Oklahoma and Texas are getting. I hope that you aren't in one of the flooded areas. I also read another article today about the problems the service men and women are having after being wounded. You might have read this already, but here's the link. I kept thinking about your son while I was reading it. http://www.msnbc.msn.com/id/19293485/.
I smiled when I read your idea about starting a clothing line to help us lupies feel beautiful despite all the rashes, white skin, and extra pounds. We need something like that. I've been trying to think of clever names you could call the clothing line, but so far my foggy brain can't think of anything.
I do hope you get your skin checked out. I didn't even think about vasculitis - I don't really know anything about it.
I hope today is better than yesterday and maybe you'll see the sun today. Take care
Love and hugs
Hi Donna,Pat,Bab's, Hippi, Lion,BHK, Sheryl,Emmie and Des. I'm sorry I havn't gotten back to you all with a response before now. I'm usually a little better at it than this. It was a worrisome weekend. My son's girlfriend had a wedding to go to in another state so he and I talked alot Every time I saw his name come up on caller I.D. I held my breath. Anyway Michelle is back home now but between this and the rain I hurt so bad. I needto go to the doctor but I knw she is gonna get down on me for not having a new rhuemy. It's not easy to find one that is excepting new patients or takes my insurance. On the good side at least I'm set up with a years supply of plaquenil. But I got to get into a othamologist! These little towns are so hard. Everything was right on the corner in arizona. and they are in a draught! I watched on the weather channel about the 115 degree temps there and it made me home sick LOL. My drive is so down the tubes right now. I can't even deal with doctors. I know it's gonna come back to haunt me. On top of that I need my xanax filled and I put in the request this morning and I havn't heard back yet. I have to have it by the 4th and I know my doctor won't be in that day. I really don't want to run out of xanax right now. Jason seems to be a little better but it's hard to tell from this far away. He's also so closed mouth it's hard to pry anything out of him.
Anyway, I havn't been posting but I have been reading. All of your thoughts and prayers have helped me so much. I just want to thank all of you for your kind messages to me and your support for Jason.
I hope you all have a wonderful July 4th and let someone else do all the work!