I thought about PMDD - it is a possiblility - but then it also seems to co-incide with when I went off Immuran - or at least become worse after that. I will discuss with my Gyn who is male, but a great MD. I sleep great from the time that I get my cycle and up to ovulation with NO problems, it used to be I only had sleeping problems the week before I got my cycle - which I know is pretty normal with PMS. Now it is from when I ovulate to when I start the next cycle.
I have been tracking my clycles, moods, other symptoms for the past 4 cycles - so I do have something to see that is trackable.
As for the bleeding - no, it is NOT the same each month, every other cycle seems to be worse, with the ones that are bad coinciding with the really bad PMS. I also do have endometriosis in some areas.
No, I do not watch TV in the room, we keep nothing electronic in the room except the dim lights by the bed and the clock radio which is across the room. I have tried to rule out the whole sleeping issues by making sure that nothing is disturbing me int he room, but with the sleeping issues only in the "after ovulation" stage it would seem that it has something to do with my hormones/menstrual cycles.
I may talk to my Rheumy first - I have my quartely appt. coming up in another 2 weeks, so I will talk to her and then go from there.
Thanks Des. I moved up my Rheumy appt. to this Friday. So I am going to start with her as I feel this is rooted in the Lupus and go from there. I also have other issues and am due for my quarterly appt. with her anyway, so I will start there and see what she says first.