Found a new Rheumy but I'm hurting right now!

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/9/2007 10:59 AM (GMT -7)   
I can't get in to see him until the second week of oct. He's 75 miles away too. But I have heard lots of good stuff about him. He's the head of the Rheumotology department and he isn't as old as Moses! He's in Kansas but fortunately my insurance doesn't limit me to one area.
Other than that does anyone get pain on the tops of their feet? You know that big bone that's kind of a hump. My right foot is really hurting me and I'm walking with a limp. I have a bottle of vicodin setting at the pharmacy but it's a long walk thru walmart to pick it up. and I'm an accident waiting to happen in those little go carts. I tried to just get by with pred. but no go there. I know I complain alot and I am so sorry. I don't mean to be a whiner. I'm just having a hard time finding alot of possitive stuff to talk about. Maybe/hopfully the new rheumy will get me on some other meds that will give me more symptom free days. I just wish I didn't have to wait so long to get in. They did put me on a waiting list incase something comes up sooner.
Well I guess I better head to walmart
Love to all
carol
 
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 7/9/2007 11:09 AM (GMT -7)   
Carol, how dare you say that you complain alot!!  Sweet woman you need to let us know when you're in pain, venting or just plain grumpy.  And you do not complain alot.  I'm sorry you have to wait so long to see your new rheumy, but hopefully you'll get bumped sooner on the waiting list.  Try not to run over any LOL (little old ladies) in that walmart cart and I hope you're able to get some rest tonight. Love Ya Sis (((Hugs)))
 
Dx: SLE diagnosed in 2005, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/9/2007 12:00 PM (GMT -7)   
Carol,

I'm so sorry that you have to wait so long to see the rheumy. October is a long time. Hopefully they will have a cancellation and are able to squeeze you in much sooner. I hope you are able to get your medication soon. I know how it can be not wanting to have to go get it but I'm sure it will make you feel much better. LOL at Donna about trying not to run anyone over *hehe. I agree with Donna, you are not complaining at all. That's what this site and us are here for. Where else can we go to talk about it where people truly understand. Hopefully getting all of it off your chest will make you feel somewhat better.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 7/9/2007 12:06 PM (GMT -7)   
Hi Carol
It's a long time to wait, but at least there is hope (smile). I hope you can get in sonner. I don't think you should even apologize for your complains. This is what we are here for. Can you contact your PCP and see if he will help you to increase your Pred. 5mg is small dosage. I think 10-15 mg would help and will not bring you any serious sign effect.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/9/2007 12:43 PM (GMT -7)   
Carol,

You don't complain too much Carol. You're a sweet, integral part of this forum and you're not afraid to share your problems and symptoms with us. I wish I could be more open like you. I too am so sorry you have to wait until October to see your new rheumy and I'm so happy he has a good reputation. Anyway, three months gives you time to come up with a nice long list of symptoms and whatever other ammunition you have for him, like a thousand questions.

You mentioned briefly in another post a few days ago that you were experiencing some depression and that's one of the reasons why you hadn't been on too much lately. When you're depressed and feeling low is a good time to get on here and ask for help, sympathy, and friendship. Because, boy oh boy, do we understand. You're always there for the rest of us so don't beat yourself up for asking for support from us.

I also have the kind of foot pain you have, or at least it sounds like what I have. I'd describe mine as being inflamation in the joints and tendons on the tops of my feet and it hurts much like my hands do. Except that I don't have to walk on my hands. I alternate between an ice pack and hot baths for mine. Plus pain killers, which don't do too much good. I'd rather see you drive through wal-mart like a mad woman than have to walk all the way though the huge store hurting.

I care for you Carol, and want to know that you're ok.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/9/2007 1:27 PM (GMT -7)   

Thank You Donna, that is so sweet of you. By the way I got 50 points at walmart. I would have done better but the floor was too slick to get alot of traction. I had to slide into them with the back of the thing. LOL. It's a good thig they were all by the pharmacy so they were able to get help right away! LOL. You know I'd never do that. But you were in my thoughts at the time. Thanks for cheering me up!

Des, yes it does help coming here and getting support. I just wish I could come here and say Hey I had a great day once in awhile. But I really think I will get much more help with this new rheumy. My pcp is not to keen on giving me anything more than plaq and pred. It's giving me somthing to really look forward to. If he doesn't treat me right I am sending in the troops so I hope you are ready when I call LOL.

Omega you said a mouth full. There is hope. That is the best medicine isn't it! Thank you so much for the encouragement. I appreciate you soooooooo much! I can take my pred at my discretion. Mostly because I have so many lung problems it opens my brochial tubes. But like everyone else here I really really hate the stuff! Did I mention I really really hate the stuff? love ya

and my dear sweet Pat! what would I do with out ya? You are always such an encouragement to me. Even knowing all the things you are going thru with you and your hubby you still never stop being there for me. I hope your hubby knows how special you are. The pain in your foot sounds similar. I actually noticed that there is a nerve or somthing that is moving around and swollen on the top of my foot. Never knew it was there before. A friend of mine is bring me over some crutches. The more I walk on it the more it hurts. I hate the idea of crutches though because of the already sore muscles in my arms. So I don't know what would be worse. You'll have to come up we can go whipping around walmart together!

Love all you guys thank you so much!

carol

 

 

 


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


petuniablue
Regular Member


Date Joined Jun 2007
Total Posts : 64
   Posted 7/9/2007 4:53 PM (GMT -7)   
Carol,

I haven't known you long but you are not a complainer and venting is good for the soul...I hope you made it to walmart to get those pain meds at least they should ease your pain some . I am glad you found a new rheumy but October is such a long time to wait...I will keep you in my prayers and you take extra good care of yourself .I agree with everyone. you are always there for us and I know how hard depression can be thats the time you should post reach out because we are all here for each other..I don't know how I found this forum it must of been a gift from God because as I have said before I so look forward to knowing how everyone is doing I wish we all lived close and could get together for coffee or tea.

I am doing better with my diabetes finally...

So Carol, you remember we are always here and that we love you...


Love, Sheryl
Bi-polar Depressive, PTSD, SAD, Sleep Apnea ,Diabetes, Diabetic Neuropathy, possible Lupus or something


Meds:

Tegretal 200mg ( 4 tabs a day ), Wellbutrin XL 300mg, Clonazepam 2.5mg, Lyrica 50mg ( 2 3 times a day), , Simvastin 20mg, Metformin 1000mg( 2 times a day) Tramadol 50mg ( 2-3 every 6 hours for pain) Hydrocodone/Apap 7.5 /325 mg( 1 every 6 hours ), Ibupofren 800mg every 6 hrs, Lantus Insulin 80 units at bedtime


bhkhhh
Regular Member


Date Joined Jul 2006
Total Posts : 245
   Posted 7/9/2007 6:50 PM (GMT -7)   
Carol, If you think you are a whiner I don't know what they would call me! I have not been with the forum for long & already you have helped me alot. I have not had to ask all the questions that I've wanted to because others have already asked. It means the world to me to be able to come to this forum where there is no one judging one another. You are very special & strong lady to us. I hope they can move your appt up for you.

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/9/2007 7:43 PM (GMT -7)   

Hi Sheryl and BHK, I really appreciate you ladies. You make me feel so much better about myself. I don't know what I'd do without ya.

Sheryl Yes I did get my pain meds. But you should have seen me tonight. I got caught outside in a rain storm. The lightening was booming all around. I was running for the truck on one foot. It was pathetic! LOL. I just want you to know that the your prayers mean so much to me. I truly believe that's what gets me thru. I'm glad to hear you are getting a handle on your diebeties. I have a friend that has it. She was over the other night. I never have sugar in my house so I had to mix up some salad dressing/mayonaise type stuff and a few other things I had handy. It was discussing watching your eat it. But it worked. I noticed you have PTSD I won't ask you what from but I have what is called secondary PTSD that I got from my husband. He was 100% disabled from vietnam with it. I just 10 feet in the air when the phone rings or someone drops something or I get so anxious it's just awful. If you ever want to talk feel free to email me.

BHK, one of these days your gonna have to tell me what that stands for! Just kidding but everytime I write BHK I shake my head LOL. I have never thought of you as being a whiny person. and about the being strong NOT. Just ask my dog. I mope around here all the time. He just comes over and lays his head on my lap wanting me to play with him. Boy I'm glad he's not my child. I'd feel just aweful. It's people out there  with the families that are strong to me. It doesn't take much to do whatever I want when ever I want. Well I do force myself to wash the dishes or do my laundry once a week weather I need it or not. Oh my goodness i'm depressing myself again. I am such a slug! LOL. Anyway you guys have just made my day! I just love ya all to death. I got a plaque in the mail from a friend of mine the other day. It said A girlfriend is a sister you choose. I have a whole family here

You two take care of yourselfs someone in oklahoma loves ya!

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/10/2007 11:29 AM (GMT -7)   
Carol, first of all, I agree with all the others that you are definitely not a whiner!! You bring so much to this forum, it just wouldn't be the same without you. You are a very easy person to care about and I know that you are very dear to a lot of us here.

I got quite a visual of you running to your truck in the storm on one foot. We'd make a great pair becaue I have some pretty bad foot pain too. At least you got your meds and hopefully they are giving you some relief.

Hopefully the long wait for your rheumy means that he's a good one - they can't get much worse than your old fosilized rheumy you saw before. I am sorry you have to wait though and I hope something will open up for you.

Don't ever hesitate to post if you are going through rough times. I think you give to others here much more than you realize and we feel good about being here for you during the bad times. You will be in my prayers.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 7/10/2007 12:56 PM (GMT -7)   
Nope, not a whiner. Sorry, just human. Is it possibly a bone problem? Can you see an orthopedic in the interim? Yes, it sounds painful and not the kind I want hanging around for 3 months or so. Who is your osteo doctor? Maybe you can run the symptoms by him/her and see what they say. Hard to say with the CREST too. Those hardened ligaments and contractures feel like bones sometimes and hurt like the dickens - had those in my fingers, top of my feet and between my neck/shoulder before. Speaking of bones, any possibility of a bone fracture? Am I driving you nuts yet?

Sometimes if you call the Rheumy and ask if you can call periodically to check and see if there are any cancellations, they may be able to put you in sooner.

With those ligament things, the doctor wanted me to take cellcept, but I ended up taking a strong dose of Motrin. It took a couple of weeks to clear up. If it is bones though then you may want a bone scan done. Not a bad idea to keep an eye on the osteo. Hope it all works out one way or another. You are a sweet person - whining or not :). P.s. I never heard you whine yet, but you have consoled me on a few of mine - yours are long over due, so go for it. Please let me know how you make out , my shoulder is also here for you too - HUGS & Best Wishes - Kristin
 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/11/2007 3:21 AM (GMT -7)   

Hi Kristen and Hippi, sorry I didn't respond yesterday I was kind of out of it from the pain meds. I hadn't taken any in awhile and I wasn't used to it.

Kristen I'll try to answer your questions and no you weren't driving me crazy LOL. tongue . But you must be fun at parties!

Ok my PCP is my osteo because she is a D.O. as well. I just had my bone density scan done 2 months ago. I'm still about the same as I was. My doctor actual said that we fracture our bones every time we step on them but they are just microscopic fractures. Weird huh? but no this feels my like a nerve/legiment or whatever. Painpills aren't doing anything but giving me a headache and making me depressed. I know that pain in the hands/knukles. feels like bone spurs! Yowza! Thank you for answering my post. You  all have helped me more than you can imagine.

Hippi, You're right hippi about the fossilized rheumy. You know I never got a bill from him. I think he may have died of old age or somthing! Either that or he forgot. I'm sorry you are having foot problems. Didn't you mention months ago that you bought a cane? I think that was right after I joined. Boy if that was you I would be in a state of shock since I can't rember what happened 5 mins ago. LOL. Thank you for your prayers they continue to give me strength.

Lots of love to you both

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/11/2007 7:06 AM (GMT -7)   
Carol, no cane for me ...yet. The visual of me with a cane gave me a good chuckle though - I'd most likely trip over it and fall flat on my face.

I hope the pain meds have helped some. Take good care of yourself.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/11/2007 11:00 AM (GMT -7)   

Hi hippi I should have known I remembered it wrong. LOL. For goodness sakes don't get a cane than! Maybe we can steal ya one of those carts from walmart! yeah

 

love ya

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 

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