New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/9/2007 1:37 PM (GMT -7)   
Hi hun, I have been thinking about ya and I don't know if I missed the latest update or not. What ever happened about if you were going to need a DnC? Are you still having problems? You don't talk about your problems on here very much so I wasn't sure if you were still suffering or if things were straightening out. I don't know how old you are so I was wondering if it had to do with a change of life or something else.  
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/9/2007 2:15 PM (GMT -7)   
Since you asked so nicely -- here is the list I presented to both my rheumy and my PCP the last week of June:

Muscle fatigue – all large muscles
Shortness of breath
Chest pain – sternum
Full body – swollen/puffy/water retention?
Must prop up neck at end of day, can’t hold up
Hair texture/hair loss changes
Period: Mar 28-May 17 (50 days); (12 day break); May 30–June 14 (16 days)


All of the resulting blood tests and pap smear turned out fine, as did a stress test that was prescribed. It's time for me to schedule my regular mammogram and bone density tests, but no reason to expect anything odd there.

It was recommended that I see a gyn specialist (one I saw 2 yrs ago for basically same thing, where nothing odd was found after lots of tests, time, and $$). I've since had a regular period of July 3-7th (5 days) that occurred 2.5 wks after the last one. If the next one is normal I'm going to forget it, otherwise I will see the fancy gyn.

I asked the rheumy if I could decrease the Cellcept since I thought it might be part of the water retention problem, he said ok so it's changed from 3000mg daily to 2000mg daily (2 x 500mg in AM & PM). I was already ramping down the Prednisone from 15mg, and was getting bored with him wanting to do 1 mg every 3 wks -- I went to 10 mg.

Am also trying to start walking, however slowly, awkwardly, or short the walks may be. Circulation is supposed to help the bloat, since they don't think a diuretic is warranted. It turns out other things that I might have been doing that contribute to edema are not eating enough and/or not eating enough protein. So I am also addressing those issues. If the bloat remains, the only other possibility is hormones, which will also lead me back to the fancy gyn.

In just 5 days of watching food and walking about an hour daily (not far, slow, but moving) the edema has decreased. (It's also been 11 days of changed meds.) Other stuff seems to be clearing up some also... either stuff has helped or some kind of flare was going on.

In any case, I'm fine. Thanks for checking up on me, I can be fairly closed-mouthed!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/9/2007 2:18 PM (GMT -7)   
PS. I'm 48.5 years old. scool

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/9/2007 2:42 PM (GMT -7)   
Thanks for letting me in on a glimpse of your life. I'm glad to hear that you might not have to see a gyn, I know even with my insurance I have enough bills to choke a horse. Your still a spring chicken. (love the sunglasses) Did they give you a reason for the swore muscles. Some people here have said those are symptoms of fibro. I get those same pains and cramps in my large muscles when my breathing is real bad. It has to do with what oxygen I get goes to protecting your vital organs and bypasses the muscles and other extremeities. Summer time is real bad for me with swelling. I seem to retain a lot of water. I'm glad to hear that whatever you are doing is helping some. I have a pillow with little tiny styofoam balls in it that I can wrap how ever I need it that seems to help my neck sometimes.
You can be fairly closed mouth is an understatment! Somtimes I feel like I need to get out the crowbar! LOL.

Take care
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/12/2007 10:06 AM (GMT -7)   
Hi Lynnwood,
Hope everything goes ok at the doctors and that things straighten out with you. I can definitely sympathize on the monthly, or should I say biweekly. I ended up with polycystic ovary and endometriosis, which I didn't know but it can go all over your body. Weird huh? Anyway. I hope you feel better and get good answers and that this stuff clears up.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 7:12 AM (GMT -7)
There are a total of 2,732,484 posts in 301,025 threads.
View Active Threads


Who's Online
This forum has 151186 registered members. Please welcome our newest member, debbixij.
271 Guest(s), 2 Registered Member(s) are currently online.  Details
reminder, Bosco


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer