update on me/situation etc

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Leta
Veteran Member


Date Joined Aug 2005
Total Posts : 590
   Posted 7/10/2007 8:47 PM (GMT -7)   
Hi everyone,

Well my hubby moved to Phoenix, so I am more on my own than ever. Also alot is going on and I am on retreat. I don't get much break time from retreat but I am posting to vent about all going on. I have to get ultrasound of abdomen Thursday for gallbladder, spleen, pancreas and liver.

7/18
Endocrinologist -vitamin D deficiency for sure, and he is checking for other things
Hematologist/Oncologist-Porphyria, anemia in liver ferritin,

7/19
Primary Care-make sure pain levels are ok, etc

7/24
Cardiologist-follow up with heart murmur, history of sinus tachycardia, adrenaline levels, etc

7/25
Allergy/Asthma-airborne reaction to shrimp, need epi-pen now and recheck for allergies to food and environmental.

Awaiting to hear from neuro to check for random muscle contractions/spasms to recheck for ms, if dystonia, migraines, and neuropathy.

I think that covers it. I am glad I am on retreat this week because next few weeks will be rough. I have managed some fun/relaxing time in there somewhere, along with a concert.
I am sure to be worst from testing and so sick of all this but what can you do but go to get better.

I know others have mentioned passing me around for $$$$ but I know with all I have, they also try not to run tests if not needed because of how bad it does affect me. I am just sick of this and I hope they find the rest of what is needed to help me move forward with remission. Thanks for listening, sorry to complain. Back off to meditation, break is over.

I hope you all feel better soon.

Katrinasmom
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescription 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/11/2007 3:31 AM (GMT -7)   
((((((((Leta)))))))))), bless your heart what an aweful time you are going through. I'm glad you are getting to have some self reflextion time right now. It may help keep you balanced during these tests. Even though the tests can be rough if they help it's a good thing. If they don't it makes me want to pull what's left of my hair out. It's to bad you can have another vacation after they are done with all the tests. I'm not sure what is going on with you and hubby but it doesn't sound like a good thing. I just had the same ultra sound done. other than the vanilla barium it wasn't too bad of test.
Good luck try to pace yourself and try not to get to stressed. Remember to breath once and awhile. Let us know how things are going with the test.
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/11/2007 4:27 AM (GMT -7)   
Hi Leta--
Hope you feel better. My air conditioner broke and my pc tends to overheat (Ineed to take it in) and I don' have money for either. It's just one thing after another. Once we think we have something licked and we can catch up, something else just breaks. Its awful. I just had to save up and put all my savings into one of my cars, now this. Oh well. I hope you get figured out soon. My docs run tests and never get them, so I have to drive and deliver them (45 minutes from my house!) and then they never look at them. Everytime I think I know, the tests don't come out right. That airborne allergy to shrimp sounds awful.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/11/2007 7:17 AM (GMT -7)   
Leta, you sure have a lot on your plate. I really hope all of the tests go okay for you and that somehow you get some rest. Update us on what you find out from all of your tests.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/11/2007 9:12 AM (GMT -7)   
Leta, Sounds like you are going to be quite a busy woman. Make sure you take breaks in between all of this. Let us know how it goes.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/11/2007 1:44 PM (GMT -7)   
Leta,

I hope you haven't scheduled more than your body can handle, and hope you manage to get through the next few weeks. Hopefully you'll get some answers from your doctors. Let us know how the ultrasound and the rest of your tests go. And do try to get some rest. I'll be thinking of you.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 7/12/2007 6:20 AM (GMT -7)   
Wow Leta!  You have more appts than I do... and I thought it couldn't be done.  I sure hope these docs are able to help you and get you on the road to remission.  Try to get some rest in between all this.  (((Hugs))) 
Dx: SLE diagnosed in 2005, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/12/2007 1:21 PM (GMT -7)   
Hi Leta--
Just wondering how you are doing. I've been out of sorts, having trouble focusing, hence my last post. I hope you are feeling better and that you get the answers you need. I'm still having trouble with the sun, and this time the pharmacist stuck a label about sunsensitivity on the protopic ointment I've been using. I'm in a lot of pain, I took to trying to swim everyday outside a little and its caught up with me. I think of you alot and am so grateful for all the help you've given me. I really hope everything checks out good and they get you the treatment and stuff to make your life good and less painful. The shrimp thing really gets me because where I live, like 20 miles from the ocean, smells from time to time from the shrimp. I can't imagine what it would do to you if you had an allergy. Take care and let us know what happens.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 7/12/2007 9:08 PM (GMT -7)   
Leta,
  (((Hugs))) I'm sorry your going through all this. Hopefully, once its all done and they get the results back they will know what direction to go for better treatment so you will start to feel better. Hang in there and rest some. You are in my thoughts and prayers.
                                                       Love and hugs, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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