Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Co-Moderator: Lupus and CFS Forums
Hi...first visit to this site. I have sle ....also lupus nephritis (proliferative glomuero..something..something!!!) I have suffer off and on with large amounts of blood and spilling protien in urine. Mine is due to extensive kidney damage from lupus.
I've had several biopsies and have to do 24 hour urines every so often to calculate the amounts of blood and protien.
I've also had several joint replacements due to damage from prednisone use. Anyone else had to go through several replacements? I've had 8 hips and 5 wrist and so far have not anyone who has had to go through so many and am wondering .....what the heck happened with me and the prednisone!!!
I am now 48 and got my confirmed diagnosis at age 15.
thanks for reading this and any info would be good!!!