Weird new symptoms

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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/13/2007 8:22 AM (GMT -7)   
Let me start off with the good news that I have been feeling really good this week.  The kind of good that makes you feel nervous because you're not sure how long it's going to last and you don't want it to go away.  I have actually exercised most days this week, which is a first for me in at least a year or more.
 
I have two new symptoms though that I've never had and wondered if anyone has had these and know what they might be.  The first is these very red lines that appear almost like veins, but they aren't veins.  I mostly get them along my breasts and up into my chest (they aren't stretch marks either).  First they were on my left side, then yesterday on my right breast I had several areas that looked like actual burns like I had been branded by something that left red, raised shapes.  Then from the red raised "burns" I had the weird looking red vein pattern that went up and along the inside of my arm.  The weird thing is that they disappear after a few days and then come back in another area.
 
The other new symptom is some tremors I'm having in my hands.  It doesn't happen all the time and mostly happens when I've been doing a lot with my hands such as typing or scrap booking, but it's not the kind of shaking you get from fatigue.  When I get the tremors, I have to stop what I am doing and place my hands somewhere solid to get the tremors to stop.  I'm wondering if it might be a side effect from the amitriptyline since I started that not too long ago.  I'm afraid to look because I don't want to have to stop taking it.  It has helped me sleep so well which I think has been helping me feel better.
 
I'm at a loss with these new weird symptoms, especially since I've been feeling good.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 7/13/2007 8:58 AM (GMT -7)   
Hello Hippimom!

I am SO happy to hear that you have been feeling better! I am sure the Elavil is helping your body get the restorative sleep through all the cycles that you need.

I took a peek at the side effects and yes, muscle tremor or uncontrollable movement is in there. It does say if you experience this to call your physician. I am not sure but it doesn't seem like one of the side effects that would cause someone to discontinue unless it got very bad.

So.. call your doc and let him know.

As for the red marks.. I don't know about that one! I think you should let your physician know about about both of them.

On the up side.. it looks like you might be on the right track for finding something that is going to help you!

KEEP FEELING GOOD! : )

Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


bhkhhh
Regular Member


Date Joined Jul 2006
Total Posts : 245
   Posted 7/13/2007 9:03 AM (GMT -7)   
Hi Hippi, I think I get the marks you are talking about, they look almost like avein pattern & almost like stretch marks on my breasts & stomach. Like you said, they are usually there for a few days then gone. Have you ever checked your blood sugar when you have these tremors? ( just a thought ) When I am in the middle of a flair I have to keep close eye on my blood sugars. I am hypoglcemic & never even realised it for months on end. I found out one day when I took a ambulance ride! I know the last thing you want is another problem but it might be worth checking into.

smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 7/13/2007 1:39 PM (GMT -7)   
Hi Hippi, awesome news that you are feeling some relief this week, that is awesome!! I hope it continues for you for longer then a week!!
I don't know about the red lines you are talking about, I hope someone else here can help you figure it out.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/13/2007 4:48 PM (GMT -7)   
Thanks for the replies. I think if the red rash or lines come back I'll somehow try to get a picture of them. The ones I had yesterday are already fading. As far as the tremors go, I had never thought about checking blood sugar, but that's a good idea. I had them again this morning while I was doing some scrap book stuff with my daughter. I'm going to write down these symptoms so I don't forget to tell my rheumy when I see him again. If the tremors get any worse, I guess I'll need to see someone before my rheumy appointment next month.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/13/2007 7:46 PM (GMT -7)   
Hi hippi--
I had a drug rash that presented itself like that, red lines on my chest and under my arms on the sides of my breasts. Eventually it started to scale and peel. You may want to have a doc see it because that bad bad scary allergic rash (I forget the name, but it can be serious) starts like that--oh Stevens-Johnson rash starts like that. You might check your elavil and other stuff. Tremors can be caused by tricyclics. Maybe a lower dose might help. I would call the doc that gave you the elevil or the pharmacist and see what they say, don't wait for it to come back. Some of those old medicines can cause parkinsons with time and that is not another thing to add to problems. Thats why I had to go off my, I was on for 15 years and was developing tremors. Some I can't take at all because they cause tremors right away. It might be a vascular problem too, so its worth having them look at it. I'm glad your feeling so much better and I'm sorry this weird new thing has developed. Again, might be liver-- with all the meds we are on it usually is it seems. Maybe you are getting some inflammation from a med and it is raising your blood pressure a little. I hope you feel better soon and don't forget to check with the doc right away. You might be able to avoid becoming allergic if you taper down to a half dose. I onlly took 1mg of imipramine and with my liver, it was like being on 25mg. Take care and let us know. Also, you might want to question the combination of the neurontin with the elavil, you may not need the neurontin if the other is working well.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/13/2007 7:51 PM (GMT -7)   
I have the hand shakes sometimes...I'm not sure they correlated to any of my meds or to a flare -- well, maybe to being tired, as if they come it's usually in the late afternoon, just before dinnertime. SO I guess that could be either tired or blood sugar related -- or maybe to to much prednisone and too little food?

Anyway, the rheumy has never paid any special attention to the tremors or whatever they are, except maybe to adjust pred by a mg or 2.

Sometimes they come if I'm trying to be precise about something -- like calligraphy and the like.....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/14/2007 8:10 AM (GMT -7)   
Lynnwood, my tremors are also worse when I'm trying to do something precise, it's kind of weird. Also when I type, my fingers don't want to work right. I go back and proof what I have typed and there are way more errors than I used to make Marji, I'll look into the side effects of amitriptyline more and talk to my doc because I don't want to end up with lasting side effects. I just worry that a lower dose won't be as effective. The dose I'm on right now seems just about right. It can still be a bit of a struggle to get to sleep, but usually once I'm asleep, I sleep pretty well. I remember back when docs were trying different SSRIs with me (which I eneded up having terrible reactions to all of them) I got bad tremors with Zoloft.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/14/2007 11:27 PM (GMT -7)   
Hippi, you must be so disappointed to even contemplate having to decrease or stop your amitriptyline. I sure think you're on the right track and checking with your doc about side-effects is a good place to start. I've never seen the kind of rash you describe. The only skin rash on my chest and my mother's was lupus sores. I don't have them anymore but when I did they seemed to last for more than a day or two.

Actually, when I think about it, I believe I would rather see the rash and the tremor be a side effect as opposed to the disease process. I hope that if it is, your doc can find another drug that can help as well as this one has been helping you.

I hope you're having a great weekend and I'm so very glad that you're feeling better! It is about time!

Scrapbooking with your little girl sounds like a fun way to spend a Saturday morning. Keep up the good work and I look forward to hearing from you again telling us how well you're feeling.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin

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