Lupus symptoms

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petuniablue
Regular Member


Date Joined Jun 2007
Total Posts : 64
   Posted 7/15/2007 1:09 AM (GMT -7)   
I have been told some people never have symptoms is this true? how did you get diagnosed? if you don't mind sharing..

.I go to my 1st rheumy appt July 25 I am very nervous and scared.....I already have diabetic neuropathy and some days I can barely move ...My fear is I will get worse and maybe be in a wheelchair sooner that I ever dreamed. I have a lot of headaches, sore muscles and tons of joint pain, stiff hands in the am, shoulder pain turning over at night is a major chore,
IBS flair ups often, the list goes on and on and I am so scared and depressed sometimes I cry all day..my husband doesn't know how to cope and I don't know how to cope with his alcoholism he just went 45 days no drinking but this week he slipped and has been drinking for 4 days and it scares me for many reasons he is a heart patient.....and this stress makes my symptoms flair up more than usual....


Help Any suggestions


Love from Texas,

Sheryl
Bi-polar Depressive, PTSD, SAD, Sleep Apnea ,Diabetes, Diabetic Neuropathy, possible Lupus or something


Meds:

Tegretal 200mg ( 4 tabs a day ), Wellbutrin XL 300mg, Clonazepam 2.5mg, Lyrica 50mg ( 2 3 times a day), , Simvastin 20mg, Metformin 1000mg( 2 times a day) Tramadol 50mg ( 2-3 every 6 hours for pain) Hydrocodone/Apap 7.5 /325 mg( 1 every 6 hours ), Ibupofren 800mg every 6 hrs, Lantus Insulin 80 units at bedtime


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/15/2007 7:14 AM (GMT -7)   
Sheryl, I haven't heard of too many people who didn't have any lupus symptoms before being diagnosed. Usually there is something that brings a person to the doc who then will run some labs. From what I've heard, lupus kidney involvement can often be pretty silent - there is usually no pain when lupus affects the kidneys.

I really hope your rheumy appointment goes well and that you get a great rheumy the first time around. Try not to get too discouraged if you don't get a diagnosis right away - sometimes it takes a while. For some people it doesn't take too long, but for others it can take several years. It can be a long and frustrating process, but hopefully you'll get some answers fairly soon.

I'm sorry to hear that your husband had a relapse - hopefully he'll get right back on track - does he have a support system like AA to help him get back on track? You are right that lots of stress can make symptoms flair, so I imagine all of this is causing your symptoms to flare up.

Hang in there and know that we are here for you. Gentle ((((hugs))))

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/15/2007 8:56 AM (GMT -7)   
Sheryl,

I'm so sorry you're going through such a difficult time. Dealing with your health is hard enough, and for your hubby to have relapsed makes things doubly difficult. I read in another post that you have prepared a journal to show your rheumy when you go on the 25th. That's such a great idea and will show your rheumy that you're prepared to work hard to help him figure out what's wrong with you and give you a diagnosis. Ten days may seem like an eternity to wait, but it will be here before you know it. I'm happy you have joined our little family here. Take care and let us help whenever we can.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 7/15/2007 12:35 PM (GMT -7)   

Hi Sheryl,

   I'm sorry to hear your going through so much right now. I hope your appt goes well on the 25th and you will be getting more definate answers soon. I think most of us can understand the fear of the unknown....(((Hugs))). I wish you all the best with the new doctor and hope things change with your husband soon. Hang in there and keep us updated. You both will be in my thoughts and prayers.

                                                                Babs


 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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