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funkymonkey
New Member


Date Joined Jul 2007
Total Posts : 2
   Posted 7/16/2007 5:04 AM (GMT -7)   
Hello I am new to this website or anyother website like this. I am hoping to find a place that understands me and my illnesses. I have Lupus, Bipolar, Ra, and blood clotting problems. Of course my curse is, I look healthy and well. My husband and 5year old understand but sometimes forget along with everyone else around me. Right now I have a summer cold and in turn doing everything to prevent a flare up from it. Does anyone have suggestions on how to handle a cold with lupus, alot of otc med.'s I am afraid to take because of my prescription drugs. Thank you!

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/16/2007 6:23 AM (GMT -7)   
Hi funkeymonkey and welcome.  I'm sorry to hear about your health problems.  Any one of those would be enough to deal with by itself.  I think you have hit on one of the most difficult things about this disease - that it is pretty much invisible.  People can't just look at us and tell that we are sick and that we suffer from pain and fatigue everyday.
 
To help others understand what it is like to live with lupus everyday, there is a great website called: http://butyoudontlooksick.com  In that website click on the Spoon Theory.  The woman who wrote it has lupus and she does an amazing job explaining to healthy people what it is like to live with lupus.  I printed out several copies and gave them to family and very close friends.
 
I don't really have a lot of advice about treating your cold.  Your pharmacist could tell you if any OTC treatments would interfere with your prescription meds.
 
I'm really glad you found this site - we have a great group of people here and we are a very supportive group.  Feel free to ask any questions or vent if you are having a rough day.
 
Take care and I'm glad you joined us.
 
 
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/16/2007 7:24 AM (GMT -7)   
Hi funkymonkey.

I also wanted to welcome you here to Healing Well :-)

You are right about finding a place where people understand you. It is very important to be able to talk to people that know what you go through daily. My family also tends to forget a lot because I don't look sick and usually remember when I am pulling out my huge pill case. I'm sorry that you have a cold. Please make sure that you take really good care of yourself since everyday common illnesses can affect us so much worse than healthy people. Hippi gave you a great site to visit to read about the Spoon Theory... its a real eye opener for family members. I remember when my husband read it, he was so quiet and after he read it gave me a very loving hug.

I hope you keep posting and we are so exciting to have you as our new family addition.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/16/2007 7:24 AM (GMT -7)   
You can check interactions between your meds and OTC meds online at the last link(blue) in my signature, named Drug Interactions. I check it whenever I have questions about taking something, and it always seems to have an answer!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/16/2007 8:10 AM (GMT -7)   
Hi funkymonkey,

I also want to welcome you to the forum. You are right about this being a place where other people will understand you and your illnesses. Most of us struggle with the same issues you touched on and this is a place where we can come and ask questions, vent, complain, share, and most importantly, get lots of wonderful support and understanding.

You already know that you need more rest than healthy people, and when you have a cold that becomes even more important. In my case, I have not found over-the-counter cold or flu meds to be a problem, but I usually call my doctor and ask what I should take.

I look forward to hearing from you again and am so glad you joined this wonderful little family.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 7/16/2007 12:01 PM (GMT -7)   
Hi funkymonkey - love your name. Welcome. Great people on this site, as you'll soon see. Very supportive and helpful. It has been a real blessing for me.

The only thing I do is try to rest a lot with a cold. Most of the time I am successful. If it gets worse or I develop new symptoms, I go straight to the doctors. I believe not much else to do other than what I would normally do if I didn't have Lupus. I get in trouble when I don't rest enough though. The average cold lasts a lot longer for me.

Hope you feel better, please let us know - Kristin
 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 

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