Almost, but not quite, dizzy?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/17/2007 2:53 PM (GMT -7)   
Starting this morning before I got out of bed, I'm getting strange spots of not-quite-dizziness. Like the world spins, but not all the way around.

I first noticed when I turned over in bed and the room did an extra 1/2 twist. It's come & gone like that all day.

Has anyone else ever noticed this? My guess is that my lupus has decided to cause a temporary inflammation of the inner ear or something, and that it will be gone tomorrow or soon thereafter. Meanwhile, it's crazy, and even typing this is causing a like 1/4 spin.

Very strange feeling, I assure you, and I really, really feel bad for those people afflicted with chronic vertigo!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/17/2007 3:35 PM (GMT -7)   
Lynnwood,

15 years or so ago I experienced vertigo for a few hours and have honestly never felt anything so bad in all my life, so I join you in sharing your sympathy for people afflicted with chronic vertigo.

From time to time I experience something that's hard to describe, but it's a brief feeling of dizziness that goes away almost as quickly as it comes on. To me there's a difference between dizzyness and vertigo, and yours sounds more like a mild case of vertigo. Have you added a new prescription that lists this as a side-effect, or have you had a virus?

If you are also feeling nausea along with the spinning sensation, consider taking emetrol to attempt to control the nausea.

I hope it goes away on it's own! I'll certainly be thinking of you and hope you'll let us know if it doesn't go away real soon.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/17/2007 3:42 PM (GMT -7)   
Hi Lynnwood, I have know idea about the vertigo but my mom started going through the same thing. She would notice just before she got out of bed. She finally went to the doctor and he said she had high blood pressure. I guess it could be a symptom for a lot of things. I hope it goes away soon.
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1298
   Posted 7/17/2007 7:34 PM (GMT -7)   
Sounds like vertigo.  It can be caused by a number of things but some meds can cause it or an inner ear infection.  Mine was an infection and once treated it went away and never came back.
 
I would not ignore it and consult your doc.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone (7mg & tapering), 100mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/17/2007 8:54 PM (GMT -7)   
Possibly an inner ear problem or circulation problem. I get silent migraines and find out that I have them usually when the room starts spinning. I hope that it was just a one time fluke for you and that you don't have them reoccur, I know usually when it starts for me, I can expect them on and off for a few days or maybe weeks.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/18/2007 2:24 AM (GMT -7)   
I know there are a multitude of illnesses & conditions, including many medication side effects, that can cause dizziness. Maybe I should rephrase my question:

Has anyone experienced dizziness that has been attributed to lupus or to something caused by lupus?

Sorry if I sound short, the room is slowly rotating....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 7/18/2007 5:36 AM (GMT -7)   
Lynn, I had my first bout of Vertigo last Jan (07), It lasted 3 days. It was severe though, like spinning out of control and throwing up. Crazy!
I went to the ER and a Neuro for an MRI (just to be save) and they found nothing.
Then started getting bouts of dizziness on and off since.
I know what you mean, like you spin, but not enough to need to sit and your eyes cannot focus all the way.
I went to see an ENT when the plaq gave me the ringing in my ears and when I told him about the vertigo from Jan and the constant dizzy spells, he said it wasn't an infection. If it was an infection, he said I would have had a fever and really falling over dizzy.
This ENT's daughter has lupus dizzy spells. He thinks it's the plaq and or the lupus. I say just the lupus cause I had the dizzies before and after I took the plaq.
Not much more I can tell you. Seems like every little thing we get is a little mystery.
I have started to clean out my ears and doing sinus irrigations with saline and oil of oregano and this has helped me tons.

Here is a web site I found at the time I had vertigo. Hope this help
http://www.pneuro.com/publications/dizzy/


Good luck

Jen

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/18/2007 10:26 AM (GMT -7)   
How are you feeling Lynn? Any better?
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/18/2007 11:41 AM (GMT -7)   
Feeling better today -- a tiny bit of spinning, but less than yesterday. Pampering myself (ie NOT doing laundry or errands!)

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


CaptSue
Regular Member


Date Joined Jan 2007
Total Posts : 279
   Posted 7/18/2007 1:10 PM (GMT -7)   
Lynn,

The one time I had vertigo exactly as you described to begin with (turn over in bed and the room kept going) was before my one and only major flare. The flare lasted weeks and was devastating. Please, please, take it easy and consult your doctor.

Stay Strong,
*hugs*
Sue
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg), Imuran (2X50mg), Prilosec (20mg), AmbeingCR (12.5mg some nights)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/18/2007 1:28 PM (GMT -7)   
Thanks, Sue, I will keep that in mind and take it easy for the next few days.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/18/2007 5:26 PM (GMT -7)   
ok, temp just spiked to 100 degrees, and I'm usually a 97.5....and dizzier.....guess i'll either up my pred a touch or find my PCP tomorrow....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


CityGirl
Regular Member


Date Joined Dec 2006
Total Posts : 239
   Posted 7/18/2007 5:45 PM (GMT -7)   

The first few months after being diagnosed I was very dizzy.  It is a hard feeling to describe... it wasnt dizzy like the room was spinning but more a feeling of being off balance and feeling like my head was heavy.  I am sure that sounds absurd but I dont know how else to describe it.  Now that my Plaq. has kicked in I hardly ever experience that feeling and if I do it is near my monthly cycle. 

A few years ago I was so dizzy (this was long before lupus) I was sure I had a brain tumor.  I went to my primary dr. and he said I has so much fluid in my ear he was amazed I could stand up.  Might be something to check out just to be sure.  When I had that infection I never even had a slight earache despite the fluid. 

Hope you feel better!


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/18/2007 6:35 PM (GMT -7)   
Lynnwood, if it is an infection it would all make sense. And ear infections are usuallly easily treatable. Hope your fever goes down and that you're PCP's available tomorrow.

Take care
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/19/2007 6:44 AM (GMT -7)   
Lynn,

I hope you are not getting the flu or an infection like the others mentioned. When I'm starting the get sick like this dizziness and lightheadidness are my first signs. If this is the case, I hope you get better soon. Please rest and don't worry about us, take care of yourself first. Let us know how it goes at your doc appt.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


curlyhair
Veteran Member


Date Joined Jan 2005
Total Posts : 659
   Posted 7/20/2007 11:35 PM (GMT -7)   

I hope you are feeling better. I also have bouts of dizziness on and off and I am sure it is lupus related. Mine usually resolves itself in a few days. Let us know how you are when you get the chance, I know how nauseating dizziness can be.

Sandy


DX: Kidney Disease, questionable Lupus Nephritis 2002
DX: Raynaud's Phenomenon and Lupus 2005
DX: Anorexia and Hypokalemia 2006
 
meds: plaquenil, lasix, klor-con


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/21/2007 7:11 AM (GMT -7)   
Lynnwood, I really hope you aren't flaring. You are like me with your normal temperature, so a fever of 100 is prett high. I hope you got in touch with your doc and that you are taking it easy and taking good care of yourself.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/21/2007 8:34 AM (GMT -7)   
I seem to be okay most of the day, just start getting a little dizzy (in spells) from about 6 pm on. No more temperature spikes. So I'm guessing its the lupus doing a random attack -- my hearing seems ok, too.

I'm trying to take it easy for a few days and wait for it to pass....

thanks hippimom, you are right, 100 is really high for me. I can't even remember the last time I saw 100! But it was just that one evening, so.....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/21/2007 8:46 AM (GMT -7)   
Lynwood, I'm so sorry you're still having trouble with this, and I agree with you and Hippi. My normal temp is low too and when it gets up to 100 it really knocks me down. Taking it easy for a few days sounds like good medicine.

Hang in there.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 11:18 PM (GMT -7)
There are a total of 2,732,413 posts in 301,016 threads.
View Active Threads


Who's Online
This forum has 151181 registered members. Please welcome our newest member, carol9.
254 Guest(s), 6 Registered Member(s) are currently online.  Details
desert bound, Serenity Now, Girlie, ggfgfgfdgfgdd98, pressurehead, Tall Allen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer