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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 7/25/2007 8:14 PM (GMT -7)   

Today has not been the best!!!! To begin with those jerks stole the hose for the stove (it is a gas stove) why they took it I have no freaking clue but they did. I then ended up with cramps after dinner. A trip to the bathroom only half solved the problem because the monthly curse is here. I hate this time of the month. I need chocolate- lots of it. My mood will suck big time for the next few days. Add to this the fact we are moving, I am having to deal with painting, a birthday party, and turning 30- UGH!!!!!!!!! I am not happy. Plus my hip is really bad right now. My injection is the 1st and I really wish they would move it up because I am out of narcotic pain pills and my pain levels are through the ceiling of the three story apartment. I hate pain. Pain sucks. I need pain relief not more pain. I really wish someone would kill the nerve because it can't be fixed so why are we leaving it to torture me? Isn't there a law in this country about cruel and unusual punishment? I mean seriously I am in terrible pain and there isn't much to be done because no more narcotics until after I see my rheumy on the 31st. I hate this body. It is such a prison most of the time.


Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/26/2007 8:08 AM (GMT -7)   
((((((((Rose)))))))), I know you have so much going on right now it has to be wearing you down. It's hard enough for a healthy person to move. By the way 30 years old is a spring chicken! I'm 50. )f course I feel like you do. 50 trapped in a body that feels like 150. It's so hard when your brain tells you one thing and your body tells you another. Hang in there. Try to not over due it. I know it feels like forever before you get your shot but it really isn't too much longer. I just wish they would give you somthing in the mean time. It just doesn't seem fair to make you wait so long.
Praying the days go fast and you get some releif soon
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 7/26/2007 8:18 AM (GMT -7)   
Thanks Carol. They want to make sure I don't end up an adict like my mother so they are just looking out for me but still this is past reasonable kill the darned nerve and be done with it.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 7/26/2007 10:22 AM (GMT -7)   
Hi Redrose.  I'm putting my house up for sale Monday and even though my BF, daughter and her BF are helping, I've been busting my butt to get it ready. I work full time and all this is creating a monster flare with intense pain, but at least I no longer have periods.  I really feel for you Sweetie!  Darlene told me earlier to purposely think "slow down" and I think that's helping.  ((((Hugs)))

Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac,  celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 7/26/2007 7:21 PM (GMT -7)   
MY husband helped me paint the pink bedroom 1 coat tonight. I will do a second coat tomorrow and begin our bedroom- carolina blue. He is more than willing to help for a short time now that I am showing signs of problems. My hip issues caused a fall and I hurt my left wrist again. If they would just kill the nerve I would stop falling so much- see the pain shoots through the leg and up my back and suddenly my leg caves in when they block the nerve which is localized to a small area of my hip and upper thigh this doesn't happen but the first block lasted almost a week. I can only have 3 or 4 a year so this is not cool.As to the moving we have the big freezer, my book shelves, our dresser, and the inflatable bed along with TVs, computers, computer table, very small desk, and other small personal stuff like clothing. Only the first 3 require a truck or trailer. Oh and we have to pick up the washer. So we are almost moved. He has to yank out carpet and I will lay down tile but I think that it should go fast since he has the 30th, 21st, and 1st off. So we have tomorrow evening working together, and Sunday through Wednesday. Thursday he goes back to work. We have to be out of here by the end of Monday but that is okay. We can manage that. The big thing will be to get the tile in and unpack. I get to relax except for helping with the tile and saying where stuff is gonna go after our room is painted and the pink room gets it's second coat. I am really looking forward to Saturday- I have 5 presents for my daughter and I get my grandma's apple pie instead of cake because I wanted it. My birthday so my choice of cake or pie. My daughter will get marchino cherry cake but it will be small because more people prefer pie in my family. Hope everyone is well.

I see my rheumy on the 31st and I have been down to 1 imuran a night since my breast reduction. I am going to ask about going off by September if possible and maybe doing a 5mg of prednisone instead. The imuran is just too hard on me.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/27/2007 10:31 AM (GMT -7)   
((((redrose)))) You need a break or at least a few days in a little peaceful cacoon that is soothing and quiet and pain free. I'm really sorry to hear about all the pain. I was just posting to someone else that I think one of the worst things is to have terrible pain without anything to relieve it.

Try to hang in there the best you can. You are very much in my thoughts through all of this and I hope you are able to rest at least a little and take care of yourself.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/28/2007 11:31 PM (GMT -7)   
Redtose, the stove is at your new house, right? or did you end up getting an apartment? Anyway. I don't miss that monthly thing. My hystero showed me that I was producing like NO estrogen and my organs were useless. I don't miss that whole monthly thing not one bit. Have you talked to the docs about just getting on the fentanyl pain patch? It's addicting, but its for long term chronic pain and you know the shots are great if they last, but the patch really takes care of it all. Lots of docs are more willing to do the pain patch because its much harder to abuse, like we're all junkies or something. But anyway, I was on it after my surgery because of my liver, after the anesthesia it just couldn't handle all the tylenol in the pills and I cant take NSAIDS or antiseizure stuff or methadone. They asked me about the shots and right now, I would consider them because my chronic neck pain is unresolvable per the surgeon. Anyway, the only thing about the patch is that you don't feel pain, like bladder infections or gi infections or much other pain so you have to be careful to watch that you are not sick and not feeling it. I used it post surgical, even though they don't recommend it and it was better than being on oxys or something. You might ask about it. I just told them I had so much pain from so many different places that I just needed one solution. I quit taking it on my own because I thought I was all healed and I didn't need it and I was afraid because of my neck swelling that I might get cancer and not know it, but that's not really true with all the blood work and stuff they do. I wish I was back on now that I have this chronic bladder pain thing and bad diverticulosis and IBS. Well, I'm glad you are getting your painting done, I like sky blue, maybe the paint fumes will help. Will pray for you and maybe ask about the patches, it might go easier than you think. (((((hugs)))))
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/1/2007 7:24 PM (GMT -7)   
Hi Rose, I was wondering how you were feeling. I know you were supposed to get your shot today. The waiting is just awful isn't is? Oh and Happy birthday by the way! How did your Rheumy appt go? Give us an update when you can. I hope you are able to get a little peace and quite and time to rest.
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/5/2007 11:36 AM (GMT -7)   
sorry, the net took a while to get set up at the new place. injection went okay. missed my rhuemy apt and have to reschedule. not feeling too hot due to a cold so I will be off for a while.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/5/2007 3:27 PM (GMT -7)   
Hey red, I'm sorry you have a cold. Your poor body is rebelling from all that you've had to do lately. I hope your pain is better and know you were looking foward to seeing your rheumy. Get some rest and let us know when you start to feel better. I've been thinking about you and the move and all the painting etc. you've had to do and hate to hear that you're down now.

Hang in there.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 8/5/2007 8:09 PM (GMT -7)   
Get well quickly, redrose! I have you in my prayers!
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), RelafenMethotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra & Patonel Eye Drops for Allergies.


 

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