New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 7/26/2007 3:40 PM (GMT -7)   
I've always got headaches and migraines. But ever since I've been diagnosed, they've gotten worst. They're usually pressure/tension headaches that make me feel like my eyes are going to pop out. I usually take tylenol and it helps a little. But there's always those lingering headaches that nothing works and I just wait it out. I've mentioned them to my rheumy before, and she didnt' really say anything about them. And since Tylenol for the most part took care of them. So I didn't really mind. But lately, I've been getting pretty bad headaches and they just won't go away. I even take naps just so I don't have to feel it, but I wake up and the headache is still there.

So at my doc's appointment today and I brought it up again. This time my rheumy prescribed Midrin for my migraines. I haven't needed to use it yet, but I'm hoping it'll work and I can get some relief for when I do get another headache since I get one at least once or twice a week.

The list of medication grows, but hopefully it'll help. I do get to reduce my cellcept too, since my WBC count has been low, and we're not sure if it's from the Lupus being active, or if I'm taking too much cellcept. So we're going to cut back and see if there's any improvement.
I was diagnosed with Lupus with Antiphospholipid syndrome in Nov 05.
Current list of medications includes:

Cellcept 250mg/5 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 7.5mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day

Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.

Rituxan infusions twice every six months


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/26/2007 7:14 PM (GMT -7)   
Hi Hiedi, I hope the new meds help with the headaches. Somtimes ice on the back of the neck helps too. I never used to get headaches before either. It would be nice if you could lower the cellcept with out any complications. Let us know how the Midrin works. I am sure alot of us would like to know. It seems many of us have the Lupus headache.
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/27/2007 10:26 AM (GMT -7)   
Heidi, I'm sorry to hear about the headaches, and I can fully relate. I never had bad headaches until I got lupus and when I get them they are terrible. Your description of them is very similar to mine. They get so bad that I feel like my eyes are literally going to pop out of my head and explode. I had a GP doc put me on amitriptyline because it's supposed to be good for headaches and it also helps me sleep, which I had been having trouble with. I get the headaches less oftem now, but I still get them and wish I had something for relief when they come. I'll be interested to see how the midrin works for you, so let us know after you try it.

If you look up lupus headaches on the internet you'll probably find it describes the kind of headaches you are getting. I looked it up and it described almost exactly what my headaches are like.

Take care and keep us posted on the new med.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 7/27/2007 12:03 PM (GMT -7)   
Hi, Heidi. Please do let us know how that new med helps with the headaches. I've had so much other stuff going on with me, I haven't even bothered mentioning my headaches (which I never had regular problems with before the lupus) to my rheumy.

I would just like to say to everyone in this forum...it is SO nice to get on here and read these posts each day and know that I am not alone. tongue I am really glad to have found you! Thanks.

Good luck, Heidi. It sounds like we're all anxious to hear your results!
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 7/27/2007 9:07 PM (GMT -7)   
Heidi I get headaches all the time, but this week they have been worse. It drives me crazy. I am tired of them. I have mentioned them to my rheumie and my dr, neither one has said anything about them. So I just keep taking tylenol and hpe and pray that it takes them away.
 
Hope yours goes away soon.
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 7/28/2007 12:39 AM (GMT -7)   
Greetings, Heidi! I have a script for Midrin for my headaches, too. I have taken Midrin for almost twelve years now and I have had much success! I hope it helps you, too. I keep mine in my purse and take it at the first sign of a headache. I have the best results if I can take it ASAP.

Fortunately, I have not needed it as much since my hysterectomy. It seems that my headaches were somehow related to my hormone levels. However, the Midrin is great when I do have the occasional headache and it seems to work still, after all these years.

Good luck - my thoughts and prayers are with you - Audrey
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), Lodine, Methotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra, Flonase, and Patonel for Allergies.


 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/28/2007 3:29 PM (GMT -7)   
Heidi, My doctor told me thursday that the vascular headaches I've been having might be side-effects of CellCept. It's almost laughable. All the meds we take care of to help with this awful disease and we often don't know if the problems we're having are from the disease or the meds we take. I hope you get to the bottom of yours. CellCept is a wonderful drug and made me feel so much better, but the side-effects can be awful. In my case, my kidney function was being compromised. I'm glad the tylenol has helped and hope your white blood count gets back to normal once you decrease your CellCept.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, imitrex, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 7/31/2007 8:59 PM (GMT -7)   
Tell me about it! My hair's been coming out lately and it's the worst it's ever been. And at my most recent doc's appointment, my rheumy said it might be because I'm taking too much Cellcept too. So we're reducing the dosage, but I know what you mean. Everything that makes us feel better comes with a price.

Anyhow, I did try the Midrin for the first time today and I have to say it was effective. I took it right when I felt a headache coming on and within 10-15 minutes I didn't feel a thing.
I was diagnosed with Lupus with Antiphospholipid syndrome in Nov 05.
Current list of medications includes:

Cellcept 250mg/5 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 7.5mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day

Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.

Rituxan infusions twice every six months

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 11, 2016 7:04 AM (GMT -7)
There are a total of 2,736,310 posts in 301,367 threads.
View Active Threads


Who's Online
This forum has 151462 registered members. Please welcome our newest member, barbarwhit.
240 Guest(s), 4 Registered Member(s) are currently online.  Details
Asha00, mrs. george, reminder, LMusings


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer