Is feeling cold an autoimmune thing?

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mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 7/27/2007 11:48 AM (GMT -7)   
I've noticed the past couple of weeks, that I often feel cold. It's not fever-related chills...I've taken my temp just to see.
 
I'm ordinarily the kind that stays hot in summer...even with the a/c running. But the past few weeks, I find myself cozying under the throw blankets, turning off fans, looking for socks, sitting on my hands because they're freezing...while everyone else says they're comfortable. I just checked the thermostat, thinking someone must've cranked it down to 72. But it was still around 77.
 
Just now I was cuddling with my very skinny five year old, and he felt so warm and cozy. I remember him complaining earlier this summer that I was so hot, and that's usually the way it is.
 
My stomach is still all out of whack and I'm so tired. I suppose I should call the doctor, but it feels dumb to do so. I'm afraid they'll tell me to just turn off the a/c! cool
 
I know lots of symptoms can be attributed to the autoimmune stuff, but this is a new one for me.


Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 7/27/2007 12:14 PM (GMT -7)   
Hi, Kari. I get weird "cold" feelings all the time. I say weird because it will be extremely hot outside and I would normally would have been feeling refreshed and relaxed in the A/C. I notice it more at night most times. I will look at the A/C expecting it to be down too low and it will actually be a few degrees higher than my regular "comfort" setting. I don't have any answers for it unfortunately, I just can say yes I do that too! Mine are not fever related either. Take care.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94


AnnieRae
Regular Member


Date Joined Nov 2006
Total Posts : 76
   Posted 7/28/2007 6:31 AM (GMT -7)   
yeah  Hi Kari, me too, I do get hot when outside.  But we set our thermostat on 77 also and I usually have to have a light blanket and socks on even in the daytime if I'm inside for very long.  Can't explain why.  I do get a few hot flashes at night but just uncover for a minute and I'm ok.  I guess my circulation is not good.  I've told my Rheumy about it and he hasn't really said anything.  Take Care AnnieRae :-)
There Is Always Hope


mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 7/28/2007 7:45 AM (GMT -7)   
Hi, I haven't been on here for a while but I always read the comments on here. I have been having the same cold feelings  you are talking about lately, mine are like the bone is frozen and I have to move the heating pad from hands to feet when I'm sitting. I know this may sound crazy but thats how mine has been feeling.  Linda

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 7/28/2007 9:24 AM (GMT -7)   
A Cold intolerance, I believe, is an AI thing. I don't have lupus, but I do have RA, and I've had a severe intolerance to cold since I was a teenager, at a minimum. I keep my a/c set on 78 degrees, and I turn it up to 82 degrees at night. I keep socks and gloves in my purse. My feet and hands are usually the first things to get cold, and when they do it sets my arthritis off. I often feel weird because no one else is ever cold like this, and they look at me like I'm schizophrenic or something? But I'd rather be warm and comfortable, then cold and achey any day of the week.

I also have raynaud's, which many of you have as well--the cold intolerance may relate to that.

Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/28/2007 11:19 PM (GMT -7)   
Hi Kari--
It probably is an AI thing but it also can be a sign of hypothyroidism, which is also an AI thing and tends to go along with other AI diseases. You may want to call your doc and see if they can check it while you are feeling bad, since it tends to come and go. Is your temperature really low too? This is something to tell your doc if it is. Your hypothalamus controls your temperature and I've known some people that have arthritis in their neck and it pressed on it or something and they had really low temperatures, especially on waking. This is not good (its called hypothermia) and it can cause like brain damage and stuff. I've had it for a while, can you tell? LOL. I hope you feel better soon and dont' start getting the hot cold switch off. Take care and let us know if you figure it out.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 7/29/2007 12:59 PM (GMT -7)   
It is probably an auto immune symptom.  Some of us have raynauds but that mostly affects your fingers and toes.  After getting sick I went from being part polar bear to being cold all the time.  Developed raynauds as well.  In the past few months my body seems to be regulating temperature more normally and my raynauds has disappeared.  Hope it stays gone.
 
Anybody who is sick and has something systemic like an auto immune disease probably has more problems with keeping warm.  Your body is just not functioning normally and if you are older or have some circulation problems that does not help.  If you become less active and have less muscle tissue to generate heat that does not help. 
 
After two years my body seems to be trying to return to normal....I can only hope.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone (7mg & tapering), 100mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 7/29/2007 1:08 PM (GMT -7)   
Takes quite a lot to develop hypothermia.  Most victims are outside in relatively mild temps (30-45F) in wet weather.  That is because they are not adequately dressed and get wet at those temps.  If your core temp drops then your body tries to protect the brain and vital internal organs.  Your body thermostat will divert blood and heat to those areas.  That is why you develop frost bite in your fingers and toes even though they are not exposed....but that is in really cold temps.  Contrary to popular belief, hypothermia usually sneaks up on people who are outdoors in milder temps.  Of course, there is a risk in really cold temps but it is usually drier and it is easier to retain your body heat if you are dressed properly.
 
I have spent many days outside in -30 to -50F temps and never had problems with hypothermia because I was dressed properly and stayed dry.
 
That subject is one for the outdoor forum and should not be a concern for us.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone (7mg & tapering), 100mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 

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