Back from holiday, wish i'd never went

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lion00
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Date Joined Aug 2006
Total Posts : 334
   Posted 7/28/2007 6:00 PM (GMT -7)   
Hi everyone, hope your all okay.
I got back from my holiday this morning, never ever again. I thought I'd be able to cover up and sun block and i'd be alright (with kids it's hard not to want to take them to the sun & the beach). Well, I'm not! and unbelievably it's not really the lupus thats the problem. I am covered with what I think is prickly heat and it's so painful. I have it from my toes, up my shins, thighs, groin, stomach, back, shoulders, neck & ears. I look really really awful too. I've been itching so bad that i'm bleeding and I haven't slept properly for 4 days. I took the meds the doc gave me every day to try to stop this happening, but it hasn't. Tried calamine lotion, cool showers. Nothing is helping. Any ideas?  x x
Chillblain Pattern LE, possible SLE, tachycardia, proctal fugax, anismus, slow transit constipation.
 
Prednisoloe, 35mg
Tramadol
diclofenick


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 7/28/2007 6:28 PM (GMT -7)   
Oatmeal baths?

There is something else (medical) we used to use for prickly heat, but I can't remember the name right now.

Although prickly heat usually only occurs in skin folds or where your clothes are tight. Do you think it might be shingles? Is it blistery looking? You might need to see your doc -- also take pictures if it's changing so the dr can see what's happening.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
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lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 7/28/2007 6:43 PM (GMT -7)   
Hi Lynwood, I'll try the oatmeal when the shops open tomorrow. The rash is like hundreds (literally) of raised red lumps, which are hard and terribly itchy. They do look a bit like blisters, a bit shiny. The only part of me that hasn't got any is my face. My legs are the worst, the shins are just about totally covered. It's 2.45 am here and I'm getting desperate now. Trying to stop itching because i'm bleeding, but it's so itchy. I might ring the out of hours tomorrow morning if it's no better. Thanks x x
Chillblain Pattern LE, possible SLE, tachycardia, proctal fugax, anismus, slow transit constipation.
 
Prednisoloe, 35mg
Tramadol
diclofenick


hippimom2
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Date Joined Jul 2005
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   Posted 7/28/2007 6:45 PM (GMT -7)   
((((lion)))) I'm really sorry to hear about the rash and how rotten it feels. I'm wondering if lupus made you more sun sensitive which made it easier for you to get prickly heat. Like Lynnwood said, it might be a good idea to go to your doc and make sure it's not something else.

I can't think of anything for relief either, except oatmeal baths. I'm so sun sensitive this summer that it doesn't matter how much sun screen I have on, I get nasty rashes if I'm not under an umbrella or somehow completely in the shade.

I really hope you get some relief soon. Take care and keep us posted.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 7/28/2007 6:52 PM (GMT -7)   
Maybe you ran into some sand fleas and are having a systemic reaction because of the lupus?

Hard red bumps are not shingles...shingles are actually small blisters with fluid in them.

Try rubbing ice cubes on the itchy-ist parts, they should numb the area and thus calm the itching. Can you take benydrl(sp)? Lots of people that use benydril for itching (I can't take benydrl myself).

Do you have any aloe gel? It's often used for sunburn and does calm itching somewhat.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 7/28/2007 6:56 PM (GMT -7)   
Do you have any cortisone cream? Even an topical anti-biotic might help calm the itch down some. I'm trying to think of things you might have in the house.....Even aspirin, tylonel, those kinds of things might help from the inside out.

I know how miserable that can be in the middle of the night, I had a bad sunburn years ago where even the sheet touching me hurt...it was a very long, painful night.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 7/28/2007 8:31:54 PM (GMT-6)


lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 7/28/2007 7:08 PM (GMT -7)   
I've got a steroid cream for the cple rash that I tried yesterday, but I think i'll give it another go. I'm just nervous cos some of the rash is now open and it;s gonna sting! thanks lynn, i'll post tomorrow when i hope i've been to sleep!
Chillblain Pattern LE, possible SLE, tachycardia, proctal fugax, anismus, slow transit constipation.
 
Prednisoloe, 35mg
Tramadol
diclofenick


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/28/2007 7:52 PM (GMT -7)   
Lion, your rash sounds absolutely miserable! It doesn't sound to me either to be shingles because they occur only on one side of your body and follow a nerve.

I would also be tempted to run out and get some Aveeno or some other brand of oatmeal bath that you can put in your tub and then soak for a long time. I'd think the cooler the water, the more soothing it would be. Most all-night grocery stores or pharmacies will carry it.

I'm glad you've talked to your doctor about it. What meds did her prescribe? I think Lynnwood has the right idea about taking an antihistimine. Even a mild one will help with the itching and it might also have the added benefit of helping you get to sleep. I don't envy you! If nothing else helps, get back to the doctor!
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, imitrex, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 7/29/2007 12:36 AM (GMT -7)   
Hi again, well i've managed to have 3 hours and i'm so tired! I'm going to go to the walk in clinic today and get some advice. x x
Chillblain Pattern LE, possible SLE, tachycardia, proctal fugax, anismus, slow transit constipation.
 
Prednisoloe, 35mg
Tramadol
diclofenick


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 7/29/2007 7:38 AM (GMT -7)   
I'm glad you are going to the clinic because it sounds pretty bad. If you are up to it, let us know what the doc said. I hope they can give you something that gives you some pretty quick relief.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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Audrey Ann
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Date Joined Jul 2005
Total Posts : 815
   Posted 7/29/2007 8:26 AM (GMT -7)   
Greetings!

I am so sorry to hear about your terrible rash. I had the same type of rash about five years ago when I first started to become aware that I had lupus. It was awful and just as you describe. The doctors were not able to do much for me, either. Lynnwood gives some great suggestions but, mostly, I ended up just waiting it out. The only area that was not affected for me was my face, too, except that I had a definite butterfly rash. I also remember how I would develop big, raised red blotches on my skin when I would go into the sun - even when driving! The itching was the worst, however, and nothing much seemed to help with that.

At the time, my family doctor put me on a couple of pred dose packs, a steroid cream, and clarinex for the itching. He also sent me to a rhuemy but I had to wait five months to see her. By then the rash had mostly cleared up and I did not have enough of the lupus symptoms for a diagnosis. That came about two years later. In retrospect, I think it would have helped if they had been more aggressive with the prednisone. Are you taking prednisone?

I remember that it really helped for me to stay out of the sun, to rest and sleep A LOT, and to take very cool showers. The cool water temp was very soothing.

I hope this helps and I hope your docs can help you very soon! I will keep you in my prayers!
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), Lodine, Methotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra, Flonase, and Patonel for Allergies.


 


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 7/30/2007 4:29 PM (GMT -7)   
lion, how's your rash? I hope that by now the doctor has prescribed something that has given you some relief. When you can, let us know how you're doing.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, imitrex, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/31/2007 8:18 PM (GMT -7)   
Hi lion
I hope your rash is getting better you've had great suggestions here. I agree with others that it sounds more complex that the prickly heat which is how it started. I was just going to add that salt water heals wounds faster, think of swimming in the ocean with a sore, and it its not the spready type of rash, maybe a bath in mild epsom salts might sting alot but itch less and help healing. Maybe something to try. The ice mentioned above is really the best. Also, they make some numbing ointment you can put on or ask the doc to phone in some lidocaine--numbing liquid to put on it. I'm so sorry that this happened to you on holiday. I hope it isn't an allergy. I'm glad you are going to the doctor and hope you get better soon. There is another medication besides benedryl and that is called atavan and it is a pill and works too.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 8/1/2007 7:20 PM (GMT -7)   
Hi lion, I was wondering how you were feeling? I have been reading your post but I couldn't think of anything that hasn't been suggested. I just want you to know we are thinking of you and I hope you were able to get to the clinic and get some reeif so you could sleep!
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 8/3/2007 4:03 PM (GMT -7)   
Hi everyone, thanks for your replies and advice. I tried nearly all of them!!
I was given antibiotics because the rash had become infected which was making things worse. Last night I eventually got some sleep. Much better today thank goodness. The doc explained that most people would normally get prickly heat around the creases or folds where you sweat and it wouldn't be too troublesome. But with the skin in lupus and the "allergy" to the sun it can spread everywhere and not really be prickly heat as such but a nasty allergic reaction to the sun. But thankfully it's settling down and it's only left on my back and shins. No more sun for me EVER. I'll be the one hiding under a hat, sun brolly and mountains of sun block!!
Chillblain Pattern LE, possible SLE, tachycardia, proctal fugax, anismus, slow transit constipation.
 
Prednisoloe, 35mg
Tramadol
diclofenick


advantage
New Member


Date Joined Aug 2007
Total Posts : 2
   Posted 8/5/2007 3:15 PM (GMT -7)   
Go get steroids,   or you will be miserable....I had the same thing and it made me better the next day!

goldenwings
Regular Member


Date Joined Apr 2007
Total Posts : 81
   Posted 8/6/2007 8:45 AM (GMT -7)   
Hello lionOO,
 
I know you already have the rash but I thought this info might be of use to you.  Look into PLE - polymorphic light eruption.  Most people confuse this with prickly heat but it is very different.
 
A short overview for you :-  
 
Polymorphic light eruption (PLE), otherwise termed polymorphous light eruption (PMLE), is a skin complaint caused by sunlight.

Typically, those affected by it will have been exposed to the sun for two to three days while on holiday, although the complaint does occur between the spring and autumn months in the UK, and sometimes as little as 15 minutes exposure to sunshine can induce the condition. It can even be brought on by sunlight penetrating through a window or thin clothing.

A delayed-onset, spotty, itchy eruption appears on the skin, and may take between 5 to 10 days to clear.

The rash usually consists of small red spots or blisters and can appear on any part of the body that has been exposed to sunshine, although commonly the face and the backs of the hands will be spared. It tends to heal without scarring.


It is not the same as prickly heat.  This occurs during warm weather, generally affects the trunk (ie, not the head, neck or limbs) and is related to overheating, particularly in areas where there is friction due to clothing.
 
There is quite a bit more info on it, but I think this will give you an idea so that you can be aware of how it can happen and how to treat it.
 
Hope this is of help to you.
 
goldenwings  yeah
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