PLEASE RESPOND RIGHT AWAY-Who would you go see?

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sariah
New Member


Date Joined Jul 2007
Total Posts : 9
   Posted 7/30/2007 11:46 PM (GMT -7)   
Hi everyone.
 
I have an appt. set up for Wed. w/ a podiatrist and I want to make sure I'm doing the right thing before I fork out a lot of money to self pay him.  I'm new.  Question.  So I went on a trip for about a week and I was fine the whole time.  When I got home I had a little bit of chest pain, which I'm pretty sure was from not getting enough rest while on the trip, and a little bit of a cold that I caught while also on the trip.  Everything else was fine.  I thought I'd rest for a couple of days, which is what I usually do, and the chest pain would be gone.  Well chest pain did go away, but than I woke up a couple days later to find that my foot hurt when I walked.  I figured, well I'll keep resting and I'm pretty sure it'll go away.  Rest is the first medication I try for any symptoms that pop up, which usually works probably 90% of the time.  Well it's going on 3 weeks now and it is still not back to normal.  So my question is:  Which doctor would you guys go to?  I have decided to go to a podiatrist instead of my rheumy, which is who I usually go to ALL the time for everything, but I kinda don't want my rheumy to rule it out as lupus and just start upping my medication OR maybe miss something because he wouldn't know all there is to know about feet.  I chose not to just go to a general doctor because with my experience in the past they always get scared once they find out I have a chronic illness and they usually don't know anything after that.  I usually spend my time answering a thousand questions that they have about lupus and at the end I usually end up going to my rheumy after paying the general doctor for nothing you know what I mean?  So please let me know if you guys have any experiences with going to a different specialist in the past for something you thought might not be lupus related.  Thanks for your time.  Much love.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/31/2007 12:23 AM (GMT -7)   
Sariah,

To answer your first question, I think you are doing the right thing in going to the podiatrist. Be sure, however, to tell him everything you can about your disease. Take him a list of all your meds, a list of all your diagnoses, and a list of your doctors. It sounds like your rheumy is your only doc, so give the podiatrist the name and address of your rheumy and then ask him to send your rheumy a copy of his report.

As far as your question about experience with different specialists, I'll tell you how I handle that. Of course, keep in mind that I have insurance. First and foremost, I have a PCP (primary care physician). She gives me physicals, pap smears, and takes care of things like my hiatal hernia, colds, sinus infections, etc. Every time I see her she goes over the list of all my meds, makes sure my shots are all current, looks at my recent labs, which she may or may not have ordered, answers any questions I have, schedules my mammograms, schedules my bone density tests, and so on. She refers me to specialists. She referred me to my rheumy and they work hand in hand and the rheumy sends a report to the PCP every time I see the rheumy. When my foot was hurting, she referred me to a podiatrist. I had a stress fracture, so he sent her a report about that and treated my foot. I had a growth inside my mouth so she referred me to an oral surgeon who performed oral surgery on me. He sent her a report. There are others, but I think you get the idea. Lupus is only a part of me. I've heard hippi here on the forum refer to her PCP as the hub of the wheel and all other specialists are the spokes of the wheel. That way one doctor knows everything about me. I'm so fortunate to have found a PCP who is very organized, thorough, intelligent, and is always prepared to send me to someone else if I have a problem that's not in her specialty. She is an internist, and internists are well trained in diagnostics.
She doesn't treat my lupus and if I ask her anything about it she tells me that I should save that question for my rheumy.

I was having lots of migraines so I went to see my PCP and she gave me a script which helped stop them in their tracts. When I saw my rheumy, I mentioned the migraines to her and she thought they might be a side effect of the cellcept so since we cut my dose in half we'll see if my headaches get better.

I'm usually not this long winded, but it's two am so you know what that does to some of us. I hope I haven't confused you more or told you more than you wanted to know. But this system really works well for me.

Finally, I should tell you that I get to know the doctors' nurses real well. They are so knowledgeable and can be very very helpful. I also know my pharmacist almost as well as I know my good friends. He takes such good care of me, makes sure my meds don't conflict with each other, and gives me personal service. I can call and ask him any question I have about meds. There have been times when he has gone home and done research for me and called me the next day. These folks want to help us. It helps to develop relationships with these folks.

I'm glad you came here and I hope I see you again. This forum is filled with the most wonderful, caring and informative people. It has become my second home, and I can come here and rant and rave or cry and whine and the people here are always there to help me. So join our happy little family. We'd love to have you.

Let me know what you find out about your foot.

Take care,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, imitrex, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin

Post Edited (PattyLatty) : 7/31/2007 1:31:07 AM (GMT-6)


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/31/2007 8:00 AM (GMT -7)   
Hi Sariah and welcome. I also agree that it might be a good idea to see a podiatrist or an orthopedic doc about your foot pain to see what they think. Like Pat said, just make sure you tell them everything about your lupus and your meds. If one of those specialists can't help, then I would think you should go to your rheumy about the pain. Like Pat said, just make sure that the podiatrist would send his notes/labs/x-rays to your rheumy.

I hope you find a doc who can help you figure this out. It can be very confusing to know which doc to go to for each problem. I hope you'll keep posting here - this is a great forum with wonderfully supportive people. Let us know what you find out about your foot.

Take care and I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 7/31/2007 9:28 AM (GMT -7)   
My lupus once attacked my foot and I had horrible pain and swelling -- couldn't touch the foot anywhere or walk on it. This lasted about 6 days and then went totally away.

My guess it that there is more than lupus inflammation going on if it's been 3 weeks and you don't have other signs of a lupus flare - ie no fever, no overall body aches & pains.

So I agree - see ye ole foot dr!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


sariah
New Member


Date Joined Jul 2007
Total Posts : 9
   Posted 7/31/2007 12:12 PM (GMT -7)   
Thank you all for your quick replies. You are lifesavers. I will go to the podiatrist tomorrow and I will keep in touch to let you all know how it went. Thanks for being so sweet, supportive and comforting. I will talk to you alls later.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/31/2007 12:28 PM (GMT -7)   
Lynnwood, that's so interesting. When I was 14 my left foot swelled up to twice it's size, and hurt so much that my mother put a shoe box under my sheet so that the sheet wouldn't touch my foot. It was unbearably painful. After a few weeks I had exploratory surgery. We were overseas and the surgeon flew tissue up to the Mayo Clinic and they didn't find anything wrong or abnormal. The swelling and pain went away on their own. My current rheumy thinks that was most likely caused by lupus. What a strange disease we have.

Good luck at the podiatrist tomorrow, Sariah.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, imitrex, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


sariah
New Member


Date Joined Jul 2007
Total Posts : 9
   Posted 8/2/2007 8:58 AM (GMT -7)   
Okay, so went to the Podiatrist. He was a very nice Doctor. He said that it sounds like I did overdo myself on my trip. My plantars fascia which is the tissue underneath my arch is inflamed. Ugh. I hate the word inflamed. It's such a lupus word to me. He didn't x-ray because he was very positive there was no need to and nothing broken because I would've been in MUCH MUCH more pain, I would've had some kind of swelling, rash, red tender areas or bruising of some sort, but my foot looked absolutely normal. To help it get better I can massage it, stretch it, ice it (a cool way to ice it that he explained to me is to freeze a water bottle and roll it under my foot) and try to stay off of it as walking too much will cause it to stay inflamed or get worse. Avoid walking around the mall, hiking, etc. I asked him if I shouldn't go grocery shopping too....since it's an hr. to an hr. 1/2 ordeal and he laughed. "No, you can do your grocery shopping. That should be okay." I said "are you sure, cause I can send my husband to do it for me." hahaa I also bought an arch support insert from him. He said from what I was explaining to him that it sounds like my arch might've collapsed too. He said if it doesn't get better in two to three weeks to go back.
PattyLatty,
I noticed that you're on cellcept. How do you like that? I had asked my Dr. last yr. about getting off of prednisone since I hate it so much. The swolen face and what it does to your body in the long run. He mentioned cellcept. I haven't pursued it yet. Guess I'm kinda scared cause everytime I got off of prednisone in the past I ended up in the hospital or something.
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