Can't shake this last bug

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 8/1/2007 7:13 PM (GMT -7)   
UGH! My lungs are doing better. However my tummy is still feeling nausiated and my temp is staying about 99.8. When I wake up in the mornig I feel like I'm lugging around cement bags on my legs. I ate some fudgesickles because I have to keep putting somthing cool in my body. I guess I should try to get some ice water down instead. I'm sure it would be better for me. My brother went to the store with me today. I had to ask him to slow down because every step I took was an effort. It didn't really hurt. It just felt like my legs weighed a ton. This has been going on for about 5 days. Do any of you have problems like that in the morning especially? It seems to improve thruout the day. I can't wait til I seem my new rheumy and hopfully get some answers. I noticed the boards are really slow today. I hope that doesn't mean everyone is sick.
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


ocean1
Veteran Member


Date Joined Dec 2006
Total Posts : 707
   Posted 8/1/2007 8:09 PM (GMT -7)   

Carol,

So sorry to hear you are still feeling so yucky.  I have the leg issue every day.  I get up and my legs just feel like dead weight on the bottom of my body.  I also am moving much slower than I used to because of it.  I am also in pain every day though.  I have yet to get a firm "Yes" as to this being related to the lupus.  I feel it is but my rheumy just tells me he doesn't think the leg pain is related.

I am glad your lungs are feeling better.  The nausea might be from the meds.  I have been on tons of different meds lately and am living on taking Tums and Compazine for the nauseaness.

I hope your new rheumatologist can help with some answers.

You are in my thoughts and prayers.


Diane (ocean1)
________________________________________
Muscle disorder 2007; Lupus Sept. 2006; IBS 2004; Chronic Hives 2002.
Medications:  Allegra and Zantac; Lunesta, and Ultram PRN.


Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 8/1/2007 9:50 PM (GMT -7)   
I know the feeling of having to slow down and catch your breath. Sometimes the people I'm with forget, and they just speed walk through everything and I just can't keep up. Hang in there and just take it as slow as you have to until you feel better.
I was diagnosed with Lupus with Antiphospholipid syndrome in Nov 05.
Current list of medications includes:

Cellcept 250mg/5 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 7.5mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day

Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.

Rituxan infusions twice every six months


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/1/2007 9:53 PM (GMT -7)   
Diane, I think your right about the meds. When I got sick they put me on high doses of pred. plus antibiotics. I think it killed off all the good enzymes in my body. So I decided to get proactive and get some live yogurt cultures and lots of fresh fruits and vegs. even if I don't feel like eating it. I know I need to do somthing aggresssive at this point.
I'm sorry you are having the pain. I'm not having any real pain right now. Nothing a couple tylenol doesn't help. But the leg thing is just awful isn't it? I'm with you I think it's a lupus thing. The top part of my body is ok but from the top of my legs down are just dragging.
Take care and good luck with your appt tomorow
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/1/2007 9:57 PM (GMT -7)   
Hi Hiedi, I always walked slower than everyone because my legs are shorter than most peoples lol. But this is really becomeing bothersome. At least it's not painful. I can at least be thankful of that. I'm sorry you have to go thru the same thing.
thanks so much for reesponding.
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/2/2007 6:28 AM (GMT -7)   
Carol,

I hope you start to feel better. I know any kind of virus or bug when you have Lupus makes it so much longer to get better and takes a greater toll on us. Just keep making sure to take care of yourself and try not to get dehydrated which is easy to do with a fever.

Yes, I also know what it feels like to get left in the dust when people forget that you can't move like them. I usually just go at my own pace and when my hubby looks behind and sees me a few feet away, he realizes it without me having to say anything and he will stop and wait.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/2/2007 7:00 AM (GMT -7)   

Hi ya Des! How are you feeling? Did your hubby ever go to see his family this weekend or stay home with you? I know that really was bothering you. It's seems like he is such a sweetheart though. I hope you have been able to catch up on some rest. My legs don't seem to be bothering me quite as much today. Maybe getting out of the house yesterday and running a marathan LOL was a good thing. It's so hard with the disease to know what to do. How to find the right balance. What to do what not to do and how much. Maybe if I start exercising again it will help my legs. I quit when I got sick.

anyway I'm on my first cup of coffee so I'll let ya go I you are do well

love

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/2/2007 7:48 AM (GMT -7)   
Thanks Carol... my hubby didn't go but I know he really wanted to :( I did get some rest and I plan on getting some more this weekend as I didn't realize how much catching up I really had to do. Thanks for thinking about me Carol, even at your time where you are feeling bad, you are such a sweetheart. :-)

Talking about exercise, I still have been going to the gym and I notice that it has helped me with my strength and . I felt bad at first when I first started going because all of the other people jogging on the treadmills (many people older than me) and I'm doing just a brisk walk but I don't care about that anymore. I'm feeling better and that is what matters. I think mostly for you though, after being so sick, just getting out of the house even just to the store probably made you feel a bit better.

Got my coffee here too :-) *cheers

Knickers, You are so right about the B vitamins. I don't take a B complex but I do take B12 and didn't know how much it made a difference until I ran out and it took me a few days to get more. I literally felt like I was dragging myself and mistakingly thought it was a flare coming on until I started taking the B12 again and I literally just pepped back up after a couple of days. *note to self - make sure have lots of it on hand
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/2/2007 8:05 AM (GMT -7)   
Carol, I'm sorry you are having a hard time bouncing back from your illness. It stinks that the meds we take can cause so many other problems, not to mention lupus which tends to flare up whenever you get sick with anything. I wasn't nearly as sick as you were, but I'm having a hard time bouncing back from my cold and coming out of the flare it caused. It can be so frustrating to wait it out and wait to start feeling better. It looks like a lot of us can relate to being left in the dust. When I was shopping with my husband the other day, I had to ask him several times to slow down, even though he was just casually walking along.

I can really relate to not knowing how much to do or how hard to push yourself. I was telling my husband the same things the other day. It's like a constant dialogue in my head wondering if I'll feel better or worse if I get up and do something. Will it make me feel better or throw me into a flare? It's so hard to know how much to push yourself.

Carol, I hope the active yogurt cultures and fresh produce help. Like I said, I think you and I are on the same track with your stomachs and the foods we can eat (maybe we were really separated at birth, lol). I did find out yesterday that fresh watermelon tasted delicious to me and didn't upset my stomach. I was so happy that I finally found something fresh and healthy that tasted so good.

I'm hoping better days are just around the corner for you. In the meantime, enjoy your fudgesicles and yogurt.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/2/2007 9:58 AM (GMT -7)   
Hey Knickers, Des, and Hippi.
Knickers actually I'm glad you brought up the vitamin B. My last blood test came back that I wasn't absorbing it properly in my food and doctor said to start taking it. To be honest since I got sick I havn't taking it. The thought of one more pill in my mouth YUCKO. but after reading your post I decided I better get on the ball. Thank you!
Des that's great you are still able to go to the gym. BTW when you sent me an email awhile back I decided to check out your picture. I gotta tell ya lady........You're gorgeous. Your hubby has a keeper there and if he doesn't slow down he might just loose ya to someone else. I can't even do a brisk walk but I did do a few leg lifts today. At least maybe it will get a little circulation going!
Hi ya Hippi, Well now that I spent 170 dollars a the grocery store yesterday the watermelon sounds like a good idea and I don't have any! I glad you are able to get something else down though. That's a huge step in the right direction. I got a whole ton of stuff to make a chef salad. I thought if it had a bunch of stuff besides just the lettuce and tomatoes it would be more appealing. The only problem I have now is coming up with the energy to cut everything up! I finally got the rest of my groceries put away this morning. I left all the cupboard stuff set on the counter and kitchen table over night. pretty sad huh? I have my dishes half done and my laundry half done. Boy would I love to have someone come over and give me hand once a week or somthing. At least when I'm having a bad time. It would save me a little energy to do things I enjoy. (keeping a coupl of spoons). I hope you begin to feel better I bought that stuff called activia but it's kind of expensive. 4 little tiny cups for 2.50. it says it starts working if you use it day for 2 weeks. So do the math. I did by some 1percent milk that has acidohpolis (sp) in it. so hopefully with all the things I'm trying I will continue to improve. Send me some of that watermelon would ya? I'm broke now lol
love you guys
carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 

Post Edited (okie) : 8/2/2007 11:01:33 AM (GMT-6)


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/2/2007 12:06 PM (GMT -7)   
Carol, I'm sorry you're still feeling so bad. I can really identify with the sluggish legs, especially when I'm running a fever. You've been down for too long! I'm glad you have your grocery shopping behind you, and who cares if your dishes aren't done or the groceries haven't been put away. You have the rest of your life to do all that. What I hope you can do now is get some good rest.

I'm proud of you for trying to improve your diet. My tummy is giving me fits today, and I have no idea why. A fudgesickle sounds so good! Watermelon is my favorite thing in the world to eat, especially the seedless ones. Especially in the hot summer when my body needs to cool off. I love to make watermelon smoothies with watermelon, blueberries, a little no fat yogurt, splenda, and a whole bunch of ice. It will cool you down no matter how much prednisone you're taking. I wish I had some right now.

I'm happy to hear that your lungs are a little better. What I love about you is that no matter how bad you feel, you always have a sense of humor and are always thinking about someone else. Enjoy your chef salad and get some rest.

Hang in there. When do you see your new rheumy?

Love ya,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, imitrex, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/2/2007 1:12 PM (GMT -7)   

Oh yeah Patty I'm dong great with being proactive. I took my vitamins and washed it down with a fudgesickle tongue . But I am going to have a chef salad tonight. I pulled everything out of the fridge and I'm boiling eggs right now. I did manage to get the groceries put away and the dishes finished. I even vacumed my living room floor. I'm beginning to think my dog has lupus. He sheds more than I do!

I bet your about ready for hubby to come back huh? Peace and quiet is good for a while but to much of anything is not good. Everyone keeps talking about watermelon I'm gonna have to go buy one. The last time I did it was over ripe though and I had to toss most of it. but nice cool slices are good. I like the idea of smoothes though.

I hope your tummy starts to feel better. With all these meds we have to take I'm urprised we don't all have a whole in our tummies.

Feel better my friend thanks for the shout

love carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 8/2/2007 1:49 PM (GMT -7)   
I bet you can't "shake this last bug" because you have "heavy legs" and it's difficult to shake them. yeah


Sorry, that's just how my mind works sometimes.....

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/2/2007 2:25 PM (GMT -7)   
LOL OMG Lynnwood you are as sick and twisted as I am. tongue
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/2/2007 2:35 PM (GMT -7)   
That's funny Lynnwood. I needed a good laugh.

Carol, don't laugh, but my dog has lupus. She an old rescue dog, part border collie, that we've had for 10 years and after two biopsies about eight years ago, we took her to a vet school and they diagnosed her. She's deaf and has cataracts, but is a sweet gentle old 'gal.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, imitrex, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/2/2007 3:09 PM (GMT -7)   
Oh no Patty, I'm so sorry. bless her heart. I've never heard of a dog having lupus before. Having been a recue dog she diffinently deserves better. sad
I decided to do somthing spontaneous and invite over my bro and sil and their neighbor for this chef salad. I have it all cut up in little baggies so they can put on it what they want. I must have chopped for over an hour. Now I need to go put my face on and take a nap or I'll never make it. They will be here in about an hour. Oh well at least I don't feel sick , just tired. So I'm using my special china. Paper plates!
give your puppy a huge hug for me.
love ya
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/2/2007 4:45 PM (GMT -7)   
Carol, I hope your chef salad supper goes well. I had to laugh because I went grocery shopping yesterday too and ended up having to leave all the non refridgerated items in their bags on the floor - there was no way I could put them all away. Just carrying them in the house took all my energy and the kids even helped to carry them in. I also had to laugh about how much energy it takes to chop things up. Several times I've bought some fresh broccoli or cauliflower (sp?) with the intent of chopping them up and it never fails that they end up rotting in the refridgerator.

I can't tell you how good our watermelon is - it's the best one I've gotten all season and it has been nice to be able to eat something aside from cereal, oatmeal and fudgesicles. I'd love to send some to you Carol, but between me and my son we've gobbled most of it up. We could both live on watermelon.

I think we should buy stock in fudgesicles since they seem to calm our stomachs. Hopefully your chef salad sits well with you. Maybe your brother will surprise you and bring over some watermelon :)

Have a good night and I hope everything you did didn't wear you out too much.

((((hugs))))
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/2/2007 7:24 PM (GMT -7)   
Hi Carol:

I just wanted you to know that I'm thinking about you this evening. I hope that your stomach and legs are feeling better. It sounded like the chef salads would be really yummy. I'm sorry I've not posted before now, but I'm sure you understand. Looking forward to hearing that you're feeling much much better.

Hugs,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/2/2007 7:34 PM (GMT -7)   
Hippi LOL, that's what I did the night before last. I threw out my old lettuce and celary and all my fresh produce. The evening went well. They only stayed an hour and ahalf. So that was good for me. and my SIL cleaned up the kitchen. Yeeha! I mentioned to her a friend was supposed to come over tomorrow but after today I wasn't sure if would be up to it. I said it depends on how many spoons I start off with in the morning. She just smiled at me. It's kind of code between her and I . She's the only one I've had read about the spoons.
The only tragedy that occured tonight was THEY FINISHED OFF MY FUDGESICLES! That's the only sweets I had in the house. Yes it was a sad moment to throw that empty box away.
I only ate a small amount of the salad but at least I got it down and it stayed there. Frankly it's not gonna kill me to go without grazing for a few days.
Yep right there with ya on the groceries. Never do today what you can put off til tomorrow!
Well it's 9:30 and I had a big day. I think I may go climb in bed with a good book.
Take care of yourself. I hope the watermelon helps ya feel better.
Love ya
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/2/2007 7:38 PM (GMT -7)   
Hi Barbara, Great to hear from ya! Yes I do understand. I know you are going thru so much. I wish I could do somthing more than pray for you. My goodness I don't know how you do it. I hope you are getting rest wish is more important than emptying boxes. If they bother you alot have hubby put all the boxes in one room and close the door. take them out one at a time. You really need to heal. We all think the world of you here and only want the very best for you. So please please take care and don't push it.
The salad was great thanks and the company was wonderful. The time was good too. They didn't stay real long so that worked out well for me. It was nice to do somthing on the spur of the moment. It doesn't happen often.
your in my thoughts and prayers
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/3/2007 7:31 AM (GMT -7)   
Aww shucks Carol... you made my day :-) Actually when I say brisk walk, well you know, may not be "brisk" for normal people but I'm trying. I have this strange craving for fudgesicles now... don't know where that came from :-) I'm so glad to hear you had a nice visit with your bro and sil. It sounds like you got a lot of support with them. That is truly wonderful.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate

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