Heavy legs (Okie, et al)

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Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 8/2/2007 10:14 AM (GMT -7)   
Hi Carol and the heavy legs group.  I'm also experiencing the legs that feel I'm carrying a ball and chain, but for about the last week I've also had extreme pain from my thighs to my ankles.  My BF took me to my rheumy Tuesday and they gave me a steroid injection and a toradol (sp?) injection for pain.  He also prescribed codeine because neurontin, ultram, celebrex, arthritis tylenol are not stopping the pain.  It really sucks.  Until this point I've always refused narcotics, but by the time the pharmarcy fills it (next week they said) I may not need it.  Regardless, next week I have my first neurology appointment in a couple of years, so perhaps he will be able to help. BTW, the injections have been a big help and I'm walking easier today. If I find the cause for this bizzare leg problem, I'll let you know!
Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac,  celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/2/2007 1:19 PM (GMT -7)   
Hi Donna, i'm sorry you have to be part of the heavy legs group. I'm glad the doctor gave you something to help the pain though. I'm not really suffering from pain just lead weight syndrome. That's so weird it will take them that long to get ya some pain meds. I do know what you mean about taking them though. I have been taking vicodin for several years now but I decided that I wasn't going to take them anymore. If I can't get by on OTC than I'm not taking it. I think it is causing more problems than it's curing. Of course that's just me I know everyone is different.
Good luck with the nuro appt: I hope it all goes well and you get some answers. Yes please do share anything you might find out about the heaviness in the legs.
Glad your pain is better
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 8/3/2007 5:07 AM (GMT -7)   
Hey Carol.  Thanks for the reply.  I'm walking a little better, but I'm still doing the Karlof/Frankenstein shuffle....lift heavy leg, move forward, repeat.  Also my pharmacy called and said my codeine was ready.  My favorite OTC is arthritis tylenol.  I told my rheumy I wanted something stronger as needed, but I still wanted to continue taking my arthritis tylenol.  It usually works great.  How are things going with your oxygen and how's your depression?  I saw my shrink this week also and she increased my prozac from 40mg to 60mg.  At least when I do the leg shuffle I'll be happy!
Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac,  celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/3/2007 7:45 AM (GMT -7)   
Hi Donna,

I hope the codeine helps with the pain for you. I always wondered how the tylenol arthritis was and it's great that its helping you. I hope you can get over the leg heaviness soon. Take it easy.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/4/2007 6:41 AM (GMT -7)   
Hi Donna, How's the Monster Mash doing? Did you get your pain meds yet? I was thinking of trying the tylenol arthritis. I have heard it works pretty well. I hope you have a nice weekend and not to much pain
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 8/4/2007 7:45 PM (GMT -7)   
Donna: That is the usual course of medicine I get. The pain killers and nerve blockers help sometimes. Toradol takes weeks to work. Usually I just have to wait it out. Used to get it for months at a time, now just a week or two. Seems strange when it happens like I turned into a zombie with wooden legs and I have to pick them up just to climb stairs. I guess we all have this problem. Never tried the Tylenol Arthritis yet. Didn't think of it. Hope you find something that works for you - Kristin
 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 8/6/2007 10:07 AM (GMT -7)   
Hi Carol, Kristin and Des.  I got the codeine, but it really didn't seem to help much.  I think that I do about as well on the arthritis tylenol and neurontin.  I felt poorly all weekend and it sure didn't help that I forgot to take my methotrexate until Friday night.  I forgot to put it in my pill box.  So not only is the monster mash continuing, but the fog is swirling in that black and white flick effect. Not long after I was diagnosed with lupus I made a small poster that I took to my rheumy: It was Lon Cheney as the wolf man and the caption read "Got Lupus?"
Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac,  celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 

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