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dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/7/2007 9:03 PM (GMT -6)   
My hubby pointed this out to me the other day about how my moods are all over the place for no apparent reason. I can kind of see it now that he told me... one minute I'm laughing, 5 minutes later mad, 5 minutes later crying. I'm crying lately more than ever now too and I used to not be like that. Does anyone else have major mood changes like this?

I'm trying to figure out how one minute I can feel really good (emotionally) and almost overnight it all changes. I don't know if its depression or what but my self esteem has gone through the drain. I don't really know why. I know that depression can come with Lupus and it can be from other reasons. Maybe because I'm back to grieving the old me and I look at myself now. I thought I went through this stage already. I don't know, this probably doesn't make any sense confused I just hope it goes away soon as fast as it came on.

Sorry for the weird post... but that's how I'm feeling... weird.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 8/7/2007 11:13 PM (GMT -6)   

Hi Des--

I'm sorry this is happening to you and I don't know how you usually handle prednisone, but I'm concerned because you take lyrica and this can be very bad.  Lyrica, which is very similar chemically to neurontin and feelings of depression on these drugs can be very serious, even if you are having other odd non-depressed emotional states as well.  Often it can take several months for a person to develop an allergy or intolerance to a drug, I have many allergies or intolerances whatever you want to call them, to drugs due to my liver.  Often, the liver puts up with the overload of medication for a while, then after a while, the damage from the medications causes the liver not to be able to metabolize them as well, they back up and you sort of OD on them because you aren't metabolizing them correctly. 

That's why I harp on the liver.  It may take years for the liver to be damaged, but once you have a problem like me, its extremely hard to turn it around.  Please call the doc about the lyrica, I can't take lyrica at all, neither can my mom, who was on neurontin but is still having problems.  These meds are very strong.   Some people take them no problem, I guess.  I haven't met any that have been on it more than a year.  My doc had to up my klonopin to get me off it without having a seizure so you can't just quit it and it may not be the problem.

On another note, I get like totally!!!!! every single time from prednisone when it wears off and a shot only lasts about a day or two, just wonderful beautiful days, then I can be like that for months and I can get beligerent and it is hard for me to see it.  I don't know what your situation is with hormones, but I take estrogen and sometimes certain medicines increase the amount of estrogen you get if you are taking it, and you can have mood problems.  I think that my thyroid problem (hashimotos) has caused my problem taking prednisone and I think there is someone else here too who can't take pred that also has hashis.  I have other endo problems as well. I hate getting pred, though I love the first day or two.  The last time I got it I was hearing voices and talking gibberish to myself and was really out there, he gave me two enormous shots and I was out of it for two months of sheer misery, crying, mad, sad, depressed, angry, frightened bigtime but kept telling myself it was just the pred and when I was about to check in to the hospital, it wore off.  I 've been better the month or two following it wearing off though my arthritis and neck pain got much worse for some reason.  I don't think he will give me pred again, or at least not that much. 

Please write back and I hope you feel better.  I don't want to scare you but I really think you need to call the doc that put you on lyrica, or any doc you think would best handle this, unless you know it is from the pred.  Its just the typical precaution that is in the package insert for lyrica and you need to let your doc know, it may be a sign that you are developing a problem with it.

((((hugs)))) and I hope you feel better soon.  It's probably either hormones or possible antidepressant/medication reaction.  You might just check your meds in the pill book or online to see if these side effects are mentioned.  I know about lyrica, but not the rest.  Mood swings are normal sometimes, but if your husband thinks this is odd for you and you are having trouble realizing it but do feel he is right, then it sounds like something of concern.


Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5751
   Posted 8/7/2007 11:20 PM (GMT -6)   
This sounds like what happened to me one time when I took an antibiotic that somehow reacted with my prednisone and increased one of my hormones drastically.

Have you have any changes in medications or your menstrual cycle? How long since your Dr last did a full blood/urine workup?

If these moods have lasted longer than 4-5 days, I would suggest calling or seeing your Dr, it's better to have things looked at before they go on too long -- better safe than sorry.

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/8/2007 3:23 AM (GMT -6)   
Hi Des, I'm sorry you have to go thru this. I myself am a walking mood swing. But than again I'm 50 years old. That kind of comes with the terroritory. That and the fact that I sweat like a pig all the time. I agree with both the others. It could diffinently be from your meds. It could be nothing all all too. Maybe just stress. Stress can cause all kinds of symptoms. I get that way when I want people to go away and leave me alone. I hope you speak to the doctor about it. See if they can help you pinpoint what it could be.
Try not to worry too much about it. We are women we can be moody if we want to! LOL
love ya
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/8/2007 8:13 AM (GMT -6)   
Thanks Marji, Lynn, and Carol... I feel so much better just reading your replies.

Marji, I never thought about the Lyrica but it could be. I have been taking it since November? of last year and the only problems I had with it is that it caused terrible drowsiness in the beginning until I got used to it. I'll have to read the packet on it. I tend to try and not read those as they can psych me out of taking a med but that is interesting what you said about it and worth looking into.

Lynn, My menstrual cycle is kind of messed up now that I got off of hormonal birth control so you may be right. Maybe I'm heading for PMS but geez, it never has been this bad and believe me my hubby's not shy, he would have said something before. But it could be that since I did get off the hormones, maybe like a reverse effect. My last blood workup was in March and last urine workup was last month. Docs said all looked okay. I do see my gyn sometime hopefully next week if I get my cycle since I'm getting the IUD and I may have to mention it to her. Then again, if I do get my cycle next week, we can probably chauk it up to hormones.

Carol, LOL Yes we can be moody if we want :-) and stress makes a lot of sense too. Why do we type A's do this to ourselves? I stress over the smallest stuff.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 8/8/2007 8:33 AM (GMT -6)   

I have had periods of weird mood swings like you describe, except I am very aware of the shift and I have no reason for the mood.  I would laugh for no reason, cry for no reason, get agitated for no reason.  No matter what your reason or non-reason is, I would explain this to a doctor.  Could be many things like the medication or depression, mood instability, adapting to changes (stress) or signify something else.  I have had all these at one time or another but it was very hard to tell what was going on when it happened.  Both a doctor and a counselor need to know this information if it continues. Sometimes we all have a day or a week here or there, like PMS, which isn't a big deal.  But if it continues a couple of weeks or so (or you have other symptoms), it should be looked at - Kristin 

 

 


 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 8/8/2007 9:49 AM (GMT -6)   
Des,

I'm so sorry you're going through this. When I read your post I wondered the same thing that Lynnwood did about any changes in your meds.

Most of my major mood swings have been caused by hormones. I don't know how old you are, but I also wondered if you could be pre-menopausal. During that period of time for me, I had trouble living with myself because my moods would swing from happy to mad to extremely irritable, to weepy, and on and on. Something make me think that you're too young for menopause.

Since I went through menopause I take estrogen and a few months ago when I was trying to quit taking some of my meds, I didn't refilll my estrogen and within a week was feeling angry and irritable with my family. After a few weeks I got back on it and my mood stabilized. Do you see an obgyn for your birth control?

On the other hand, I also understand the mood swing that come as a result of being chronically ill with no end in sight. But this sounds like something else, doesn't it.

I hope this passes for you Des. You're always so sweet and supportive of everyone here and I hope you feel back to your old self again soon. I'll be thinking about you.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5751
   Posted 8/8/2007 11:10 AM (GMT -6)   
Both lupus and several of the lupus medications can effect our hormone levels. This is part of what causes our fevers and hot flashes, as well as our mood swings. While menopause may be an additional factor, I was thinking that if the mood swings are associated w/hormone changes, that would effect the menstrual cycle -- then these menstrual changes would help indicate hormonal changes.

That's sorta the other way around than if you were menopausal, in that case any hormone changes that would effect mood swings would come from menopause rather than from lupus or lupus medications.

I hope that makes sense -- please do mention it to your gyn, as there are supposed to be tests (even an OTC counter one, but I can't locate it) that use markers in the urine to identify menopause.

Regardless of source (menopause or lupus/meds), there are a number of ways to control these crazy rapid mood swings. A little Xanax helped me thru mine!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/8/2007 12:08 PM (GMT -6)   
Thanks Kristen, Pat, and Lynn

Will do... I'm hoping its just a slight temporary irritation. I will mention it to my doc though either way. Menopause... well I'm 31 but anything is possible I guess. But I'm almost convinced along with all of you that it is probably hormonal. Makes perfect sense. Given that I will not be on any type of hormones anymore, I guess I will need to learn to just deal with it. I was thinking depression at first but I don't think that wacky mood swings are a part of it, I can be depressed one minute and then chipper the next. Crazy!!!

Kris, I'm so glad that I'm not alone, just not happy to hear that you go through the same thing. Pat, thank you so much for saying that, I really needed that about now. :) Lynn, Good idea about the Xanax, I take Klonopin and may take some when my mood goes haywire... couldn't hurt.

Again, your responses put a smile on my face... thank you.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


Jonny
Regular Member


Date Joined Jun 2007
Total Posts : 51
   Posted 8/8/2007 12:49 PM (GMT -6)   

Hi all,

Boy am I glad I was fishing thru posts here and I just posted on Lyrica today, and saw these, gosh same thing is happeneing to me on estrogen and a ton of stomach meds, and been trying antidepressants due to anxiety,dep. and pains from lupus, so now I think you guys might have answered my question let me give a little back up here: I started on 10mg of elavil only at night on that 3 mo, and was just soooooo sedating was great for sleep but not that great for pain so doc had me try cymbalta 20mg then got a severe@ allergic reaction after 10 days on it so I had to stop so then doc talked of symbyax or Lyrica he has samples so that will save $ but my biggest problem is mostly pains and depression now like I said on my post today I had a question on Lyrica it seems like most of the websites on it its mostly for pain not anx./depression so I see doc tom. and was going to have  a LONG talk about these 2 drugs. For my problem Im glad you posted about Lyrica as it MAY be the wrong drug to go on as Prednisone does control pain for me alittle.  Sorry to babble on here but seems like Iwill be trying symbyax (antdeprssant combo of  olanzapine/fluoxetine) unless doc comes up with something on the Lyrica.  Iwill keep you informed on it tx so much for listening and informing me of things on drugs.   I know we are not docs but sometimes coming here helps us even more.  Tx  Jonny (female)

 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 8/8/2007 12:54 PM (GMT -6)   
Lynnwood, what you said makes so much sense. You have a way of explaining things so well. Des, I've been taking compounded estrogen for about six years, and other than when I stopped taking it for a month, my mood has been more stable than it has since I started my period at age 14. I love my estrogen! Since you're only 31, you guys are right, you're not likely to be in pari-menopause. I hope you wait another 20 years for that!
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 8/8/2007 12:58 PM (GMT -6)   
Hi Des--
My doc gives me extra klonopin every month for that very reason. She doesn't want me freaking out and calling the office, LOL. Might be a rebound from stopping the hormones, just be careful if you have bad thoughts you need to tell someone right away. I'm glad you are talking to the doc. I got polycystic ovary disease and endometriosis before thirty with the onset of this lovely condition I have and very gratefully received a hysterectomy at 35. It started out with hormonal craziness. Also, perimenopause starts in some women as young as thirty, possibly earlier in some.

I just hope you feel better and whatever happens just know it will change again!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


janet s.
Regular Member


Date Joined Feb 2005
Total Posts : 67
   Posted 8/12/2007 10:25 PM (GMT -6)   
My daughter has always had huge mood swings which were generally at times of PMS or when things were going really wrong and she would get depressed. She just found out that she has pcos, and she is being treated by the use of bcp's. At first, she was in a happy, up mood, but now she is stressing out at her job bigtime (too much work) she seems to always be in a bad mood, and letting her boyfriend get her angry and upset a lot even though I told her not to sweat the small stuff. Of course I don't know the whole story, but can PCOS change your moods from very up to very down? Previously, she had been diagnosed with depression but totally refuses going on anti-depressants. When her mood is really bad, she really wants to fight with me, yelling at me abut this or that, when really, I did absolutely nothing wrong. I basically ignore her when this happens.

Could she possibly be bipolar also? Two or three psychiatrists diagnosed her with depression, and not bipolar. I want to help her, but really at this point (she is 25), I really don't know what to advise her, other than to boost her spirits when she is down. When she gets so irritable and down, it makes me feel the same way.

Any ideas or suggestions?

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 8/12/2007 11:38 PM (GMT -6)   
Janet,

I had never heard of PCOS so I googled it and found the following interesting websites. If you read through these and if she's willing to do the same, it may help her realize that something can be done to help her. It sounds like a miserable situation, and if taking birth control pills could help she might find that her life settles down. As a young woman I suffered greatly from PMS and it felt like I was bipolar. Just before my periods I would get so depressed and irritable and would convince myself that during the times that I was happy I was just fooling myself. Then two days later I'd be not just happy, but joyful. It was completely tied to my periods, which were always 28 days apart and I'm sure my family suffered from my mood swings. Since menopause my mood is very mellow and stable. I just hope that your daughter can find a good doctor who will help her understand the need for treatment.



www.4women.gov/faq/pcos.htm


women.webmd.com/tc/Polycystic-Ovary-Syndrome-PCOS-Topic-Overview

Good luck,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


janet s.
Regular Member


Date Joined Feb 2005
Total Posts : 67
   Posted 8/13/2007 11:40 AM (GMT -6)   
Pat,

Thanks for your reply! I will definitely check the websites you emailed me. My daughter always had the worst PMS too, in fact one of her obgyns told her she had PMDD and wanted her to take the female version of Prozac. It did start to help, but as soon as she found out what it really was, she refused to continue on it or ever take any other anti-depressants. In fact, she saw a psychiatrist for therapy for quite awhile when she was in high school, and he did help her.

She is extremely sensitive when her boyfriend or I say something that might upset her. She constantly tells me he did this or that, but the truth of it is she can be a handful with her moods and it is so hard for those close to her. If he can live with her for 3+ years, he must have a huge amount of patience. I know she can be very nasty when the mood strikes her.

I also think the stress of her job - 7AM to 5PM Mon.-Fri. really takes a toll on her moods. She also has a travel time of about an hour each way. She is swamped and her boss is trying to find her an assistant. As stressful and demanding as her job is, she wants to stick it out for as long as she can.

Janet

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 8/13/2007 10:02 PM (GMT -6)   
Hi Janet--
PCOS definitely causes mood swing because the ovaries are not producing proper amounts of hormones, they may work one day, too well, and then not again for months. This causes fluctuations in hormones. I don't know what bcps are but estrogen and other hormones really help. The behavior you describe is more indicative of hormonal behavior. I am very hypothyroid (though my TSH looks normal ro barely high, I have antibodies to my thyroid called TPOs and they are extremely high--like 1000 when they should be at most 60). High TPOs mean I have autoimmune thyroid disease. Because my pituitary is also effected, my TSH does not rise like others, but my thyroid hardly functions and I have all the symptoms. Fluctuations in one hormone creates fluctuations in all of them, so behavior and bloodwork may be off and hard to read. I would suggest she be check for autoimmune thyroid disease (hashimotos) since it often occurs with PCOS and several other diseases may also occur with it. You daughter is ill and working, but obviously not feeling really great, so you need to take it with a grain of salt. To jump to the conclusion that whe has mental illness when it has been determined that she has a hormonal imbalance probably isn't a good idea. I know you probably just want her to behave and be happy, but perhaps she needs encouragement to relax and take care of herself. PCOS can be extremely painful, doctors are jerks about making sure you get pain relief and proper hormones. Also know that patches are better for hormone replacement than pills or injections because they deliver and even amount through the day. When a woman takes estrogen by pill, as in birth control pills, they get eight times the amount they need within the first hour of taking it and they have less than half what they by the last half of the day. Also, the behavior you are describing sounds like too much estrogen possibly, so maybe she needs different mixture with more progesterone or a lower dose and definitely suggest a patch, I think everyone will be happier without the daily rollercoaster. I cannot take estrogen by pill because my liver doesn't like some ingredient in it and I get the behavior you describe and eventually a rash, though I can take a patch perfectly fine. At any rate, she needs to go back to the gyn and get better regulated. Adding more drugs, like psych drugs will just make things worse, even possibly increasing a risk for suicide.

I don't think there is a woman alive that hasn't been through what your daughter has gone through and though we may not be proud of it, but we were all like this and we can deny it all we want, but we all have our glitches. I understand your concern, but obviously her hormones are raging and she needs to go back the gyn and get fixed up. It may only take a phone call to a nurse to get a different prescription done. Its funny, mothers are very intolerant of their daughters, but they went through menopause once and were very very catty, and we had to deal with that, as teenagers or young adults and it wasn't very fun for us either. And mom's don't need to raise their voice to be really mean, we want so much to please them. Just try to avoid her if you can't deal with her and tell her in a friendly way that she's acting a loony and see how she likes the pills, how she thinks they are working, and tell her you think they can do a better job treating her condition and she needs to go back and get on something different, push the patches, they really work much much better if she can take them. I can sympathize, but you can tell from the post I've been on the other end, I went through a rollercoaster, but my mom was just a b**** all the time, very cold, though now we get along great. We both had problems. Just try not to judge her but to help her, and remind her that if you are seeing this behavior, it is likely coming out at work as well. I'm sure with the right hormone mixture and delivery whe will even out and be just fine. I hope both of you feel better soon and don't let this ruin your relationship. Its the doctors responsibiility to get this right, though she must communicate. Let us know what happens. I'm sure you'll do the right thing. Don't you remember ever feeling like she does, through menopause, postpartum, teenage years, ever?
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


janet s.
Regular Member


Date Joined Feb 2005
Total Posts : 67
   Posted 8/13/2007 11:04 PM (GMT -6)   
Hi Marji,

I just finished reading your reply to me about my daughter's mood problems. She has already seen one obgyn and then as a second opinion she went to one of the best reproductive endocrinologists in New Jersey. He actually made her feel better telling her that her pcos is mild and she shouldn't have too much trouble conceiving when the time comes, and then he can treat her again. The obgyn who made the evaluation along with almost every blood test known to womankind, put her on a low estrogen birth control pill (bcp). The endocrinologist told her that she can always change to another type of birth control pill if/when need be.

My daughter just got her own benefits on her latest job. For a year or so, she had no health insurance, so I had gone with her to a local hospital and she signed up for charity care. It took a year for the diagnosis, but all the tests and dr. visits were free of charge.

She has now chosen another obgyn and has already made an appointment to see her. I will tell her to speak to that doctor about possibly changing her birth control pill to another one. My daughter's travel time/work time equals 12 hours out of 24/day. Then she does graphic design as a side job after dinner. Fortunately, she signed up for a gym a few weeks ago, and when she works out there, she tells me she feels so much better. She did mention to me today that for the last week or two she feels she has been suffering from depression (which she has suffered since puberty). Her job is really too much for her but she is determined to make it work; she has a lot of ambition and determination. She also told me on the phone before that she hadn't felt well yesterday and today she feels like she is coming down with something, and that's why she was so cranky when we were together. She said she feels exhausted also. Isn't fatigue a part of PCOS too?

She is in a very close relationship with her bf, and he does have a tendency to butt into things when she wants to figure things out on her own. I told her to start ignoring some of the things he says. She feels he can be condescending to her at times, which stresses her out to no end. They have to work on their relationship by themselves.


Janet

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 8/14/2007 7:06 PM (GMT -6)   
Hi Janet,
Yes, and she is definitely working very hard. When I worked that hard, especially when I did computer work, just the sitting all the time and focusing so much can really make you stiff, painful in the back and wrists and eyes and give you tremendous headaches. I used to say that computer work causes depression (as a joke) because its like sitting and doing math all day, you have to focus so much and it saps all your serotonin and other brain chemicals. I'm not so sure that that isnt true. The gym is good, I did that while I could still do it. You're right fatigue and everything can come from the PCOS, I just think that the patches are better at delivering estrogen than the pills, because patches give you an even dose all day, while the pill is up and down. I would get very tired and grouchy when my pill wore off and in the morning I was really energetic, though somewhat thinskinned, due to tons of estrogen. I did better on the pills with more progesterone in them. As far as I know this is a trial and error thing, but there is no reason why she shouldn't be getting a more even and effective response from the hormones. I'm glad she can still have kids and all and that she saw some good doctors and bf can be real jerks, especially when she works so many hours, you just aren't in the mood after that for any pettty crap from the bf. Been there too long ago. Anyway, I'm glad you are helping you and she has you as a sane mirror of sorts to help her. Her body is changing now due to the pcos, and maybe not for the best, it might just get worse regardless, mine did. Didn't mean I wasn't fertile, was very, when I did have a period. Hopefully they did a good check on the thyroid, sounds like they tested everything, so maybe just a call to the doc to see if maybe she should wait and see if these moods go away or try a different one. It took me three or four to get set, before I developed an allergy to them, then when I went on patches they had to up it for me and I changed patches a couple times too. I'm sure you will help her get this straightened out, and the good thing is that YOU realize that she shouldn't be suffering so much, and that you care enough to help her. I always stick up for the kids, I just think young women have it so hard these days, men aren't what they used to be, in many cases, only want a woman for a paycheck or whatever their game is. Chivalry is all but dead. But she's very lucky to have you and I trust that you will gently steer her towards doing the right thing, whatever that is.

The endocrinologist told her that she can always change to another type of birth control pill if/when need be.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/16/2007 9:15 PM (GMT -6)   
Hey Des,

I'm sorry you are having such an emotional roller-coaster. I didn't have time to read all the kind responses, but I'm hopping some of them could shed some light for you.

Between our meds and our physical problems we can just be drained of so much energy.

You explained your dilemma very well and I really don't know how to answer except that I'm sending you . . .

Hugs and blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
 
Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/16/2007 11:29 PM (GMT -6)   
Thanks... yes I am doing much better... 99.999% sure it was hormones because I hit my cycle 2 days later. Never had PMS this bad but I just got off of hormonal birth control and that probably regulated my moods. Can't have that anymore though so I will just hang a sign around my neck a few days before I'm due as a warning to my husband. :-) I was pretty awful. Missed the IUD since my cycle ended right before my appt so I have to wait almost another month. I just want to get it over with.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


http://www.healingwell.com/donate


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/18/2007 12:34 PM (GMT -6)   
Hi Des,
   I'm glad to hear your doing better and have possibly figured out the cause. I like your idea of hanging a warning sign around your neck before your cycle...lol.
   Take care and keep us updated. You will be in my thoughts and prayers.
                                                                 Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 8/19/2007 11:52 AM (GMT -6)   
Hi Des,

I'm also glad to hear you're doing better and know what's been causing your mood swings. I can sympathize so much with you because now that I have finally gotten over that part of my life, I know what it is to feel normal all the time. When I had PMS what I wanted most was to get away from myself. When I would try to brush my hair I'd want to scream because I couldn't do anything with it. When someone would walk into the room, I'd want to scream at them and would look for reasons to do so. If anyone were to ask me if I was going through PMS, I'd want to scream louder because I'd think they didn't understand me. In other words, I would become totally irrational. I learned to admit what was going on with me and forewarn my family. I can remember my husband getting the deer in the floodlights look on his face and asking my daughter if she wanted to go to the movies with him. They would practically run out of the house.

I don't quite know why we women are chosen to go through this. One remedy that did help was to take water pills. I was prescribed triamterene by a gyn many years ago. She explained to me that just prior to your period your body begins to retain more water, and that includes your brain. So if you get rid of the excess water on your brain it can help with the feelings of irritability. Sounds strange, but it really did help.

I'm glad you're through the worst of it this month Des and hope you get a handle on it. My heart goes out to you.

Take care.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/20/2007 10:08 AM (GMT -6)   
Thanks Babs and Pat,

I'm interested in these water pills you speak of. Is it a diuretic? I do retain a lot of water and can easily pack on 2-3 extra pounds in the couple of days leading to my cycle. That's a lot of water!! I never thought of the possibility of water on the brain. That is kind of scary to think of but an eye opener. I may talk to my GYN about that next month. I did want to bring up the PMS stuff with her too when I'm there so I'll put this also on the list. If a water pill can ease some of this, I'll be happy to add another pill to my cabinet. Thanks again for the info!!

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


http://www.healingwell.com/donate


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 8/20/2007 6:40 PM (GMT -6)   
Des,

Yes, it's a diuretic. lol. I've just always called them water pills. The doctor who first prescribed them was a professor of gynocology at the med school and seemed to know her stuff.

Let me know what your GYN has to say about your pms.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 8/21/2007 2:30 AM (GMT -6)   
I know what you mean -- I am having my period right now and it seems to get heavier and heavier each month. I was diagnosed with endometriosis when I was 16 (I am 31 now) and they had me on the pill until two years ago when, thanks to the lupus, I developed a blood clot. Since then, my periods have gotten heavier and heavier, more and more painful. I take motrin and that's about all I can take. I was cuddled in a ball yesterday, and I had the OB ultra tampon AND a super pad on overnight. The toilet was like koolaid red. I've focused so much on the lupus the past few years that my female parts seem to be making their presence known now. ugh! i hate my body sometimes. Any advice??
Take care,
peachy
 
Diagnosed with lupus in May 2005
 
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
 
Supplements
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)

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