In Hospital Again!!

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/9/2007 9:08 PM (GMT -7)   
Hi Everyone:
 
I just wanted to do a bit of venting.  For the past three days I've been having really bad chest pains.  So I went to my Rheumy's office today and he sent me to the ER.  I'm fortunate that I wasn't having a heart attack or any such horrid thing.  I've got a bad case of pleurisy thought.
 
However, when they did my CAT scan of my chest, they covered me from my neck down to my knees.  My CAT scan came back positive for a clot in my belly, it's in my inferior vena cava vein, which carries the returning to my heart and lungs.  The doctor said it was just a stroke of good luck that they found it.
 
So I was admitted to the ward, I'm getting IV demerol and IV solumedrol for my pleurisy.  I'm getting large quantity of thinners to make sure the clot stops growing.  My body should remedy my clot with time.  I need to be monitored though, and I'll see a vascular surgeon tomorrow, to see if the clot needs to be removed surgically or not.
 
I just can't seem to stay out of this stupid hospital. I'm so so sick of being sick.  I have to say I mean I know I'm gonna get sicker and I'm not expected to improve at all.  So in my opinion I wish my body would just get over me being sick and send me on to a better place, w/o pain, shortness of breath, fatigue, etc.  I know I'm gonna die sooner than I normally would.  This is just the everloving pits. 
 
Anyway, I just wanted you all to know I'm in the hospital yet again.  Some healing thoughts and paryers would be greatly appreciated.
 
Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


Jonny
Regular Member


Date Joined Jun 2007
Total Posts : 51
   Posted 8/9/2007 11:42 PM (GMT -7)   

((((((HUGS))))))))JONNY (FEMALE)

 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/10/2007 6:54 AM (GMT -7)   
(((Barb))) I am so sorry that you are having to go through more and more. Please know that you are in my thoughts and prayers.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/10/2007 8:16 AM (GMT -7)   

Hi Leta, Jonny, and Des:

Thanks for your well wishes ladies.  You are so kind to repsond to my post.  Leta I think you misunderstood the post.  I didn't have a stroke, I've got a large clot in my vein that carries the back to my lungs and heart.  I was lucky that I came into the ER when I did.  If this clot would have continued to grow or would have pulled away from the vein I would have died, the doctor said.

I'll be here several days I guess.  My platelet count was 350,000 last week I'm now down to 89,000.  I need to have a different type of thinner and it needs to be given either in the ICU or the step down unit.  So they will be coming soon to move me to the other floor.  Also, they said that I'll have to take coumdin for 6 months after I'm released from the hospital.  They are treating the pluerisy with solumedrol IV and IV demerol pain meds.

I'll try to get ahold of Lynnwood or Auntkay and they will be able to call me here at the hospital if I'm in the step down unit.  If I'm in the ICU then I'll not be able to take calls while I'm in there.  Nikita said it 3 days ago, "mommy you're gonna go into the hospital again" and she was right.  Anyway, I just wanted to pass on an up date.  Like I said I'll probably be here throughout the weekend into Monday or Tuesday. 

May you all feel better and have a enjoyable weekend.  I love you all and I'm so thankful that you are here for me.

Love,

Barb


dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 8/10/2007 8:44 AM (GMT -7)   
Oh Barb, not again!  I'm so sorry to hear you're back in the hospital.  Try to keep your spirits up.  I'm sending you prayers and lots of positive energy.  (((Hugs)))

Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac,  celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


Leta
Veteran Member


Date Joined Aug 2005
Total Posts : 590
   Posted 8/10/2007 8:58 AM (GMT -7)   
Barb,

Sorry I misunderstood. Hope you feel better soon.

Leta
sle 99 w/cns/autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency 4/07. Meds are baclofen 40 mg, prenatal tabs, potassium, calcitriol 50 mcg, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, percocet, stuff sjogrens.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/10/2007 9:00 AM (GMT -7)   
((((((Barb)))))), You're having way too much pain and too many health problems, and I'm so sad you're having to endure such a nightmare. I think about you and Nikkita often and always keep you in my prayers. I wish I could meet you and give you a real hug, but since I can't, I'll be sending you lots and lots of positive healing energy. Thanks for letting us know what's going on.

I hope that the next time we hear from you the news will be a little better. Keep your spirits up and hang in there.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 8/10/2007 9:45 AM (GMT -7)   
Barb - There have been times close to death that I have felt that way too. I am so so sorry to hear you are back in there. To me, it is like prison (with needles). I realize this is torture for you, especially when it comes in waves like this. You have had so much to deal with lately. It must feel like a bad dream at times. Try your best to remember that each and every day we are here it is precious, to our loved ones and to us. Find your faith and focus on the positive. None of us know when we will go. It may be years off still. I'm progressing to and it is like having this heavy weight looming above you sometimes. Will it be today, tomorrow, next week, when I am 80 and have tortured myself over this for the last 40 years. We don't know. We just live for today, this minute, and make the best of it. I remember all my happy moments in life, all the times I thought I couldn't handle things but managed to make it through, I give the most love I can give to those who matter most and I meditate and focus my energy on healing. That is the best I could do. So far it is working.

We love you. Try and find what works best for you. The clotting most likely can be controlled. I think you have a few more rounds left in you. So far I beat my cats with their puny 9 lives :) You will too. I feel it. Doing double time on those hugs and prayers - Kristin
 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 8/10/2007 10:15 AM (GMT -7)   
Barbara,

I'm so glad you have the strength and the technology to post from wherever you are. I'll send you my phone # in a private email just in case you need it. You know you can call 24/7 and I'll answer if I'm home!

So great they happened upon the clot before it was able to do nasty things! I wonder why they did such a full scan, but really happy that they did. I hope the treatments go directly to making you feel better, and not the worse-then-better route.

Crazy noisy here today -- I can hear 3 lawn mowers, plus guys pulling down soffits and eaves to fix damage from carpenter bees...they are even walking on the roof. My cat has the right idea, she won't come out from under the bed -- I felt sorry for her and delivered her food under there!

Hang in there, lady, and know we love you,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


ocean1
Veteran Member


Date Joined Dec 2006
Total Posts : 707
   Posted 8/10/2007 11:03 AM (GMT -7)   

(((((((((Barbara))))))))))

You are and will remain in my thoughts and prayers.  I am sorry to hear you are in the hospital again.  I hope you can get outta there quickly.


Diane (ocean1)
________________________________________
Muscle disorder 2007; Lupus Sept. 2006; IBS 2004; Chronic Hives 2002.
Medications:  Allegra and Zantac; Lunesta, and Ultram PRN.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/10/2007 12:53 PM (GMT -7)   
Hi Everyone,
   I just talked to Barb. She wanted me to post the phone number to her room incase anyone wanted to call her. It's 301-319-8442. I know she would love to hear from some of you. She is really depressed and feeling awful.
   Hopefully, they will get that blood clot desolved soon and relieve that one stress.....(((Gentle Hugs Barb)))). Bless your heart Barb! You just can't get a break... sad . You are always in my thoughts and prayers.
                                 Lots of love and hugs, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/10/2007 1:07 PM (GMT -7)   
Sorry this happened to you Barbara, but glad they found the clot. That was really really good. I imagine you must be sick of hospitals, doctors, nurses, and whatever it is they give you for nourishment in there, let alone all the rest of the poking and prodding and more. I'm just so glad that they found this and hopefully all this means you are heading up for a long peaceful wonderful remission of sorts, you certainly deserve it. I was thinking that with all the stress you are going through outside of the disease stuff, moving, family, your hubby's retirement and all, maybe is triggering this some and when that all settles down, maybe so will your disease and sometimes the hospital can get you away for a while and force you to rest some, though I imagine they keep waking you up all the time for one thing or another. They did that to me whenever I have been in. The give you good drugs and you finally get out of pain and are resting peacefully and then they slam on the lights and shake you or say something in that annoying voice, no matter how nice you are, its annoying after like the tenth time. I hope they aren't doing that you. Then IVs are always a problem with me and that dumb buzzer goes off if I move just a little and eventually I just start pushing puttons! I hope you get peace and quiet and I'm so glad they caught the clot. You are in my thoughts and prayers always.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/11/2007 9:48 AM (GMT -7)   
Barb,
  I hope your feeling a bit better today....(((Hugs))). I will check in with you a little later today. I'm sending positive thoughts and prayers your way sweetie!
                             Lots of love and hugs, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 8/11/2007 8:54 PM (GMT -7)   
Barb,

I know how much you hate being in the hospital. I'm so sorry you ended up in there again. I hope they get everything under control quickly and you feeling as well as possible all things considered. I think of you often, sweetie. Always in my prayers.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


tash32
Regular Member


Date Joined Aug 2004
Total Posts : 233
   Posted 8/12/2007 7:56 AM (GMT -7)   
Hi Barb
 
((((((((((((Barb))))))))))))) I hope you are starting to feel a little better. You are in my thoughts.
 
lots of love
tash

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/12/2007 8:54 AM (GMT -7)   
Oh Barb, I'm so sorry this is happening to you and that you are back in the hospital again. My heart just breaks for you. The clot sounds scary and I'm glad they caught it. I'm praying for any kind of relief and peace that you can get during all of this. I hope you can feel all of the love and support from everyone here. I'd love to call you, but I worry that I'll interrupt while you are sleeping.

You are always in my prayers Barb. I'm sending you lots of love and hugs.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 8/12/2007 12:34 PM (GMT -7)   
I talked to Barb this morning she sounded like she had a bad night. Her iv had to be replaced and they had a very hard time getting a new one started.She has no idea of when she may get to go home no word of it so far.I'm praying everything will go well and she'll get some releif soon. Just thought i'd give you ladies a quick update on her hope your all doing well. Hugs Kay

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/12/2007 12:46 PM (GMT -7)   
Tks Kay,
   I'm glad you posted an update on Barb. I'm sorry she had a bad night...Bless her heart!
   Barb, you are always in my thoughts and prayers sweetie!
                                              Love, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/12/2007 6:04 PM (GMT -7)   
Just letting you know I'm thinking of you and sending good wishes and prayers your way.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/12/2007 7:29 PM (GMT -7)   
 I talked to Barb earlier tonight and she is in alot of pain. She said her back in hurting terribly like back labor when giving birth...Ouch!
 Barb, I hope they have gotten that pain under control by now and your resting. Hang in there sweetie. I wish things would turn around for you for a change...(((Hugs))). Your in my thoughts and prayers.
                                      Lots of love and hugs, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/13/2007 9:45 AM (GMT -7)   
Barb,

I hope you're getting a little relief from your back pain. I had back labor with my second child and wouldnt' wish it on anyone! You poor thing, you're suffering so much and I feel so bad for you. I hope that knowing that you have friends here who are praying for you and thinking of you all the time gives you a little smile. I'm sending lots of loving ((((((hugs)))))) your way and I hope you get to go home real soon.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/13/2007 8:47 PM (GMT -7)   
Barb, hope you are out of pain and resting.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 8/13/2007 9:06 PM (GMT -7)   
I'm sorry you are going through so much! sad  
 
Sending hugs and prayers, Barbara.
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 8/13/2007 10:23 PM (GMT -7)   
Hi Barb!

I have you in my prayers and hope that your pain is lifted from you so very soon! Your smiling words and encouraging thoughts for everyone else are being reflected back to you in your time of pain. Can you feel the strength of love being sent your way from your HW friends?

Rest well and be well!
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), RelafenMethotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra & Patonel Eye Drops for Allergies.


 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/14/2007 8:24 AM (GMT -7)   
Barb,
I hope this resolves soon and that the pain is controlled. I am so sorry you are in the hospital again.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD

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