Hi Susie and welcome to our forum. One of the most accurate and touching explanations of what it's like to live with SLE is at www.butyoudontlooksick.com. Go to this link and have your husband read the Spoon Theory. I think almost all of us at the forum have read it, probably several times. Once my daughter read it, she really understood what I go through every day. Anyway, I'm glad you joined us and please let us know how you're doing. Hugs!
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