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misscali
Regular Member


Date Joined Feb 2007
Total Posts : 154
   Posted 8/12/2007 9:16 PM (GMT -7)   
does anyone know a good "lupus diet"? to stay healthy etc.
i know we are supposed to eat healthy (low fat, etc) but more specifically are there any foods that anyones has found to make you feel better/worse? i have heard that alfalfa sprouts are the worst for people with lupus but i was wondering if there were any other foods we should avoid to maintain a relatively "healthy" immune system or prevent flares...

hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 8/13/2007 7:15 AM (GMT -7)   
I've read some of the same things that you have read and don't have a lot to add. I think that basically we are supposed to eat a well balanced, low fat, healthy diet with as much whole, natural foods as possible. I've read that a lot of the nightshade plants can aggrevate lupus symptoms. I have also found that I react really badly to any artificial sweetners like aspartime (sp?) or splenda or any others.

Since I've had lupus I've noticed that my tastes and my cravings have changed a great deal. I used to eat extremely healthy, but now a lot of those really healthy foods don't sound good to me anymore and sometimes I just can't tollerate them. Unfortunately it's those comforting carbs that taste the best to me now, but they sure make the weight pile on fast. I still try really hard to eat healthy, but it can be very challenging.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 8/13/2007 9:58 AM (GMT -7)   
I've been told by my doc that its important to follow a heart healthy diet. He recommends the same standards as the American Heart Association. Watching your cholestorol and bad fats are very important as you know your heart is at increased risk with SLE. I agree with Hippi about the nightshade plants which includes alfalfa can aggravate your Lupus. I have been pretty good with my overall diet in the last few months, although I have to admit that I cheat here and there but mostly I have been good.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 8/13/2007 10:06 AM (GMT -7)   
According to The Lupus Book, by Daniel Wallace, we are often allergic to things in the legume family -- this includes most beans...black beans, kidney beans, navy beans, etc.

It's also important to note that the carb cravings we often have are a result of prednisone changing our metabolisms -- these are actual physical cravings, they do not mean we are "weak-willed fatties".

I find I feel much better if I can cut back on carbs and focus on getting enough protein (40-45 grams per day for women). Not easy, but try it a couple weeks and I bet you'll feel better like I do when I can stick to it....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 8/13/2007 12:06 PM (GMT -7)   
Whew! Here I thought I was just a weak-willed fattie! tongue tongue tongue

I've heard or read that we shouldn't eat too much soy because it strengthens our immune systems. I had always eaten a lot of edamame but have cut way back.

Lynnwood, the info about legumes is news to me. I really need to buy Daniel Wallace's book and read it cover to cover. I'm cooking a pot of lentils right now, so if tomorrow I feel bad, I'll know why. I would never have made that connection. I hope :-) I find that I'm not allergic, because I love lentil soup, split pea soup, black bean soup, etc. They're low in fat and healthy. And tasty.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 8/13/2007 12:50 PM (GMT -7)   
I found it satisfying when I read that in Dr Wallace's book -- as a child I had a *very* difficult time eating legumes -- I would choke on them and have an awful time swallowing them. Of course, my parents thought I was just being difficult and made me eat them.

How vindicating it felt to find out that reaction could be part of a physical allergy!!!!! (I would argue with the 'tasty' label on lentils.) And nice to know I had a built-in reason not to become a vegetarian. (Most vegetarians use legumes as one of the main protein sources.)

For some reason I'm thinking the edamame is different because it is still green. Not processed into a soy product or allowed to dry into soy nuts. But I certainly don't know where I read or heard that.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


misscali
Regular Member


Date Joined Feb 2007
Total Posts : 154
   Posted 8/13/2007 3:29 PM (GMT -7)   
hmm its a shame that nightshade veggies are bad for us becuase I LOVE tomatoes, bell peppers and eggplant...

does anyone eat a lot of sushi? I really like sushi too and apparently fish is good for you but since I am on immunosuppressants (cellcept) is it risky for me to eat raw fish as it would put me at a higher risk of infection? I dont really like cooked fish as much...

sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/13/2007 6:36 PM (GMT -7)   
Hi, Misscali. You just have to try the nightshades with caution. As a rule of thumb, you should try the food 3 times before you completely rule it out of your diet. They are known to cause some people problems though. Daniel J. Wallace's book is my very favorite! I remember those alfalfa sprouts were listed as no-no's though. The Omega-3's are supposed to be really good for us, I believe. I try to eat salmon at least once a week. I think tuna has them too, just not as high a quantity. I don't do sushi at all, so I'm not familiar with that one. You can also get Omega-3's from Flax Seed (make sure it's milled though--your body can't use the other). This one has a two-fold benefit also providing a great source of fiber. I was able to completely eliminate a very expensive fiber supplement I was having to take to help with constipation by eating only 1 tblsp of flax seed a day. There are several adjustments you can make to your diet that are supposed to help. I'm just beginning to try some of them, I hope this helps a little.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/13/2007 9:03 PM (GMT -7)   
Hi misscali--
I agree with the posts on lower carbs higher protein, and being careful about sugars and artificial sweeteners. I use splenda, nutrasweet has caused me problems with my bladder over time. I try to eat salmon once a week too. I feel this is very important. I love sushi and raw oysters, but there is a risk. I only eat sushi that has been previously frozen as it kills any flukes that may be in the fish, and i haven't been eating it as much. I shouldn't eat it at all. Baked salmon with orange zest and ginger really does it for me. Greens are really good for you, I eat a lot of fresh greens, either stir fried or pressure cooked. You probably know about pressure cookers and steamers vs other cooking methods, how they preserve the vitamins, while microwave and boiling and freezing sap them. I don't like the heart healthy diet because it contains not enough protein and iron containing foods for me and way to many carbs and trans fats like margarine. There is a special diet for epilepsy called the ketogenic diet where you eat tons and tons of fats, so my son and I, I need to eat a moderate to high amouht of fats for my liver, eat real butter, avocados and other verry fatty things. As for carbs, oatmeal is really good for you, even if you are diabetic, because fiber undoes the damage of carbs and it is high fiber. I also choke on beans and don't care for them. I also take omega 3 fatty acids by pill and flax seed oil at times, sometimes using it as a healthy alternative to butter, it is very buttery. I eat meat and vegetables primarily due to diabetes, with a little dairy--cheeses and probiotic yogurts--and bananas because of my HCTZ diuretic. Berrys as fruit, occasionally melons. I was starting to get into soy but it hurts my urinary tract for some reason, so there that goes. Also, I drink milk. Dont know if this helps, I have bladder and diabetes restrictions, and gi restrictions. I have never had anemia thanks to my dietary restrictions though my ferritin is often high.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/14/2007 8:16 AM (GMT -7)   
You know what's really weird about this whole diet thing is that I have been a strict vegetarian for over 20 years and overall, I was able to have a very well rounded diet and eat very healthy. After I got lupus I found it harder and harder to find healthy alternatives that my body could tollerate. I used to eat a lot of the meat substitutes that are very high in protein, but it was soy protein. I'm wondering if my body was telling me that it couldn't handle too much soy. about six months ago, I broke down and started eating some seafood and poultry - I just physically couldn't find a way to get protein that my body could tollerate on a vegetarian diet. I still struggle emotionally about not being a vegetarian anymore, but my body has thanked me.

This disease is so weird. I've been saying this for a while, but I really need to get Dr Wallace's book.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/14/2007 5:44 PM (GMT -7)   
Hippi--
Don't feel bad, many cows and pigs get to live at least a few years because of the fact we eat meat and use hides. And the hides don't sit in landfills like plastic or make us dependent on fossil fuels, or produce or need toxic chemicals to be made. No one would own a cow just for the fun of it and I remember playing with the farm animals we ate and that they had a good life. Many do, many don't. I'd just hate it if the only place I could see a cow or pig or chicken was the zoo. Whats really nice is if you can go to the meat mkt and find out where they are getting the stuff from and how the cows are raised. We did and ours were grain fed but also pastured on rich pasture and were not pent up in tiny stalls. I guess I like to try to reward responsible ethical farmers when I can. We raised and slaughter our own chickens and they had a great life, in the end, free ranging. If I had more energy I'd have my own cow and then slaughter it, so it lived good. I cant eat soy either anymore, or any beans either, so I know how that is. I'll have to chek out dr. wallace too.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/16/2007 7:25 PM (GMT -7)   
Hi Misscalli,

If we can cut back by 100 calories at each meal and eliminate some truly empty calories (sweetened pop, tea, juices etc) we would lose weight slowly but steadily. Even eating one cookie instead of two is huge.

Translation:

100 calories less in each day for one year is 10 lbs!!!!

so 300 less calories is 30 lbs.

That would be w/o extreme and w/o adding exercise. When you add exercise or trim fat and sugar along with the changes, then it adds up to more weight loss.

I've lost over 30 lbs. since the beginning of the year and hoping to keep losing until I'm at a weight that doesn't elicit unwelcome comments from the docs. I really believe that if I could lose a good portion of my excess weight, it might help my stiffness and pain.

Thanks for starting such a needed topic. . . and good luck in your efforts

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
 
Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 8/17/2007 3:04 PM (GMT -7)   
What are nightshade plants or foods?? And why do they call them nightshade?
 
kitty
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06 (gone after ablation 07), SLE '07, Raynauds '07....Plaquenil,  NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/17/2007 5:36 PM (GMT -7)   
Hi Misscalli:

I agree with the others about the diet thing. I've got gastroparesis in addition to my other health issues. So I've got to maintain a low fiber diet. The gastroparesis causes my stomach not to empty properly. I'm to avoid foods that are hard to digest.

Always Rosie gave some good advice about cutting back on your calorie intake and your being able to loose weight. Just wanted to offer some encourage meant to you. Good luck with eating a healthier diet.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


misscali
Regular Member


Date Joined Feb 2007
Total Posts : 154
   Posted 8/17/2007 9:00 PM (GMT -7)   
That is a really good idea about cutting down on calories. I was watching a tv show about a diet in which you can eat all the foods that you love, just in smaller portions so it is along the same lines.

Kitty: I looked up what the "nightshade" veggies are and they include bell peppers, tomatoes, potatoes, eggplant etc. They are the "vegetables" that are acutally fruits. I do not really know why they are not so good for people who have lupus though. I love all of these veggies and eat tons of tomatoes....so far i do not feel any different or worse when i eat any of these veggies but i wonder if i would feel eve better if i completely took them out of my diet.

I am also going to try to eat more fish and less fatty meats.

is it better to eat chicken or beef? i think beef might be a fattier meat but it has more protein and iron doesnt it?

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 8/20/2007 7:40 PM (GMT -7)   
I actually asked my doctor if there was a better way for people with Lupus to eat.  He suggested the Mediterranean diet.  It's not a diet plan that you buy or anything, but you can research the way that the "meds" eat.  It's alot healthier.  It includes lots of veges, salads, oh, and red wine if you like.  However, I'm a firefighter and cannot have a glass of red wine each day, so I've also read that part of the diet includes 100% purple grape juice and is equivalent to a glass of wine.  I've even found "med" food pyramids on certain websites and recipes.  I've started to add about 1 new item a week into my diet.  Hope this gives you some ideas.

karasmommy
Veteran Member


Date Joined Mar 2005
Total Posts : 589
   Posted 8/22/2007 8:42 AM (GMT -7)   
I believe that the nightshades reference is that alot of those nightshades listed above can actually aggravate and irritate arthritis symptoms and imflamation - so that would make sense in the Lupus catagory.
Ellen
Diagnosed with Lupus - April 2002
Diagnosed with Crohn's Disease - January 2003 (problems since early 1990)
Fibromyalgia 2005 
Meds:  Flexeril 10mg as needed, Plaquenil 200mg, Probiotics, Multi-vitamin, fish oil, Cal/Mag Supplement
Off Immuran as of April 1st and doing well!!
 


starzphalling
Regular Member


Date Joined Jul 2006
Total Posts : 82
   Posted 8/22/2007 10:44 AM (GMT -7)   
the mediteranian (sp?) food was mentioned, but has anyone read anything about chinese food? i love it, easy to make and dairy free (yay to food allergies!!) well i was just wondering. and twizzlers and marshmallows are great for sweet treat cravings tongue tongue tongue at least thats what i keep telling myself hehe

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 8/22/2007 6:15 PM (GMT -7)   
I'm a firm believer in marshmallows and twizzlers myself.  Which diet does that fall under?

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/22/2007 6:26 PM (GMT -7)   
It falls under the "seefood diet" . . . . I see the food and then I eat it!!! LOL devil
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator

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