Finally back online

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Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 8/13/2007 9:00 AM (GMT -6)   
Well, after a long and weird period without the net I am finally back online. I am unsure how exactly I am feeling right now. The lupus appears to be in remission but the fibromyalgia is flaring and the RA is just barely controlled. The good news is I am healing well from the breast reduction and do not have anymore infection. Apparently one of the stitches was driving my body nuts and as soon as it came out the infection cleared up immediately. I see my rheumy tomorrow morning. My sleep pattern has been royally screwed up- I am unsure how to fix it as going all day without any sleep will make me feel simply horrid and might cause a migraine. Anyone have any advice for a person who is having trouble sleeping at night yet is sleeping all day once they finally crash? My second injection went well and I plan to have an epidural to help with the spinal inflammation so maybe I can get off enbrel. I will be asking my rheumy for 5mg of prednisone a day as I am down to 50mg of Imuran a day and would like off entirely.

I am losing some weight slowly. I am happy about it.

We are in the new place. It means a lot less money spent on gas as hubby's work is 10 minutes by car (about 3-4 blocks). I love my dishwasher and we tend to eat at home more.

I am looking forward to school starting back in a few weeks. I am tired right now and need some sleep to make up for being unable to sleep last night.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 8/13/2007 9:05 AM (GMT -6)   
redrose, I'm glad you are back on line and that you are all moved. That's good news about healing from your surgery and the weight loss - congratulations on that. It must be hard sometimes to sort out what is going on with your body and distinguish if your symptoms are coming from lupus, fibro, or RA.

I hope your rheumy can help with your meds and help get things with your fibro and RA more under control.

Take care and it's good to hear from you again.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 8/13/2007 11:19 AM (GMT -6)   
redrose, it must be such a relief to be in your place and to not have to wash dishes by hand. I envy your weight loss and am glad to hear that you are recuperating from your surgery.

I had the same sleep problem as you and finally succumbed to taking lunesta in the evening. I don't let myself sleep during the day and I've finally gotten back on a normal cycle. Not sleeping was hurting my health as much as anything else. I also started taking warm baths in the evening and they would help relax me. I hope you get to the bottom of this and start sleeping at night. I think it will help you feel better and I know you're doing your best to find a solution.

It's good to have you back!
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 8/13/2007 12:07 PM (GMT -6)   
Welcome back redrose... I'm so glad to hear that you have recovered from surgery. That one stitch that you talk about sounds very painful and I'm glad that it healed when they removed it. I'm sorry that your fibro and RA are acting up. Hopefully you can get plenty of rest now that you are all moved and settled. And I agree, dishwashers are life savers... cant' imagine how I lived without one.

Take Care
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements

Veteran Member

Date Joined Dec 2005
Total Posts : 1944
   Posted 8/13/2007 10:40 PM (GMT -6)   
Hi redrose, good to hear from you. Your new place sounds like it will definitely be less stressful for you and your family. Dishwashers are great. I have the same problem when I take pain meds, especially hydrocodone for some reason, it keeps me awake, so I end up not being able to take that near bedtime, or sleep all day the next day. I don't know what to say except that I usually have to just stay up sometimes then sleep when I get home. Also, my ultram doesn't keep me up, so I take that near nighttime for pain so I don't stay awake. I know what you mean. I hate getting up in the morning, but my bladder makes it necessary. I hope your pain is subsiding and you are healing well and the surgery is helping. Losing weight is great. Well take care.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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