GOOD NEWS FROM RHEUMY!!!!

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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/14/2007 8:03 AM (GMT -7)   
Well, my rheumy apt went well. I am officially in remission with the lupus. The fibro and the RA are okay but no remission on them. She took me off Imuran and placed me on 5mg of Pred a day. I will also be switched from Skelaxin to Flexeril. But otherwise all is well. She was pleased with how I am doing. She said lose what weight I can in the next month or two and then if I want a baby now is the time. Hubby and I very much want a baby. It would be a blessing for us.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 8/14/2007 8:08 AM (GMT -7)   

Yay, Yay, Yay!!!  yeah yeah yeah    Happy dance!!!

That's such great news about your lupus.  I hope everything goes well with coming off Imuran and that the 5mg of prednisone will help to keep you in remission.

It would be great if you could have a happy and healthy pregnancy and a happy healthy baby.   I will keep you in my thoughts and hope that everything continues to go well for you.  Make sure to keep us updated on your health and any news about a baby.

It's so great to hear news about remission - it gives us all hope.  Just make sure you keep taking good care of yourself and don't overdo it too much. 


Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/14/2007 8:17 AM (GMT -7)   
I'm so so happy for you redrose!!! :-)

Here's to a long remission for you and a successful conception. Please keep us updated!!

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 8/14/2007 8:54 AM (GMT -7)   
Thanks so much. For me getting pregnant isn't the problem, staying pregnant is (my cervix is weak and will have to be stitched then there are the early contractions that drive my blood pressure sky high but maybe with the lupus finally controlled the blood pressure won't be an issue). I even know my ovulation timing so we are good to go as soon as I get my IUD out (hope to lose at least 30lbs before that happens). I wish everyone a remission and really hope this one lasts a while for me. Considering how close this came to killing me before I got treatment and how one AI disease snowballed into several I figure maybe I deserve a break.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/14/2007 9:01 AM (GMT -7)   
Redrose that is wonderful news. So many good things are finally happening for you. It's about time. You deserve it. I just pray you will have success with the weight lose and have a very happy and healthy pregnancy. Thanks for sharing the good newsd

hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/14/2007 9:37 AM (GMT -7)   

Redrose,

   Thats wonderful news!!!! yeah yeah . I'm so happy to hear your doing so well. I wish you and the hubby all the best on having a baby!!!

   Please take care and keep us updated. You will be in my thoughts and prayers.

                                               (((Hugs))) Babs


 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 8/14/2007 8:16 PM (GMT -7)   
Fantastic news, Redrose! I am soooo happy for you and will keep you in my prayers!

Yeah!
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), RelafenMethotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra & Patonel Eye Drops for Allergies.


 


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 8/14/2007 10:33 PM (GMT -7)   
Good news is a joy to read! I'm very happy for you about the remission and happy that you and hubby have the go ahead to start a family together. Good Luck and take good care.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/14/2007 11:36 PM (GMT -7)   
Thanks. For us having a baby will be wonderful and painful at the same time. I have been pregnant 8 times. 6 with my first husband- 3 made it far enough to have a baby and I lost 1 to what they say was SIDS but may have been a metabolic disorder. 2 times with my current husband- our son died from a metabolic problem and the lupus caused the second pregnancy to fail- blood clot in the placenta. This time I am assured that with baby aspirin, advanced testing, and having the lupus under control my biggest problem will be my weak cervix which they can fix with a stitch placed at the proper time. I have wanted to try again for a while but it has been 5 years since my last pregnancy and 7 since our son was born and died. At least now we know that there is a metabolic problem in both families and that it affects boys more than girls. So we researched and found ways to stack the deck naturally in favor of a girl. I just hope it works because a boy would break my husband's heart a second time no matter that this time the outcome will be good (a special diet is all that is required and a glucose IV would have saved our son had the doctor cared enough to treat him or listen to me instead of thinking I was making it up).

Sorry, it is that time of year again for me. The 5th will make it 11 years since my daughter died and December will make it 7 since my son died. I really dislike this time of year. Which is why good news is such a big deal. It is also why I was hoping that I would be cleared to get pregnant soon because I do not think I could handle a fall or winter birth.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/15/2007 7:16 AM (GMT -7)   
(((redrose)))
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/15/2007 5:00 PM (GMT -7)   
Redrose, (((((Hugs))))) I'm so sorry to hear of all your previous adversities. It certainly sounds like a remission and good news are long overdue for you! It sounds like you and your hubby have looked into whatever it might take to make this time successful for you. I truly wish you all the best! Please keep us informed in your journey.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/16/2007 1:31 AM (GMT -7)   
Thanks. Pregnancy for me was life threatening a couple times just because no one would admit I had lupus and treat me. This time I have treatment and know enough to interview pediatricians until I find one who will listen to my instincts and do what I ask if I feel something is really wrong. What happened with our son was all because the stupid pediatrician would not listen or believe me then he told my mother in law I killed our baby which made relations with her worse. She still believes him even though the police, autopsy, and genetic testing we did last summer all say it was not my fault but a tragic mistake by the doctor. Too bad no lawyer would take the case and sue his pants off because I would have liked to go after his medical license.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/16/2007 10:07 AM (GMT -7)   
Redrose--
I'm so glad you are in remission with lupus. Is that when they say your inflammatory stuff is down or is it something with ANA? At any rate I'm so glad you are feeling better and sounding back to your old self.

I'm so sorry to hear about your son because we have a similar problem that effects the adults in our family, but I know there are several metabolic glucose type disorders that affect babies at birth from looking at our stuff and they are so serious and I can't believe a pediatrician or neonatal specialist could be so awful. Actually, I do believe it. OUr medical system is so corrupt, and there are no avenues for malpractice anymore and licensing means little, with our greed culture, all anyone has their eyes on is the money. Medicine used to be a calling, like ministry.

The worst thing is when you know, you know darn well, that they are doing the wrong thing and they just give you that condescending smile and line of crap. OOOOh makes me mad.

Anyway, I feel so much for you and am so glad you seem to have gotten the pregnancy thing down by now. I always thought pregnancy was an autoimmune disease ;) It does feel like your body attacks itself sometimes, like there's a war going on!

Well, its so good to see you getting the care you have needed for so long now that you got your social security and the life you've deserved. Perhaps, not having to struggle so much has helped. I swear, nothing can make you sicker than waiting for disability. Well, thanks for your reply to my post. I still have some questions. Take care and happy for you!!!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/16/2007 10:10 AM (GMT -7)   
Wooo hooo!!! Great news RedRose!!!

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
 
Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/16/2007 2:24 PM (GMT -7)   
Redrose, what a blessing for you - remission and a baby! Can you find a high risk obstetrician to see when you get pregnant? As you know, there are doctors and then there are doctors. There's no reason for you not to have the best, especially one who specializes in difficult pregnancies. I wish you all the best. It's about time!
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/16/2007 4:42 PM (GMT -7)   
I will have a maternal fetal specialist- used to call them perinatologists. I am lucky my insurance covers any in-network doctor I want and most are in network.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD

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