Photo's of what my skin looks like

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 8/14/2007 8:57 AM (GMT -7)   
These are pictures off the net. I don't have all of them but the first 5 look pretty much identical to what I have. The ones inside my mouth are not nearly as bad as the picture on here though. Is this simaliar to anything you have? I have it all over my back and my neck too. I have to cover it with makeup on my chest if I wear a v neck. They say they can be removed with laser surgery but I don't have a clue what that would cost. and I know it will come back. I hate it! It never goes away and keeps getting worse. sad http://images.search.yahoo.com/search/images?_adv_prop=image&fr=slv8-msgr&va=telangiectasia&sz=all
 
love ya
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/14/2007 9:34 AM (GMT -7)   
(((((Carol)))))
   Bless your heart sweetie! The first pic looks like the spider vein look I get when taking pred. I don't know about the other 4, sorry. Hopefully, someone will come along soon to help you out more.
  I hope this gets better for you soon. Please take care and keep us updated. You are in my thoughts and prayers.
                                        Love and hugs, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 8/14/2007 3:45 PM (GMT -7)   
Telangiectasia is associated with scleroderma/CREST.  The Scl-70 antibody has come back positive on my last 2 labs.  So I've been looking into it and came across the connection.  I had noticed several spots in my mouth, but they faded after a week or so.
 
I'd say report it to your Rheumy since CREST is suspected anyway.
 
 
Jeannie ~
   Mom to Ty (4 yrs old)
   and 3 Shelties
 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 17.5mg (RA); Metanx 5mg (RA); Remicade (RA); Lunesta 2mg (as needed)


Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 8/14/2007 3:50 PM (GMT -7)   
 
I found where I was reading about it.  Hope that helps!  Take care.
Jeannie ~
   Mom to Ty (4 yrs old)
   and 3 Shelties
 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 17.5mg (RA); Metanx 5mg (RA); Remicade (RA); Lunesta 2mg (as needed)


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/14/2007 5:16 PM (GMT -7)   
Hi Carol,
I have something like that and they thought it was roseacea, because it acts like that, but the roseacea cream is unplugging my pores, i have that orange peel skin, but not taking away the redness or the spider veins. Spidering like this is also a sign of liver problems, which can happen from meds. Then it sounds like steroids and lupus cause it too. Whatever it is, once it spiders, it doesn't go away without some kind of corrective action from the dermatologist, at least that's what I was told. I'm beginning to think going to the dermatologist was maybe not the greatest idea, though he will know by now that my mask is lupus and not roseacea unfortunately. I'm sorry you are having this and I know how hard it is too deal with, especially since its not stabilized, so getting it treated would have to be an ongoing thing. I do think medicare pays for this stuff though. So far they have even paid for my vitiligo repigmentation, which was amazing! I hope that it settles down and stops spreading. Oh also, someone told me to avoid certain foods, hot water and other things that can make it worse. You might want to check to see how your last liver tests were, to see if that is making it worse. Are you getting any black vertical lines like splinters (splintering) under your nails or are you yellow under your tongue or in the eyeballs (jaundice can be hard to see)? These things are signs of liver problems. I wish I could make your skin problem go away, I know how it can be.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/14/2007 6:09 PM (GMT -7)   
vitamin K cream can sometimes help spidering but it takes a few weeks. It even helps bruises and under eye circles.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/14/2007 7:10 PM (GMT -7)   

Hi Bab's, Jeannie,Marji, and Redrose. Thanks you all for your warm thoughts and the information. It's nice to know you are not alone.

Jeanie, thanks for the link I found it some what disturbing but also helpful. Knowledge is power right? My last 2 ANA's came back at 1:2560 with a nucleolar pattern which is also a sign for scleraderma. I don't have a rheumy appt until oct 4th though. It will be my first one with a new rheumy. He can't be any worse than my last one.

Marji thanks for the info. I'm sorry you have to deal with this too. Yes it is hard to figure out. There seem to be so many things that it could be caused by. I havn't had any real problems with my liver. The doctor thought there might be but a ct scan said no. They only found one small tiny tiny cyst. You're right they don't go away. I have had this stuff for a couple of years. It's only now starting to get worse though. If I get it on my face really noticable I will diffinently do somthing about it. God knows I feel self concious about enough already.

Redrose, I'll try the vitamin cream. Heck I'd much rather do that than surgery anytime. I've had it this long a couple of weeks won't hurt one way or another.

thanks everyone

love

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 8/14/2007 10:27 PM (GMT -7)   
Hi Carol,

I'd definitely bring it to your new rheumy's attention in connection with the possibility of the CREST/scleroderma diagnosis. The website that Jeanie gave you is a good one with a lot of good information. I'm so glad you're seeing a different dr.

From what I know, the laser treatment is fairly expensive. You're right; they make no guarantees. The "spots" can come back. Do any of them ever fade or go away on their own?

Hope you're perking up a bit, sweetie. We all need a little boost around here. Seems like our smartie pants got the starch washed out of them. I have faith though; they'll be back.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/15/2007 12:51 PM (GMT -7)   

Hi Emmie, good to see ya! Is it me or you that hasn't been around? No I have never noticed them going away of fading. I look like a road map. The big purple/red circles are the huge cities and the spider veins are the freeway. Which suddenly makes me understand why half the time I feel like I been hit by a truck!

Doing pretty good today. Earlier I was having problems with some pain and breathing. They seem to go hand and hand. If I'm in pain I guess my breathing gets a little more shallow. But it went away with out the aid of a pain killer so I am happy about that. I have people coming over for dinner tonight. I told them I was making chinese stire fry. I wonder if they will notice I made mexican instead? LOL. Hey it was here I just had to throw it together. Which was easier than the stirfry. Oh well there is always a pizza place I the corner I always say! Than I'm gonna do my wenesday night church thing. My son is going for more test at the v.a. today and I know they really put them thru the wringer trying to get them to recall things they want to forget. So of course I'm really trying to keep busy or my mind will be racing worrying. Even at 27 years old it just never ends does it?

Ok now that I have yacked your ear off I'll let ya go

It was good to see you!!!!!!!

love ya

carol



God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

Post Edited (okie) : 8/15/2007 1:55:01 PM (GMT-6)


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/15/2007 6:21 PM (GMT -7)   
Hi, Carol. I too, have that spider vein issue on my legs especially near my right knee. I have had mine though, since I relearned to walk after my car wreck. I really think all the extra pressure my right leg had to take on to help support my weaker left one was the cause of mine though. Mine just seems to keep spreading a little at a time. I also have a similar place (real vieny) on my abdomen near the base of my left lung which was involved at the beginning of this lupus. That vitamin K cream certainly sounds worth a try. Anything simple always sounds like a better alternative than what the doc's suggest! yeah Glad to hear you're feeling some better! I hope everything else goes well this evening. Good luck!
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/15/2007 10:00 PM (GMT -7)   

Hi Sharen, It's funny you should say that about the presure. I have laid around quite alot and thought on some occasions that maybe if I didn't lay down so much it would get better. I kind of doubt it though. Not to mention I have to lay down sometimes. Yeah I'm gonna try the vitamin K on my neck and my leg and see what hapens. I agree it has to be a better place to at least start.  I have been feeling better. physically but I noticed tonight my emotions were on my shirt sleeve. I don't like that. My brother said somthing to me and it hurt my feelings and I was fighting back tears. It wasn't anything major and I would normally blow it off but it really hurt me. I think it's the prednisone. Than again maybe I just need a good cry. I hope things start working out better for you soon. I know all of this is so hard for ya.

huge hugs

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/16/2007 2:55 PM (GMT -7)   
Hi, Carol. I don't think I'd be too concerned over the pressure of just lying down. I don't think we can help that one anyway. The pressure I'm referring to is the aching, pulling, strain of over-worked muscles in my right leg trying to support my entire body weight because my left leg can't do its' job any more. I am going to try to find some of that Vitamin K creme! Given time, any improvement would be appreciated. I am so glad you have been feeling some better lately. We have to fully enjoy any and all positives we get while having this disease! I'm very sorry you got your feelings hurt last night. I have that same problem some times. My BF says he can tell a difference with my emotions since I've been taking the prednisone. In Daniel J. Wallace's book, he says that prednisone stimulates the central nervous system which produces agitation, confusion, difficulty in concentrating, and may even result in psychotic behavior. He says patients may become moody and irritable. I just know it does effect my emotions at times. As for the "good cries"; I definitely have those on a regular basis. My mom says she uses them too, as a way to release the stress and give your system a good recharge! (And she doesn't have a chronic disease to deal with.) We'll all get through this, one day at a time! Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/16/2007 2:57 PM (GMT -7)   
Carol, I'm so sorry your brother hurt your feelings. Other people really have no idea what we go through and they can be so insensitive. I hate to hear that you're feeling so sad but I think it's probably therapeutic that you are able to talk to us about how you feel.

As far as what looks to be telangiecstacia, I do hope you'll talk to your new rheumy about this, and I pray that it's not scleroderma. Hang in there Carol and come back and talk some more when you need to. You're loved here.

(((((Hugs)))))

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/16/2007 9:17 PM (GMT -7)   
All of this can take a toll on us emotionally definitely. When you just feel so fatigued and ill, it can start messing with you. The pred I'm sure doesn't help at all. I hope you start feeling better again Carol. I would tell you a joke to lift your spirits but I always seem to mess up the punch line. We love ya Carol!!!
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 8/17/2007 12:29 PM (GMT -7)   
Carol: I have gotten them when I had the sclero problems and my daughter gets them when she flares and/or gets the malar rash. The cold sores are also part of flares. We both get them often. Definitely goes with the connective tissue disease. I don't think they have done any harm but you should bring it to the PCP's attention so he/she can document it. They are sightly but eventually go away. Take care - Kristin
 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/17/2007 8:18 PM (GMT -7)   
Hi Carol:

Gentle ((((hugs))) for you, I'm sorry your brother hurt your feelings. Isn't it hard on days were our emotions are running high and we've got to try to remember our families don't mean to be, say, or do something hurtful.

As for the photos of the rashes I get the one of the cheeks. I've always go a read rash on my face. I hope that you'll be feeling better. I know how much you'd like a break with things. I also wanted to say thank you for giving me a call in the hospital. As always it was great to talk with you.

Hope you have a good weekend and that you start to feel better. Hang in there honey, I know it's hard to at times. We love you here and we'll always listen to you.

Hugs to you,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 8/17/2007 9:25 PM (GMT -7)   
Hi Carol my sweet bud,

I wear my heart, eyeballs, tears and kleenex on my sleeves too. Oh, I'm not on prednisone by the way. I'm just an emotional wreck. Other days or even other parts of the same day, I may be lost in a giggle fit. Go figure. However, that still does not excuse anyone, especially someone who hasn't walked in the mocassins of someone who has an autoimmune issue or two or ten, to say anything that might remotely ruffle the feelings of someone who does have an AI issue(s).

Hope you're feeling better sweetie. Did I read somewhere along the way you're getting ready for a trip to AZ? Let us know if that's the case and if so, when, ok? Love you, okie!

xoxo emmie
PS it's been me who's been on again off again around here. think I need to do an update. maybe in the next day or two when I can remember why i've been on again off again!
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/18/2007 7:16 AM (GMT -7)   
Carol, are you doing ok? I haven't seen a post from you in nearly two days and hope you're just busy out looking for a cowboy and not at home feeling too down to post. Take care of yourself girl.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/18/2007 4:49 PM (GMT -7)   

Hi everyone! Thank you all for your responses. Emmie your a sweetheart and Barb it's so good to see your posting. I know you are still very ill and it means so much to me that you took the time and energy. Hi ya Patty! Thanks for checking on me. I'm doing ok. I just have a ton of things that just seemed to hit all at once and it seems every day by the time I set down I'm ready to fall on my face. Today was a little rough with the humidity and rain. I found a really cool thrift store the clothes are either like new or brand new. Most everything is a dollar. So I'm getting rid of the old and bring in the new. This is my second trip there. I wanted something different for church and for my trip. Plus I lost 12 lbs. yeah It hasn't come without cost though. I am hungry alot. I just finish half a cumcumber LOL. but I am determined to loose 10 more lbs before my trip. The really bad thing is I'm still trying to taper off the pred. I'm down to 7.5 I tried to go without it but that was a HUGE mistake. Tomorrow is a big church day and night and Monday I'm going with a friend to enid. She has a pacemaker and they keep making her go there every month because the battery is getting low. Today I spent the day with a friend with Lukemia she had to have chemo and that destroyed her blood cells or whatever. So she has infusions every 3 weeks to try to build it back up again. Boy when I see what some people have t go through I am very thankful for my good days.

Hey Kris I didn't realize that your daughter has lupus too. I'm so sorry. thank you for personnal insight into. I know alot of people talk about the sores in their mouth.

Knickers your right that as to be the weirdest kind of cold sore I ever saw. Don't ya love it when you pay the doctor to say. ...Dah I don't know tongue

and Des! How the heck are ya girlfriend? I know you were having some problems with keeping your emotions from going completely haywire. I blame mine on menapause and steroids. All though I had a hysterectomy including ovaries when I was 26. I have no idea weather I am going through menapause or not. I've diffinently gone through a Pause on Men. But hey there's Branson and phoenix coming up. LOL.

Okay I'm sorry I havn't posted much it's just been a rough week. I promise I will try to get here more and be more supportive. Right now I think I've worn myself out getting back to ya all.

I love ya and pray you all have painfreedays ahead.

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

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