Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD
Hi Bab's, Jeannie,Marji, and Redrose. Thanks you all for your warm thoughts and the information. It's nice to know you are not alone.
Jeanie, thanks for the link I found it some what disturbing but also helpful. Knowledge is power right? My last 2 ANA's came back at 1:2560 with a nucleolar pattern which is also a sign for scleraderma. I don't have a rheumy appt until oct 4th though. It will be my first one with a new rheumy. He can't be any worse than my last one.
Marji thanks for the info. I'm sorry you have to deal with this too. Yes it is hard to figure out. There seem to be so many things that it could be caused by. I havn't had any real problems with my liver. The doctor thought there might be but a ct scan said no. They only found one small tiny tiny cyst. You're right they don't go away. I have had this stuff for a couple of years. It's only now starting to get worse though. If I get it on my face really noticable I will diffinently do somthing about it. God knows I feel self concious about enough already.
Redrose, I'll try the vitamin cream. Heck I'd much rather do that than surgery anytime. I've had it this long a couple of weeks won't hurt one way or another.
Hi Emmie, good to see ya! Is it me or you that hasn't been around? No I have never noticed them going away of fading. I look like a road map. The big purple/red circles are the huge cities and the spider veins are the freeway. Which suddenly makes me understand why half the time I feel like I been hit by a truck!
Doing pretty good today. Earlier I was having problems with some pain and breathing. They seem to go hand and hand. If I'm in pain I guess my breathing gets a little more shallow. But it went away with out the aid of a pain killer so I am happy about that. I have people coming over for dinner tonight. I told them I was making chinese stire fry. I wonder if they will notice I made mexican instead? LOL. Hey it was here I just had to throw it together. Which was easier than the stirfry. Oh well there is always a pizza place I the corner I always say! Than I'm gonna do my wenesday night church thing. My son is going for more test at the v.a. today and I know they really put them thru the wringer trying to get them to recall things they want to forget. So of course I'm really trying to keep busy or my mind will be racing worrying. Even at 27 years old it just never ends does it?
Ok now that I have yacked your ear off I'll let ya go
It was good to see you!!!!!!!
Post Edited (okie) : 8/15/2007 1:55:01 PM (GMT-6)
Hi Sharen, It's funny you should say that about the presure. I have laid around quite alot and thought on some occasions that maybe if I didn't lay down so much it would get better. I kind of doubt it though. Not to mention I have to lay down sometimes. Yeah I'm gonna try the vitamin K on my neck and my leg and see what hapens. I agree it has to be a better place to at least start. I have been feeling better. physically but I noticed tonight my emotions were on my shirt sleeve. I don't like that. My brother said somthing to me and it hurt my feelings and I was fighting back tears. It wasn't anything major and I would normally blow it off but it really hurt me. I think it's the prednisone. Than again maybe I just need a good cry. I hope things start working out better for you soon. I know all of this is so hard for ya.
Hi everyone! Thank you all for your responses. Emmie your a sweetheart and Barb it's so good to see your posting. I know you are still very ill and it means so much to me that you took the time and energy. Hi ya Patty! Thanks for checking on me. I'm doing ok. I just have a ton of things that just seemed to hit all at once and it seems every day by the time I set down I'm ready to fall on my face. Today was a little rough with the humidity and rain. I found a really cool thrift store the clothes are either like new or brand new. Most everything is a dollar. So I'm getting rid of the old and bring in the new. This is my second trip there. I wanted something different for church and for my trip. Plus I lost 12 lbs. It hasn't come without cost though. I am hungry alot. I just finish half a cumcumber LOL. but I am determined to loose 10 more lbs before my trip. The really bad thing is I'm still trying to taper off the pred. I'm down to 7.5 I tried to go without it but that was a HUGE mistake. Tomorrow is a big church day and night and Monday I'm going with a friend to enid. She has a pacemaker and they keep making her go there every month because the battery is getting low. Today I spent the day with a friend with Lukemia she had to have chemo and that destroyed her blood cells or whatever. So she has infusions every 3 weeks to try to build it back up again. Boy when I see what some people have t go through I am very thankful for my good days.
Hey Kris I didn't realize that your daughter has lupus too. I'm so sorry. thank you for personnal insight into. I know alot of people talk about the sores in their mouth.
Knickers your right that as to be the weirdest kind of cold sore I ever saw. Don't ya love it when you pay the doctor to say. ...Dah I don't know
and Des! How the heck are ya girlfriend? I know you were having some problems with keeping your emotions from going completely haywire. I blame mine on menapause and steroids. All though I had a hysterectomy including ovaries when I was 26. I have no idea weather I am going through menapause or not. I've diffinently gone through a Pause on Men. But hey there's Branson and phoenix coming up. LOL.
Okay I'm sorry I havn't posted much it's just been a rough week. I promise I will try to get here more and be more supportive. Right now I think I've worn myself out getting back to ya all.
I love ya and pray you all have painfreedays ahead.