Is nausea part of AI disease, sun sensitivity, or med reaction?

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cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 8/14/2007 5:58 PM (GMT -7)   
Hi--
I noticed a lot of people get bad nausea and I've had it for a few months now and it is like dry heaves and really really bad.  They are putting me on a strong antinausea drug and taking me off phenergen.  Is this part of AI disease or sun sensitivity or med reaction?  Does anyone know why you get it?  I just wondered.  If it is from a drug, I definitely need to stop it, if its from the sun, I will have to talk to the doc about somehow getting less sun. If it's the disease, I want some pred.  So if you can let me know what you think, I'd really appreciate it.  I'm ready to stick my fingers down my throat I'm so sick.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 8/14/2007 7:17 PM (GMT -7)   
(((Marji))))), I'm so sorry you are suffering with this. I think most of us suffer from some nausia to some degree. There are alot of people here who can't take plaquenil because of it. If you are taking the generic brand you might try the regular stuff. I take generic with no problem but others say they switched to the name brand and it helped. I think it can also be part of the lupus crap! But I still had nausea even though I take a quality of life (choke choke) dose of pred. everyday so I would hesitate to say that pred would help.
I hope you can get something to help your tummy. I do eat soda crackers and drink herb teas sometimes with spearmint or pepermint mixed with camomile. That seems to help quite a bit.
I hope you get to feeling better soon
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Audrey Ann
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Date Joined Jul 2005
Total Posts : 815
   Posted 8/14/2007 8:34 PM (GMT -7)   
Marji,

So sorry you have such an upset stomach! Yuck! I have a lot of nausea, too. I keep peppermint candies at home, in the cars, and in my office and this helps most of the time. Also, my rhuemy had me take something (Prilosec, I think...) but I could only take it for 14 days. It seemed to help some but I still have problems.

I have almost immediate nausea from sun exposure so I make sure to avoid as much sun as possible. I use at least 30 SPF on my face and any exposed skin EVERYDAY. I also keep a long sleeved sweater or jacket in my car to cover up my arms when driving. At times, I have had to put gloves on my hands when I am in a big flare because I would end up with welts from the sun even through the car window!

My rhuemy says the sun, all by itself, can make us lupies have nausea. In addition, the plaquenil and MTX and many other drugs we are prescribed makes the nausea even worse, especially when we are in the sun. So, from what you have described, my guess is the sun is causing much of your nausea. This is the first summer that I have been very consistent about staying out of the sun. I have been feeling much better, too. Even my trips to Florida were "sunless" as much as possible. Thank goodness for capris, long-sleeved but lightweight shirts, floppy hats, umbrellas, and lots of SPF.

So, be careful about that sun!
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), RelafenMethotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra & Patonel Eye Drops for Allergies.


 


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 8/15/2007 2:22 AM (GMT -7)   
The nausea is from a combo of factors. Metformin can actually add to it, as can plaquenil, klonopin, ultram, vicodin, and albuterol. The disease causes some of it. The fact most of us don't want to eat anymore adds to it. Taking the whole amount of plaquenil at night can help greatly. Also if you get it under control and take the anti-nausea regularly it makes a huge difference. Also if you have allergies consider post nasal drip as a possibility. I am sorry to say the meds you are on for the lupus/AI conditions are milder on the stomach than the alternatives. Prednisone actually can intensify the nausea, Imuran makes it much much worse, and the rest well they can be nasty. NSAIDS can add to the problem too. Also might ask for prilosec just in case the nausea is stomach irritation from the meds. I hope you find a solution soon. Also try eating a small amount of protein regularly and do not get out of bed without eating a little something first. It might help. Ginger can work wonders and I hear coke syrup is great from my pharmacist- you have to request it but it is sold w/o a script or with if you wish. GOOD LUCK!!!!!!!
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 8/15/2007 6:02 AM (GMT -7)   
Marji, I'm sorry you are going through this - nausea is the pits and it just makes you feel awful. I'm guessing your nausea could be from any or all of the sources you asked about. I know that sun exposure makes me nauseas as well as some of my meds. I find it strange that I can still gain weight while feeling nauseous. I think it's kind of like when I was pregnant and I would try to find something to eat to relieve it and if I ate the wrong thing, I'd try something else to relieve the nausea from the thing I ate before.

For me, I have found that Coke, soda crackers, broth, fudgesickles and oatmeal have all helped my nausea, but you have to listen to your body and try the things that sound good to you.

I really hope the new med helps to control your nausea better. ((((Hugs))))
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 8/15/2007 7:21 AM (GMT -7)   
I too experience nausea pretty regularly. I think mine comes mostly from not wanting to eat. Its weird because I don't not want to eat because of nausea, I get nausea because I don't want to eat. I just don't have an appetite. Of course, this causes a queasy feeling. I will snack on a bit of fruit or crackers when I think of it but half the time, I just plain forget to eat until its too late. I HATE nausea!!


"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 8/15/2007 9:41 AM (GMT -7)   
Thank you so much everyone, too many to name. Boy, I wish I didn't want to eat, but I don't digest anything, run to the bathroom after, so I'm hungry. I'm going to start drinking my peppermint tea, diabetic candies often work better than any laxative, especially Russel Stover, I wondered where Chocolate X-Lax came from. If you have an enemy, you can send them a box of those. Boy.

I've got diet rite which is all I can drink, don't think that works very well, may need to buy coke syrup, I bet our little old pharmacy has that, forgot about that. My oatmeal did help, but I'm off that for dietary reasons for about a month, but I've been having to eat soup and broth for lunch and lite dinner anyway, so going down to the BRAT diet, bf made jello for me. I've got some gatorade. I will try the new anti-nausea thing and bentyl for IBS see how they work. Thanks so much. I'm just glad not to be bright red so much anymore. The shots really did help--being antihistamines. Guess its sun allergy.

It sounds like almost every med I'm on causes it and then lots of things wrong with me cause it too. It just really ramped up and came on suddenly. I think it may be the protopic ointment that is making things so bad, or when I take too long between doses or something. The protopic ointment for my vitiligo is so strong and I have to put it on half my body so I'm getting a ton of it in my system. What's funny is that I have more energy on it and even though it hasn't helped my repigmenting much, my liver has stabilized more now than ever and its supposed to be hard on the liver, also helps my itching. The active ingredient is rapamune, an anticytokine/anti-rejection transplant kind of drug, so it makes me wish they would give me something stronger for my AI disesae. I may ask to try cutting the plaq from 400mg to 200mg. for a while.

And as for the sun, I did screw up. I'm supposed to go out for 15 minutes a day when I feel up to it to sun my unpigmented areas and I went out some on Sat. in the yard, putsed a little, though in full pants and long sleeve shirt, they were thin to the excessive heat so I could feel my skin burn through them--when I go out it burns like and gets red, not sunburn but like almost allergic red and it goes away days later, I don't know if this is what happens to you--and I did take a dip in the pond for 10 minutes, the water is murky now due to rain, and took a short swim for some exercise and just to get out. I can't believe this is the price I'm paying.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 8/15/2007 6:21 PM (GMT -7)   
Yes, I have had the red skin thing when I am in the sun if I am in a flare. It is amazing how little time it takes and then you really pay with the sick, nausea - almost flu-like. Swimming is good exercise, though, if you can avoid the sun. I hope things settle down for you!
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), RelafenMethotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra & Patonel Eye Drops for Allergies.


 


cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 8/15/2007 7:24 PM (GMT -7)   
Thanks, Audrey Ann, its so weird because all the symptoms dont hit me right away when i go inside, but once i sit for a while it all comes crashing down over the next couple hours, though the skin is right away, the nausea and joint pain and fatigue builds over time. I did some look up and it sounds like maybe just a little gallbladder (gallstone?) or mild chronic pancreatitis, which is related to my liver and gi junk and runs in my family. I got the worst of both sides! Its not as bad as it could be, just aggravating. And of course the sun thing too, definitely. The only time my back and neck dont hurt is when floating so I like to go there, I could fall asleep floating there if it weren't so sunny and hot.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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